NeuroTalk Support Groups - Small whine . . .Just have to ask this

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I have to say this is an awesome thread, alot of old material and new things that I myself did not know. As far as the HUG goes, I am way out of the norm right now. My symptoms started in September and are very much here now. However my HUG started in the lower abdomen then went to my neck and upper torso, and stayed.

My numbness just subsides a little but is always there. Just had the IV steroids for 3 days and it helped just a little. At least I have a neuro that realizes everyone is different and although where my hug is, is rare, it is possible. Thought for sure he would say its not MS related because he has never seen the hug that high and for so long.

Thanks for the thread TKRIT, and just pleasant HUGS!

Two more things that occurred to me about spinal lesion attacks:

7. PwSpinal lesions should avoid spinal manipulations or severe spinal adjustments (rapid twisting or pushing of the spinal column) because they may irritate the spinal cord, increasing neurological problems.

I have disrupted my spinal lesions by simply trying to do the "booty shake" which I combined with upper body movements (my kids didn't think I could do it. I showed them . . . :rolleyes: :D)

8. Attacks include new symptoms (20% of the time) or old one's (80% of the time). Symptoms can occur because of the creation of a new lesion, or an increase in or reinflammation of an old one.

Cherie

Quote:

Originally Posted by KarenMarie (Post 255192)

I wonder if the feeling I get has anything to do with the hug - it feels like all my insides are swelling up and putting unbearable pressure on the inside of my ribs - first noticed it when I was on ACTH - it felt like I was ready to pop and that my brain was swelling too - sort of like too much MSG - then I get a horrendous pain right at the base of my esophagus and feel like I need to burp but can't - have gone so far as to make myself throw up to relieve the pressure - it doesn't but none of my food is digested either - can't move in any direction that relieves it - and it takes a day or two to finally go away but I'm sore afterwards like someone had kicked me in the chest - never connected any of it to MS

I've had problems with acid reflux in the past and sometimes I feel great pressure like you described, I feel I need to burp or throw up to relieve it. Sometimes it works for me to stretch my arms as far up in the air as possible. (sometimes...not always)

A few years ago I had sudden pain in my chest, felt like my head was gonna explode, and just plain felt weird. My mom took one look at me and freaked! She said I was pale as a ghost and thought I was having a heart attack so she took me to the ER. When I got there everything pointed to a heart attack and they gave me nitro. After several hours in the ER they transferred me to a different hospital to the heart unit.

After the tried to kill me :p on the treadmill and countless tests the dr. finally figured it out. My heart is fine.......I was having spasms of the esophagus creating heart attack like symptoms.

This was before being dxd with MS btw.......

I hope you get to feeling better and can figure out what's going on....I know it's awful to get like that.

:hug:

Quote:

Originally Posted by suzyqz_2007 (Post 255422)

I've had problems with acid reflux in the past and sometimes I feel great pressure like you described . . .

Me too, and have had various dx; acid reflux/GERD and infection in "the wall of my heart".

Karen, I would try nexium the next time that happens, just to rule that out (if nothing else). GERD is actually quite common with MS.

Cherie

Quote:

Originally Posted by lady_express_44 (Post 255424)

It's weird because both my brother and I have problems with it...my dad did also, he would have to go and have his esophagus stretched and repaired. Wonder if it's heriditery (sp.)?

jmiller - I have had the banding in my left leg as well as around the waist. I wouldn't say you are out of the norm as there is nothing normal about MS. It is so individualized. Glad you like the thread.

Flare Bro - Doing pretty good. For the 1st time in 2 weeks now I got a good nap in. That's a good sign as the pain is easing up.

Lady - Thank you for all of your input on what you have experienced and learned.

Suzy - DD17 has GERD and had similar symptoms. Poor girl. Tell me, what 17 year old wants to go on a bland diet without French fries and other greasy foods AND chocolate. She was not happy with that. LOL. She was in a lot of pain though and like you went all pale on me.

I also have gerd. Several years ago (pre ms) I was dianosed with 3 ulcers. Took prilosec for several years. Since having steriod treatment last spring, I am on nexium.

Barb, 3 ulcers! You poor thing. I am glad they are healed and things are under better control. DD17 found that Prevacid worked the best for her and her GERD.

This thread as turned another leaf....I have had acid reflux problems in the past too....hmmmmmm.

yes the thread has turned again and I was reading some of your latest post KM my wife has described her acid flux a lot like you explained your pain, I dont get acid reflux, so can not totally understand how it feels,

I know she says its also a burn sensation some times too I just wonder if any of this is caused by meds? I know I was curious about if it was the steroids and or my other meds combined and or again as I was learning the MS hug making me feel nausea, so needless to same I am still confused :yikes: big surprise huh