He was in the initial testing and I think Tim could answer that a lot better than me.

The trials now are designed for RRMS and CIS as the protocol is approved by the FDA.

As for the longer run, I have no idea. I am just a lab rat...I know nothing...absolutely nothing...seriously. I am not trying to evade your question Cherie. I truly know nothing!

:p:p

I haven't seen Tim around in a couple of years, I don't think. Do you know if he still out and about on the forums?

It's probably the same as all drugs/meds, where people with SPMS and PPMS end up trying it eventually, even without trials backing it. Why not, eh?

I like that someone with PPMS has tried it and he seems to have had considerable success though. It's all good.

Cherie

I thought he was still posting on thisisms, but maybe not.

I heard from Tim he is not PPMS. He did have 1 CD-8 cell in his MRTC set, and CD-8 T-cells are usually associated with PPMS. Since his study had both RRMS and SPMS, how he was classified didn't matter.

I hope that answers your question.

Thanks a lot, Cheryl. He was quite disabled when he started, and saw considerable improvement. Hopefully it wasn't just the "remitting" stage then . . . and was indeed due to the treatment.

I have my fingers and toes crossed on this trial. :)

(I haven't been looking over at that site in years . . . maybe I'll have a look if he is still updating.)

Cherie