Originally Posted by lady_express_44

Very sorry to hear, Keri.

Your neuro, if he is reading, has unfortunately caught me in a very bad mood today, so I probably need to apologize up front, but . . . .

I have no idea who your neuro is, and I doubt anyone else paid any attention what-so-ever to any hints you (may) have given about the identity of him or his practice. I think I recall you talking about mix-ups between the doctors office and TOUCH facility, but I think most of us are astute enough to realize that this is going to occur at most of our doctor's offices, occasionally. He ought to give us some credit, and definitely cut you some slack . . . obviously your main point was to unload your feelings of anger somewhere SAFE. If you can't do it here, where the he11 can you?

THESE FORUMS ARE FOR US to vent and have people in our lives that understand our pain, frustration, despair, and sometimes feelings of hopelessness. We are already so alone in this disease, even if we are surrounded by people in our lives that love us, and we need a place to go where we can say what we need to in order to carry on with life, as it is.

I was thinking about this yesterday actually, after I went to see my doctor. He is the best doctor I could hope for, with lots of MS patients (are you listening, Dr B?), but he really has no idea how awful it can be to live like this. He goes to work every day and puts up with all the complaining (I wouldn’t want his job either), but he does not have to experience what it we go through. I knew, when I walked out of his office yesterday in tears (no fault of his), that no one really gets it. Even some of the people here have no idea how gross and/or scary this CAN be for some of us.

So, Mr Neuro, if you are watching . . . you should never have said anything to Keri about reading what’s on here. We don’t care who you are, and this is not about your ego or reputation. This is OUR place to be, and your only place here is to listen and learn to have some empathy for us. Now go away, unless you are going to use this information to help us.

Cherie

Originally Posted by Nancy T

What I don't understand is, since you always hear that one of the doctors' biggest problems is being excruciatingly pressed for time (think of how many of them dash for the door before the patient is all done), how in the world do they have TIME to read these forums?

That's why I've never thought that many doctors would do it, at least not enough to run across an identifiable patient.

I suspect the case here was a real fluke.

Nancy T.

Originally Posted by Riverwild

I think FG may be right about how this came about, Keri. I am willing to bet that all the noise made when you were having so much trouble with MSAS and the infusion center and all the other garbage they put you through may have spilled all the way down the line from top to bottom.

When something goes wrong, as happened to you during the whole process, the higher-ups take it very seriously. I'll bet questions were asked all the way down the line and people were put on the spot and it made them unhappy.

Originally Posted by tkrik

Additionally, had that time been spent helping you as a patient in the beginning this would never have happened to you.