advertisement
Reply
 
Thread Tools Display Modes
Old 03-28-2008, 10:01 AM #1
Bannet's Avatar
Bannet Bannet is offline
Senior Member
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Bannet Bannet is offline
Senior Member
Bannet's Avatar
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Default neurology visit

I saw my MS specialist yesterday and now I am right back in my dark hole

It takes me an hour to get there and I always feel like "Dead Man Walking" on the way there.

I don't ever get "Your doing great". Yesterday during the visit we of course did some testing. Hands out in front close your eyes etc. balance is getting worse. Gait is getting worse and now I have developed tremors.

He seems to think I am progressing but wants to take the wait and see for a little bit longer. I do take copaxone everyday and I seem to think if this makes any sense that I feel better Inside?!

Anyway, I again am down in the dumps and I hate this feeling. I guess going to the neurologist is a reality check for me.

"This is never going to go away"!!! Man this sucks.

Thanks for listening to me whine. Can I get some cheese now
__________________

.


Roadtrip Wannabe
Bannet is offline   Reply With QuoteReply With Quote

advertisement
Old 03-28-2008, 10:14 AM #2
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default

What kind of cheese? Let me see what I have.

I am so sorry that you are down in the dumps and things didn't go well for you yesterday. The good news is that you have all of us to whine and complain to and we understand and are here for you.

Sending prayers up for you and a big cyber.
tkrik is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bannet (03-28-2008)
Old 03-28-2008, 10:21 AM #3
FinLady's Avatar
FinLady FinLady is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
FinLady FinLady is offline
Grand Magnate
FinLady's Avatar
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
Default

Sorry to hear that the neuro appointment was a reality check. I know I hate appointments like that, so understand your need to vent.

BTW, I have some cheddar if you would like.
__________________
Strength comes in all types of packages, even those you don't expect

Dx'd MS 2007, Fibro 2009
FinLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bannet (03-28-2008)
Old 03-28-2008, 10:24 AM #4
Bannet's Avatar
Bannet Bannet is offline
Senior Member
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Bannet Bannet is offline
Senior Member
Bannet's Avatar
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Default

Thanks Fin and TK I hate to vent but sometimes it kinda feels good to blurt it out. Can I have a slice of each please
__________________

.


Roadtrip Wannabe
Bannet is offline   Reply With QuoteReply With Quote
Old 03-28-2008, 10:27 AM #5
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default

Aw nuts, Bethie, I hate hearing this! You know I'm right there with you and it's just plain hard to get a grip on all the different ways this carp impacts us. Let's not lose all hope, something has to give one of these days.
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN


"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bannet (03-28-2008)
Old 03-28-2008, 11:56 AM #6
greta greta is offline
Member
 
Join Date: May 2007
Posts: 713
15 yr Member
greta greta is offline
Member
 
Join Date: May 2007
Posts: 713
15 yr Member
Default

Just remind yourself that you're the same person today as you were yesterday. Regardless of what you learned during that doctor's visit, it doesn't change anything about you.
greta is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bannet (03-28-2008)
Old 03-28-2008, 02:33 PM #7
Bannet's Avatar
Bannet Bannet is offline
Senior Member
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Bannet Bannet is offline
Senior Member
Bannet's Avatar
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Default

Greta I know you are right when you say it doesn't change who I am it just such a pain in the rump when you try to stay positive and live as normally as whatever normal is and then Smack right upside the haid with reality.

I only think like this right after a neuro appt. It's weird. Its like Man....I have a disease......This sucks.......It's never going to go away....Am I always going to walk like I have a pole up my rump.....I feel cheated......I feel like carp....It's not fair! Why do I have to go through this! yada yada yada.

I will be back to my ole "I don't give a carp" self tomorrow!

Please stand by........I am just like Michigan Weather. If you don't like it, wait 5 minutes it will be different
__________________

.


Roadtrip Wannabe
Bannet is offline   Reply With QuoteReply With Quote
Old 03-28-2008, 03:59 PM #8
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

I'm so sorry Beth - this disease does bite the big one.....seems like one day I'm doing good and then wham the fatigue and dizziness hits. Visits to the Neuro affect me like this, too. I guess hearing it confirmed from a "professional" just sorta makes it more real. I hate trying to explain symptoms to someone who's never experienced them. I almost feel like to have to apologize - but for what I don't know. I just want to say "look, this is what I'm feeling whether you can relate to it or not is not my problem. Just give me something to allieviate the symptoms."

I hope you feel better...wish I could offer you some words of wisdom but I don't have any!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
Old 03-28-2008, 05:43 PM #9
Bannet's Avatar
Bannet Bannet is offline
Senior Member
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Bannet Bannet is offline
Senior Member
Bannet's Avatar
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Default

AMN I know you can relate doggone it and herekitty you are so right about biting the big one (I love that term LOL)

Its so good to be able to come on here and crab away at things. Its almost cleansing.

You guys are great and I really appreciate your support
__________________

.


Roadtrip Wannabe
Bannet is offline   Reply With QuoteReply With Quote
Old 03-28-2008, 06:08 PM #10
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

sometimes beth life do sucketh mucheth, it does hang in there you are not alone, you have friends on here who care for you and by the way pretty awesome signature picture ya got there

try not to let it get the best of you, we would rather share the best of you
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bannet (03-30-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Neurology Now tshadow Thoracic Outlet Syndrome 2 07-05-2007 08:26 PM
DID YOU KNOW...Magazine/USA...Neurology Now Stitcher Parkinson's Disease 0 02-24-2007 09:48 AM
Article in Applied Neurology buckwheat Reflex Sympathetic Dystrophy (RSD and CRPS) 17 02-05-2007 01:23 AM
MGH Neurology Webforum Kpryor35 Thoracic Outlet Syndrome 3 01-15-2007 04:07 PM
new paper-Neurology Annie Poo Reflex Sympathetic Dystrophy (RSD and CRPS) 0 09-28-2006 08:07 AM


All times are GMT -5. The time now is 12:47 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.