Sorry Snoopy for your pain. I wish there was something that would help you that YOU would be Ok with. I respect your decision to not go narcotic. All I wish is that you find some relief and fast. Hugs.

Have you tried ultram? It is non-narcotic (although have started some that are highly addictive personalities on their path to addiction - I am an addiction nurse and only saw it one time). I take one half in the am to help with my RLS and the thigh pain that I have had since my last relapse.

It works REALLY WELL!!!! My friend with ms (who is in a wc) was on vicodin/lortab, and switched to ultram, likes it better, and says it works better.

It also works in an anti anxiety/depressant way which is an added benefit to us.

My neuro started me on neurontin for my rls, 300 x 3 a day. I am only taking one at night, and it is working well so far, so I plan on sticking with one. I also take 0.5 klonipin at night for my rls.

Ask about the ultram. It is really good stuff, not controlled, and non-narcotic. I have a high tolerance to pain meds. Darvocet doesn't touch me, vicoden barely does it, percocets do me in.

Also, it doesn't make me sleepy. Matter of fact, I can't sleep when I take it. I can relax really well, but just can't get to sleep, so I generally don't take it after 4 pm.

Good luck

Thank you, Beth. I will keep your offer in mind about the PM for the name of the pain doctor. I'm just not quite ready for that - I hope you understand.

beautytransforming, no, I haven't tried Ultram actually there's probably a fair amount of meds I haven't tried. One of the reasons I'm going back to my old neuro in May. I just don't think the current neuro and I are a good match.

Addiction is my main reason for trying to stay away from the narcotics although I am aware Klonopin can be addictive :rolleyes:

I have a family history of addiction and I refuse to go down that road.

I would like to apologize to everyone who has read pervious threads of mine on this same topic. I'm sure some of you may be getting tired of hearing about it ;)

I am just very frustrated at this time and so, I guess you could say I am having a mini vent :p

Thanks, everyone for understanding :hug:

Snoopy, so sorry for ALL you are going through.

Did you say your pain is in the pelvic region? Bladder?
Cuz I have had a sudden severe pain in my bladder like a UTI starting and no infection!! It lasted 2-3 days at the most. Twice last year, I just wondered...

But, have you had this thoroughly checked out? how do they know its only sensory? I mean it could be but how did they come to that conclusion?

I would want to know the origin of the pain. I see two practitioners that can often get to the source of pain. ONe is my guru of a chiropractor, who can READ the body's reflexes to know where the nerve bundles may be off. He then can touch with a finger and release the nerve bundles and whalla.. the electrical source from the brain can now reach the injured area and HEAL it even if internal.

The other guru I see, is my nutritionist who has this amazing tool to evaluate sources in the brain and all body systems that may be the source of the problem. AND he has compounds, whole foods that nuture the injured, toxic or deficient area and again its often the source of pain, or inflammation.

Just some ideas.If you want to knowmore PM me ok?

Hope you get the right med combo that works for you. Yes the anti-seizure meds work too and are not narcotic.

Best to you, keep us posted !!

Warmly, Jan

Jan, I went to my PCP when this all started. I had a UTI back in Mid-August 2007 which was treated but I still felt like it was there. My PCP also ran quite a bit of bloodwork which all came back fine.

My PCP referred me to an Urologist who used an Endocope in through the urethra to the bladder and then inflated the bladder with water - everything was fine, nothing abnormal.

Next referral was to a GYN - everything was where it was supposed to be and testing came back normal.

I already had a follow up with my neuro so I decided to ask if there was anyway possible this was the MS. The answer was yes. He said he has other patients who have had the same complaint as mine and since I had other tests to rule other possibilities out then it comes down to the MS.

My neuro told me for the external pain he was not aware of anything topical to use that would help.

I'm like the kid who is told not to touch the stove because it's hot but the kid touches it anyway just to see if it's true:rolleyes:. I decided to try different things externally to see if I could stop or at least minimize the pain in that area - it actually made the pain worse.

Oops! Forgot to mention I also had a Pelvic ultrasound which came out normal.

I understand the addiction thing. I come from a family racked with addiction. Mine was food. I got up to 303#, which is why I had gastric bypass.

I take the klonipin. I have taken myself off of it a few times to ensure I am not addicted. You are taking a low dose, so I don't think you have much to worry about.

I also would not worry about the ultram. As I said, I take 1/2 and it lasts all day for me (but I only have mild pain). I think this may be a good option (coming from the nurse in me and the addiction specialist in me) for you. It isn't hard on your stomach like NSAIDS, no control issues like narcs, and good pain relief.

Good luck. I hope you find something to help :)

Connie

Oh good Grief! (think Charlie Brown :p) I used Ultram a couple of years ago to help with the pain from a rotator cuff tear but didn't connect it until I googled Ultram and also found the other name for it - Tramadol :Doh:

I have been using Klonopin off and on since 2004 for panic attacks and my Psychiatrist complained I underused it :rolleyes: I know I'm not addicted to Klonopin because if there happens to be a day or two or three I don't take a Klonopin without a problem. I would rather save the Klonopin for the times I may need it for panic attacks.

Thanks, Connie

I'm so sorry Snoopy that the pain continues. I'm sick of telling Doc's about it....they don't get it. I know its there, but they can't do anything more than give me drugs and more drugs. I pick and choose which one I want/need at each time of the day. I give up :(

Ah LeeAnn...I am sorry to hear that you are still having pain problems. :(:hug:

I know we've talked about this before and I completely understand the addiction issues...I use klonopin only at night, 1 mg, as it puts me to sleep! There's no way I could take it during the day! LOL! I am med sensitive...lol! Anyway...we all know that about me!

I am glad that you got a 'script from your PCP and you have an appt with the old neuro...here's hoping he has some insight.

I don't have any med advice other than the klonopin. I take that and norco when i need it, which is a stronger vicodin, for neuropathic pain.


:hug:

Snoopy
I completely understand, no pressure intended. I was just opening an avenue if you chose it fine, if not no sweat.

I get the addiction and the frustration, alot feel that way too. No apologies necessary, either.

Post everyday if it helps. I know I feel better when I get stuff out of my head. We are all here to help and receive help too. If anyone gets it, it's us.

So don't be a stranger here. We want to hear the good and the bad, no judgements. That's what makes this place so special.

:hug: