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-   -   I thought now would be a good time to ask about this... (https://www.neurotalk.org/multiple-sclerosis/42005-time.html)

Erin524 03-26-2008 07:14 PM

Quote:

Originally Posted by MSacorn (Post 245380)
Give him a call. That is what I did with mine. The secretary will mail it to me. I wasn't going to wait for my April appt.

:hug:

I forgot to call today. Went to the dentist and my serious fear of dentists was all-consuming and I was lucky to show up for the appointment.

I'll have to call him tomorrow if I dont forget between the washer repairman, the oven repairman, the tile guy for the new bathroom that's been a Work-in-progress since October, and my dad's younger sister calling me to look up kitty cats on the Nebraska Humane Society website. (she doesnt have internet access at home)

JessieSue 03-26-2008 10:44 PM

Erin.....remember the old York Peppermint Pattie commercials? The bra inserts make me think.."I get the sensation........" LOL

Erin524 03-26-2008 11:49 PM

Quote:

Originally Posted by JessieSue (Post 245530)
Erin.....remember the old York Peppermint Pattie commercials? The bra inserts make me think.."I get the sensation........" LOL

"I get the sensation of two ICE COLD York Peppermint Patties on top of my ta-ta's?"

Dont mind me, I'm in a silly mood at the moment.

Koala77 03-27-2008 12:31 AM

Quote:

Originally Posted by JessieSue (Post 244471)
I went to their website and applied for this whole cooling kit! It has the vest, wrist coolers, neck cooler, cooling bandana and lots of cold packs. I qualified to receive the whole kit for free. I think it was based on one's condition, not finances, but I don't quite remember. Definitely look into this though, the kit is wonderful!:)


I had a look at the site but couldn't work out what was their "cooling kit". They had so much to choose from.

I know I can't apply for free anything because I live "elsewhere" but I'm interested to see how they decide who gets it all for free.

Maybe I could put pressure on some of our companies here who make similar products.........or on MS sites here in OZ Land to put pressure on the companies that supply these goods, to give us all a better deal.

One can only try!

Foggy Brain 03-27-2008 09:50 AM

Erin,

I just received this information from a fellow MSer that you may find beneficial. The Steele Vest I have was paid for by a local MS foundation through the University of Missouri (we also have monthly support meetings). You may want to contact the University of Nebraska to inquire if they have a MS foundation available too.

ARE YOU HEAT-SENSITIVE?
Many people with MS experience weakness, fatigue, visual disturbances, and other symptoms when they become overheated. The MSF Cooling Program offers a variety of items, free of charge, including cooling vests and accessories, to help with heat-sensitivity. Applications are accepted through June 1st. Send applications to: The Multiple Sclerosis Foundation, 6350 North Andrews Avenue, Fort Lauderdale, FL 33309. Applications can also be submitted online at http://msfocus.org/programs_coolapp.php. Additional applications can be obtained by calling: 1-888-MSFOCUS (673-6287).

Hope this is a help for you. I know how the midwest heat and humidity can play havoc on us.

JessieSue 03-27-2008 11:08 PM

Quote:

Originally Posted by Erin524 (Post 245573)
"I get the sensation of two ICE COLD York Peppermint Patties on top of my ta-ta's?"

Dont mind me, I'm in a silly mood at the moment.

LMAO!!!! Too Funny!!!:D

JessieSue 03-27-2008 11:11 PM

Quote:

Originally Posted by Koala77 (Post 245581)
I had a look at the site but couldn't work out what was their "cooling kit". They had so much to choose from.

I know I can't apply for free anything because I live "elsewhere" but I'm interested to see how they decide who gets it all for free.

Maybe I could put pressure on some of our companies here who make similar products.........or on MS sites here in OZ Land to put pressure on the companies that supply these goods, to give us all a better deal.

One can only try!

Heck Yeah!! Keep on keepin' on! LOL People in "OZ Land" get hot too!! LOL:D

weegot5kiz 03-28-2008 01:27 PM

I got the neck wrap it worked ok last year i lol ready i just dont know what i did with it lol god i love this illness every day is like a winding road lol

MSacorn 04-02-2008 11:37 AM

Good news.
Last week I mailed my application to MSAA for cooling vest and accessories. Yesterday someone from there called and verified my request. She then said it will be sent to me in a few days. :cool:

Now if the temps would just warm up. We've got the sunshine today but the air is chilly.

:hug:

Erin524 04-02-2008 01:06 PM

Quote:

Originally Posted by MSacorn (Post 249799)
Good news.
Last week I mailed my application to MSAA for cooling vest and accessories. Yesterday someone from there called and verified my request. She then said it will be sent to me in a few days. :cool:

Now if the temps would just warm up. We've got the sunshine today but the air is chilly.

:hug:

crap...I knew there was something I forgot to ask the neuro about yesterday!

Oh well, I see him at the regularly scheduled appointment at the end of the month... (note to Self. Remember to make a note to ask the doctor for a Rx to get hopefully free MS accessories from the MSAA)


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