NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Hearing Loss? (https://www.neurotalk.org/multiple-sclerosis/43300-hearing-loss.html)

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Hi Tante, thanks for the further info on your situation

Nancy T, my thanks go to BIRD for this whole thread , and to you for bringing up some interesting ideas.

I am going to look for an ENT, once I have had a little Dr. free time, ;) and make doubly certain that an implant won't work for me, and that there is nothing else, new, that might.

I also want to investigate any effects my trigeminal neuropathy might be having...and what might help there. So, as I said, my thanks to you. :)

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I feel very lucky that I only had the one-time loss and nothing since (in 9 years). I recently found out that my insurance WILL pay for a Baha (bone-anchored hearing prosthetic for single-sided deafness), so I'm really excited about that! (My speech discrimination in my bad ear is so bad that a conventional hearing aid won't help.)

Hey, that is wonderful!! Will you be able to get it soon?
I can really appreciate what you are saying...so many people think if they just yell louder one will "hear" it, but speech discrimination, which I think is probably what I've referred to as word processing, is a different issue.

Would you mind keeping us updated on your BAHA? I'm going to look it up now, see what you're getting yourself into. ;)

Hi Tante! I think it's a great idea for you to check back in with an ENT and audiologist and see if a cochlear implant or something else might help you.

I agree totally--thanks to Bird for starting this interesting thread!

Tante--please tell me about your "trigeminal neuropathy"? (Or maybe you did and I missed it...) I'm curious because I'm sure my trigeminal nerves are slightly whacked (0.000009 percent whacked). I've had funny, bilateral shocky and paresthesia sensations--and originally some excruciating painful jolts--on both sides of my face that follow the lines of the trigeminal nerve I've seen in diagrams (I saw, and immediately recognized, the diagrams AFTER having had the symptoms for weeks or months). But mainly now they're very minor and don't bother me.

Wonder if this is some sort of multiple cranial nerve problem? In fact the neurologist referred (in his notes--not to me, oh heavens, NOT TO ME) to my bad ABR as indicating "cranial neuropathy."

BAHA won't be too soon--my consult isn't until May 22. I'm sure the surgery will be even farther out. But I've been waiting 9 years, so I am happy to wait a bit longer!! :):):)

Nancy T.