Hello,

I have to say that your Dr was wrong to give you grief over this. Drs must (or if they
don't, should) have their own boards to vent on! Actually,I wish at least one of my
former Neuros had been evesdropping here or on other boards. It would certainly have
done some enlightening!!! They, like we, don't always get to see both sides of the
picture, and we can't always tell them our side adequately.

kami

That is a good reminder, thank you herekitty.

Maybe it would be a good thing if doctors DID read our posts.

They shouldn't get offended if we question things - or request certain medications. No more so than if we got a second opinion. Seems they would be glad that we take an active role in our treatment. My Neuro seems pleased when I bring up different topics regarding treatments and trials that are being done. The only thing he wont' discuss with me is LDN - I've tried but cannot get him to let me give that a try.


B2Y.....I always had a funny feeling about those darn cranberries.....:eek:

HUGS Keri ~!

So sorry for all you are going through.

Well, seems that your doctor may be reacting to things that didnt go right for you. Instead of taking it out on YOU, I would think he'd address this in a caring, apologetic way, after all he works for YOU!!! Hope your Doctor is caring enough to take note of this problem. No wonder you feel so badly.

I wonder what can he learn from your experience. Hmmmm... HE has the power to make things happen.

Warmly Jan

Jeez!!! On another board called an old neuro by name and said he was cute
and maybe he thougt a little that way about me. Hope he didn't read it!!! Doubt I'll ever see him again, but my face is red.

This is a wake-up call to me. An Ex of someone on a board read what was written about them and gave the other heck about it!!! The boards are public!!!!

yep. these are public boards.

my advice if you are worried that someone you don't want to read the board will "find" you and your posts....don't use your real name. :)

ask your board buddies to not address you by your real name...just your screen name.

btw...many dr's that do read the forums learn from them. not all are looking for people, but may run into a patient.

Your right, years ago I told my PCP where I was getting all my info on fibro after she asked how I know so much about it, she said I know more about it than she did and she wanted to read what other patients had to say because at the time my Dr only had me and 2 other fibro patients and she felt like she wasn't able to help them as well as she could be.

I suspect more doctors (or their staff) read the boards than we realize, which is why I remain anonymous and in a general location in my profile with no email addy. Only one person knows my real name.

Sorry your neuro felt it necessary to be critical of you. I think he was out of line.

My MS neuro told me to find a good forum (that was almost 4 years ago) and it is my safe place. If my PCP were to read some of my rants he would gladly find me a decent doctor and forget I existed! :D However, he hasn't a clue about how to use a computer.

Don't feel bad - you did nothing wrong. Your neuro probably didn't either since it's a public forum, but he could have been a wee bit nicer and way more proactive.

I agree, don't feel bad about this.
But being honest on here about how you feel about a Dr could be a good thing also, most Dr.'s do not have a good bedside manner and they NEED to know that. They need to know how patients really feel about them as a Dr.

Hi again, Keri.

Phew, I was in a bad mood yesterday, wasn’t I? :o

I still think he was wrong to bring this up to you Keri, when you are already feeling so vulnerable in your life, but I will try to be not as black and white in my thinking today.

When I was at another forum, a Neuro published an article about what he read from patients on that forum, and praised how much accurate information was actually being provided there. Of course not everything that we say is accurate, but with the right checks and balances (other’s questioning our interpretations), eventually the correct information makes it out there. I thought that was really encouraging to hear.

This was his article, “What I've Learned from E-Patients”:

http://www.pubmedcentral.nih.gov/art...?artid=1182328

I knew that neuros and doctors visited (and POSTED) on these forums, as well pharmacy company investors (not everything that glitters is gold...), and even our family members sometimes. I do think we have to be careful not to identify specific people/practices, as anything we state is possibly tainted by our perceptions at given time. However, we can accomplish that by not specifically identifying ourselves (someone may know the “sister” we are complaining about), or our doctors, etc.

If your neuro’s only point was to warn you that others are reading, that really wasn’t such bad advice. I don’t think he should have made you feel guilty though, especially if you did not identify him.

Come to think of it, I never liked your neuro from the get-go anyway because he scared the wits out of you right out of the gate. But that’s another story . . . :D

Anyway, it is a public forum, but the primary purpose of it is for us to exchange information and support each other through the trials and tribulations of this disease. Perhaps sometimes we aren’t rational or fair in our assessments about events . . . but that’s life, especially with MS.

Keri, it’s up to you, but since you know what you wrote (and are left feeling like you have done something “wrong”), you might want to go back and review your prior postings to see if you said anything that specifically identifies him or his practice. If you did, and you WANT to erase it, the moderators can help you with that. If you didn’t, then perhaps just consider this as a lesson learned about who may be snooping around here on any given day . . .

I hope Mr Neuro learns from this too though. :mad:

Cherie