Reply
 
Thread Tools Display Modes
Old 03-19-2008, 10:09 PM #1
the Bird's Avatar
the Bird the Bird is offline
Senior Member
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
the Bird the Bird is offline
Senior Member
the Bird's Avatar
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
Default Calling all Copaxone Users!

First I got a box of dull needles! I call Shared Solutions....they send me a box of replacement med....

After 4 doses of this med I have extreme site reactions....I didn't put two and two together until I was talking on the phone with the nurse at SS....

My short experience with Copaxone hasn't been too reassuring! (The medicine itself, not the Shared Solutions!) First box of bad needles...then a batch of something wrong with the med.....

They offered to send me replacements, but I'm thinking I'd rather have the dull needles and the "good" med! So I tell her I'll use what I have! LOL

Have you had any problems with the medicine or the needles?
the Bird is offline   Reply With QuoteReply With Quote
Old 03-19-2008, 10:14 PM #2
KarenMarie KarenMarie is offline
n/a
 
Join Date: Jan 2008
Location: southern Maine
Posts: 2,920
15 yr Member
KarenMarie KarenMarie is offline
n/a
 
Join Date: Jan 2008
Location: southern Maine
Posts: 2,920
15 yr Member
Default

Not yet Bird - did mention the dull needle question to my neuro's nurse when I went in for my lesson and she said that Copaxone had had complaints and had corrected the problem - apparently not enough !! Did you look at the needles to see if the Copaxone was discolored or was grainy ?
KarenMarie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
the Bird (03-20-2008)
Old 03-19-2008, 10:19 PM #3
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

karen has a good point.
the medicine should be clear.

i havn't had any problems but i've heard a lot about them.
hope your next box is a charm.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
the Bird (03-20-2008)
Old 03-19-2008, 10:29 PM #4
CayoKay's Avatar
CayoKay CayoKay is offline
Fabulous Belizean Member
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
CayoKay CayoKay is offline
Fabulous Belizean Member
CayoKay's Avatar
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
Default

oh, whatta pain in the derrierre!

it was for reasons JUST like you listed, that I "ceased and desisted" with the Copaxone, back a few years ago.

and two lost packages as well... argh! (I lived in a very rural area then, and it was around Christmas, with all the "temp" UPS drivers...)

I never got dull needles, but I DID get ones that failed to function.

and one box that gave me gnarly site reactions from Hades.

good luck untangling the problems, and hang in there, honey!

__________________
And the trouble is... if you don't risk anything, you risk even more. - Erica Jong
CayoKay is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
the Bird (03-20-2008)
Old 03-19-2008, 11:06 PM #5
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

I've had two rather impressive site reactions since I started doing the shots manually (the autoject injections were giving me site reactions that were MORE than impressive, which made it really difficult to do the shots every day)

I think I've had a couple of dull needles, but a dull needle is nothing compared to shooting myself with the autoject...that hurts way more!
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
the Bird (03-20-2008)
Old 03-19-2008, 11:36 PM #6
KarenMarie KarenMarie is offline
n/a
 
Join Date: Jan 2008
Location: southern Maine
Posts: 2,920
15 yr Member
KarenMarie KarenMarie is offline
n/a
 
Join Date: Jan 2008
Location: southern Maine
Posts: 2,920
15 yr Member
Default

Wow - the autoinject is what I use (and my husband too) - the needle doesn't go in quite as far as it does manually even when set to 10 - I guess it is an individual thing - for me the manual hurts and the auto doesn't - and no site reaction other then some redness and swelling that goes away in half an hour - don't know if you know that there's a way to adjust the needle depth on the autoinject and I found that if I press hard into the area I'm injecting with the autoinject - I do get a bruise - so I hold it against my skin but don't use too much force - my husband's been doing it for me and he's been holding the front of autoinject flush with my skin and applying very little downward pressure - so far so good -
KarenMarie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
the Bird (03-20-2008)
Old 03-23-2008, 01:28 AM #7
lburdockfriend's Avatar
lburdockfriend lburdockfriend is offline
Junior Member
 
