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04-05-2008, 07:38 AM | #11 | |||
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Grand Magnate
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Thank you for sharing that, Red. You did a wonderful job describing what happened. Keep going, you are very talented.
I'm so sorry it hit that suddenly out of the blue for you. For me, it was an MRI report I received saying that the leisons were possible MS that shocked me. I remember reading it and letting it drop to the floor. I got it before my doctor could call me to discuss what other tests were needed to rule out the mimics.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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04-05-2008, 09:23 AM | #12 | |||
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Grand Magnate
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Great job, Keri! I think is also very therapeutic to put things on paper (and out of your head). I've always wanted to write a book some time too.
I was hit out of the blue too, with almost complete paralysis. The worst part though, I must admit, was the botched LP that landed me in the brain trauma unit for a week, while everything else was going on too. I think my docs did me a favor by saying only that it might be MS at the time because after that first major attack, I did fairly well in denial for the next 12 yrs. There weren't any meds (except steroids) available then anyway, so why know . . . you know? Can't wait for the next chapter! Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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04-05-2008, 11:17 PM | #13 | |||
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Senior Member
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We have been dx about the same amount of time, I think. Me in Dec. I too got the phone call. I should have known something was up, when it was the actually neuro calling and not a nurse. I feel for you... I don't have the great advice you probably need. There are so many smart people her at NT who will though. Hang in there. You are in my prayers!
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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04-06-2008, 07:41 PM | #14 | |||
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Member
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Thank you everyone for your support.
Yes, writing it out certainly had some therapeutic benefits. Of course, I still have holes in my brain....so it wasn't that good. River - I'm glad you shared your story as well. I think that sharing our stories makes us feel less alone. And yes, I appreciated your humor at the end. Shockingly, I didn't go to the place of brain tumor when I started to have symptoms. Maybe if I had, I would've been relieved with the news the doc gave me. Somehow going from thinking pinched nerve to chronic debilitating disease was not a good jump for me. Yes, we are all connected here thru MS - but sharing our stories or MS adventures is even more of a connection. Does that make any sense? Cherie - that sounds awful - see, I didn't know that was part of your experience (the botched LP). Catch - I don't know what kind of MS I have...actually gonna make a thread now about how do we know when a flare up has ended. Eduzit - I'm in the San Fernando Valley. To everyone I didn't specifically mention - thank you for your support ~Keri |
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