NeuroTalk Support Groups - Limbo check in 4/9

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- - Limbo check in 4/9 (https://www.neurotalk.org/multiple-sclerosis/43184-limbo-check-4-9-a.html)

Hi everyone, I don't really have any news to report. I see the new PCP on Monday.

I'm feeling awful today, each day the headaches and nausea gets worst. :confused2: What really gets me is the headaches doesn't stay the same for very long, I mean like ever few minutes it might be different. It goes from really bad to very mild and sometimes in between with-in minutes but NEVER goes away.

Jan and GJ,
LMBO! I sure beat around the bush didn't I? Sorry, but I guess after decades of MS just lurking, it'll take awhile to be able to say it.

I went back and edited my post, but yes I do have MS, and this is the second time I have been diagnosed with it. The first was about 27.5 years ago...pre MRI.

Jan, it is a combo of Dr.s, and a lot of freak happenings test wise, you are more likely to see a month of blue Sundays than to get these tests to do right like this again. ;)

We are relieved.
I am worried about the Interferons (Rebif) particularily right now after the hospital trip for my liver, but I understand and am willing to risk it, besides, it is only 3 shots a week, Copaxone is daily, I believe, and I hate needles. :eek:

Yes, there is hope for others, although I hope your answers aren't hidden so bizarrely or for so long.

Sometimes, as in my case, it is knowing when (and who) to push, it is timing, and it is luck...

My neuro called it an accident, I call it a year of freak test flukes, whatever, the last one, the MRI lesions just fell into place.

Thank you all, and if it isn't too hard on y'all I'd like to pop in a bit, I'm more comfortable here so far. I think the "outer world" scares me.

keep fighting, and believing, in yourself most of all. eeeew, that sounds pompous, but i hope you know I mean that in a good way.

:hug: to all of you

Tante,
I am really glad you have an answer for the sxs that have been bothering you for so long.
I hope that Rebif works well for you and slows down the MS.

You had quite a scare with pancreatitis!! I hope that you're back to normal after that...:hug:

Good luck, and do keep in touch with us islanders, hear? Bring some margaritas when you visit!

Tante!
I suspected it was hard to say the words....I get it. It made me stop and wonder....like it's a dream huh? LMBO at you!!! You stay right here and comfortable and take the pace that is right for you. Its great knowing you :)

Best to ya,
:hug:

Quote:

Originally Posted by momXseven (Post 255014)

Well Julie, seems things come in three's around here. I had a good visit with the doc, tante got her dx....so your new doctor has to be the one right?!!!! I do hope so. I know good doc's are out there. Hey...I know...why don't you join a club like I plan to do? Maybe it will work off all the pain AND the kids could run around and swim and stuff (here they do that anyway)....just a thought :) Do something for yourself? Sending good vibes your way...but I don't have the dude that does it...so just imagine it okay? :D

:hug:

Quote:

Originally Posted by greenjeans (Post 255167)

Thanks, I heard about a fibro study going on here so I filled out my info and someone is going to call me and let me know more about it. The odd thing was they asked questions about migraines so maybe it has something to do with meds for fibro migraines.

:eek: That's great Julie!!! I think this study would be awesome for you! You'll find out for sure and can ask tons of questions....or rather...answer them...or BOTH!! Wow, you should get tons from this experiance!! I'm soooo happy for you!! Fresh beginnings....Happy Dance! :Dancing-Chilli::Head-Spin:

Quote:

Originally Posted by greenjeans (Post 255181)

Thanks, oh and this study is being done at a fibro clinic here, my insurance doesn't cover them so I haven't been yet so it will be great to get to go for free.:Dancing-Chilli:

I just can't believe your luck! Heck, we never get studies here...we are lucky to have a doctor to go to :rolleyes: LOL!! Man oh man....it's like hitting the jackpot, or finding the end of the rainbow....or something like that! :Trapeze 2:

Quote:

Originally Posted by greenjeans (Post 255186)

:I-Agree:Oh we have all kinds of studies for menopausal, ED, heart problems, asthma, etc, everything I don't need meds for. :rolleyes:

The timing on this is SO great!