Join Date: Jan 2008
Location: Ohio
Posts: 27
15 yr Member
lburdockfriend lburdockfriend is offline
Junior Member
lburdockfriend's Avatar
 
Join Date: Jan 2008
Location: Ohio
Posts: 27
15 yr Member
Default

hey bird.

i've been switched to 'em just about a month ago & i've not have a problem yet other than the first few days. then it was just these weird little red dots almost six inches all the way around the area that went away after a week. i've not had 'em since tho so i'm thinking all is well.

i'm crossing my fingers here girl!
__________________
I Want To Live Til I Die ~ No More, No Less...Eddie Izzard
lburdockfriend is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
the Bird (03-23-2008)
Old 03-23-2008, 06:26 PM #8
the Bird's Avatar
the Bird the Bird is offline
Senior Member
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
the Bird the Bird is offline
Senior Member
the Bird's Avatar
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
Default

Update on Copax shots!

I am doing this reaction with the old med and the dull dull needles now! I will call SS and let them know that the other meds apparently aren't bad, for whatever reason I'm getting these awful red lumpy things that last about a week, turning into a bruise....

Sometimes they itch, sometimes not, and sometimes, I don't get the ones that hang around....

From what you guys are saying you have had this too....

I am very fair skinned, and they told me at SS that the fairer you are, the more site reactions you have or something along those lines! probably worse ones!

Thanks guys!
the Bird is offline   Reply With QuoteReply With Quote
Old 03-23-2008, 07:47 PM #9
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

Quote:
Originally Posted by the Bird View Post
Update on Copax shots!

I am doing this reaction with the old med and the dull dull needles now! I will call SS and let them know that the other meds apparently aren't bad, for whatever reason I'm getting these awful red lumpy things that last about a week, turning into a bruise....

Sometimes they itch, sometimes not, and sometimes, I don't get the ones that hang around....

From what you guys are saying you have had this too....

I am very fair skinned, and they told me at SS that the fairer you are, the more site reactions you have or something along those lines! probably worse ones!

Thanks guys!
That explains it! I'm not as fair skinned as most of my family is. (Irish-Luxembourg on my dad's side, English/American Indian on my mom's side)

I got more of my mom's coloring (dark hair, skin that tans instead of burning) I do have enough of my dad's coloring that I'm probably still considered fair skinned.

That would explain the bee sting reactions on my thighs. I dont always get the bee sting when I do my stomach...

I've had two or three C injections this week that didnt want to inject all the way. One because I'm pretty sure I hit a vein, I got a good portion of it to inject, but it was really difficult the further the plunger went down. So, I quit and removed the needle because I was worried that I would hurt myself if I forced it.

The others were in my stomach, and I encountered resistance when it got to the black line that's close to the needle end of the syringe.

I'm pretty sure most of my needles have been dull, because I've really got to push to get those needles in. I've only got 8 syringes left from that particular box, so I'm not sure if I'll call SS and complain about it.
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
the Bird (03-23-2008)
Old 03-23-2008, 08:13 PM #10
the Bird's Avatar
the Bird the Bird is offline
Senior Member
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
the Bird the Bird is offline
Senior Member
the Bird's Avatar
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
Default

Erin, I think you ought to let them know. When they offer to replace the ones left, just tell them you've already injected almost all of them!

They do need to know that the needles aren't corrected...

And ask them about resistance pushing in the med....that sounds really odd....
the Bird is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Does anyone on Copaxone suffer from Insomnia ? Kristi Medications & Treatments 12 03-14-2008 10:55 AM
I am now an official Copaxone user! the Bird Multiple Sclerosis 27 02-28-2008 10:45 PM
Does anyone on Copaxone suffer from Insomnia ? Kristi Multiple Sclerosis 11 01-24-2008 08:28 AM
Copaxone question greenapple Multiple Sclerosis 8 05-07-2007 04:30 PM
More Good News On Copaxone pantos Multiple Sclerosis 1 10-13-2006 09:32 AM


All times are GMT -5. The time now is 12:55 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.