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-   -   Having a hard time dealing with the new DX. (https://www.neurotalk.org/multiple-sclerosis/41699-hard-time-dealing-dx.html)

momXseven 03-20-2008 04:55 PM

You guys are great. :grouphug:
I feel bad that I so bummed over this DX, I should be happy. :confused:

It was/IS still a shock to hear I have scoliosis, I never would have thought this. I know it's not a awful thing to deal with but with it being in my lower back and causing pain and numbness and maybe the IBS makes it hard to deal with right now. :(
I felt like if it were MS I had the option of meds to help, the only meds that would help me know is pain meds and that's really not an option for me right now.

Keely 03-20-2008 04:55 PM

Hi Julie,
I second what everyone else is saying--do get that second opinion from a spine doctor.

I have mild scoliosis AND a small pinched nerve in my back, and guess what? After all the MRIs and everything else, the neuro and my other docs have confirmed that neither one of these is actually causing any problems for me at all! They confirmed that the problems I DO have are all caused by MS.

Scoliosis can exist and not cause problems. So can a small pinched nerve, even. I'm hoping for your sake that it IS the scoliosis that is causing your problems, of course--no one wants MS!-- but by the same token, I, like everyone else on this board, want to see you get the right DX.

So do follow up, sweetie, and keep us posted!
:Wave-Hello:

Erin524 03-20-2008 07:49 PM

Quote:

Originally Posted by Keely (Post 241091)
Hi Julie,
I second what everyone else is saying--do get that second opinion from a spine doctor.

I have mild scoliosis AND a small pinched nerve in my back, and guess what? After all the MRIs and everything else, the neuro and my other docs have confirmed that neither one of these is actually causing any problems for me at all! They confirmed that the problems I DO have are all caused by MS.

Scoliosis can exist and not cause problems. So can a small pinched nerve, even. I'm hoping for your sake that it IS the scoliosis that is causing your problems, of course--no one wants MS!-- but by the same token, I, like everyone else on this board, want to see you get the right DX.

So do follow up, sweetie, and keep us posted!
:Wave-Hello:


I ditto the 2nd opinion from a Medical Doctor who specializes in the spine and nerves.

I have some mild scoliosis too. Missed by all those scoliosis tests they used to do at school. (we'd go once or twice a year and have to stand in a room while the school nurse or one of the teachers would look at our spines to see if they were straight)

They found the scoliosis when I had my spinal MRI that I had a week or two before getting diagnosed with MS.

momXseven 03-20-2008 08:53 PM

:Sob:One more self pitty post and than I'll be OK.
I was thinking that just maybe this chiro was wrong and he just wanted my business (I didn't see the full size x-ray my self yet, I see them Sat.).
Anyway I was in the bathroom just now and you can easily see my shoulders are off, my left is way higher than the right so I looked at my back, and you can see the curve and my hips are off.

How did I miss this all theses years?:confused:

OK, no more whining. Thanks for letting me vent.

DH is waiting for me in the bedroom to watch a movie:popcom::pepsi:

karousel 03-20-2008 09:10 PM

I'm glad to know it's not MS but feel bad that you have to be experiencing the pain you are in. I hope you can get a second opinion and more information for what your options are.

Kitty 03-21-2008 03:57 AM

Hi Julie,

I'm so glad it's not MS - but I'm sorry that you're experiencing pain and numbness. I agree with GJ who suggested that you see a spine specialist. And I agree that this chiropractor might just have wanted your business. When it comes to your spine you need to seek the most qualified and experienced medical professionals. Your spine is nothing to play around with - especially if it's causing the problems you're experiencing.

Good luck to you. I'm sure it's a relief to at least know what's causing the symptoms. :hug:

Jodylee 03-21-2008 05:17 AM

Hi Julie! I'm very glad you don't have MS! Please find an orthopedic doc who specializes in the spine as soon as you can. Don't be discouraged, there are a lot of treatmebt options for spinal conditions. I have spinal stenosis along with a long family history of severe back problems. I just happen to have MS too. As for not seeing how misaligned you are, well, I think most of us wouldn't see this in the mirror either. Sometimes we don't see things until someone else points us in the right direction. I'm sooo sorry you're feeling so crappy. I'm sure you'll find the right doc to help you. ((Julie))

FinLady 03-21-2008 07:43 AM

Hi Julie.

I'm going to echo what everyone else said. Glad it's not MS and hope you find a good spine doc that can help you out. :hug:

momXseven 03-21-2008 09:11 AM

Thank you everyone, I'm feeling better today. It was like a slap in the face to get this DX and it just toke a little time to sink in.
This isn't awful and I'm not dyeing from it. :)

I just need to work on getting my back and neck a little better so I don't have the nerve pain 24/7 and the leg numbness.

Oh I wasn't crazy, the L'Hermitte's that I had been having is being caused by my neck problem.

tkrik 03-21-2008 09:34 AM

Julie - Congratulations! I am happy for you that it is not MS.

I agree with the others about getting a 2nd opinion. One of my sisters had it and she checked out different options for treatment. While she did go to a chiro he also does preventative and sports medicine. Her treatment was a combination of things including PT to retrain the muscles. It took a few years but she is doing so much better now. She even grew an inch. LOL.

As with all things, different therapies work differently for each person. Do your homework on different doctors and on treatment options. Even if you have to go to 10 different places/doctors to get an opinion. Keep in mind that you do have fibro and look for someone who is knowledgeable about that as well. They can incorporate that in to your therapy. For me, a more holistic doctor/facility is important as they treat the whole person not just the symptom.

Keep us posted on how you are doing.


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