[jmiller]

Well thought this numbness that Ive had since September would just pass, but it hasnt. Im been totally numb from fingers to scalp for 7 months with really no changes. So do you think this is permanent and Ill just have to live with it? Or do you think it will pass at some time? This is not in just patches, its completely in whole upper body, like if it was slept on feeling.

[Snoopy]

jmiller, it's impossible to know right now if the symptom is permanent or not. Seven months really isn't that long for a symptom, although it can feel like forever when your dealing with it.

Usually if the symptom is still there without change for 2 or 3 years then you can call it permanent.

Sorry.......

[jmiller]

Well thats a big bummer, I could deal with a little numbness but this is just out of hand. Thought I was just in a bad flare but didnt think they lasted this long. Besides I never really had 1 and thought if you were ppms you dont get these. Everything since my DX in 1990 has been slow and now someone has stepped on the gas. Hope theres a darn stop sign ahead.

[AfterMyNap]

Hey, Jeff, have you done any steroids for it?

[Kitty]

My right hand/arm has been numb since October. I'm going on six months now. I've about gotten used to it but by 5 PM my hand is screaming and I have to take something for the pain. I'm hoping everyday that I'll wake up and it will be magically "un-numb" but so far no such luck.

I hope yours corrects itself soon. Take care.

[jmiller]

Tried IVSM for 3 days, seemed to help a tad and a couple things better. Yeh I hope to wake and be gone too.

[Erin524]

Originally Posted by jmiller

Well thought this numbness that Ive had since September would just pass, but it hasnt. Im been totally numb from fingers to scalp for 7 months with really no changes. So do you think this is permanent and Ill just have to live with it? Or do you think it will pass at some time? This is not in just patches, its completely in whole upper body, like if it was slept on feeling.

I hope something could be done...have you talked to your neuro abou it yet?


I called my neuro today (and he wasnt there...argh!) because my right foot has been a bit numb the past few days, and last night and this morning it was really really annoying. It also felt like the numbness was going up into my knee.

Right after I called him and left a message, it started to feel a bit better. It's still UNpleasantly numb, but not as horrible as it was last night. I'm still going to see what Dr. Neuro says when he calls me back tomorrow. I dont know if I should call Dr. Regular Doctor and see if he has any suggestions for what to do. (like a UA to see if I have a UTI)

It's just annoying to have an appendage that feels so bizarre and you either just want to rip it off, or jab it with an IV of solumedrol and hope it wakes up and stays awake.

[jmiller]

Yes Im in constant contact with my Neuro, but not much can be done. Just have to be a lab rat and see what works. So far nothing.

[KarenMarie]

I'm numb off and on - it seems to eventually disappear of it's own accord - but some of it stays - my feet are numb but not so numb I can't tell that they're on the floor - or the rest of me for that matter (on the floor that is) - I always wondered how you can itch in a spot that's totally numb to the touch -

[jmiller]

Geeze dont mention itching, thats worse than the numbness. I scratch and scratch and it still is there, and beause of the numbness I cant tell how hard I am scratching so then you bleed. The steroids and neurontin have dramatically reduced that though.