Hi Snoopy,
This is probably a lame suggestion but here it is...

I take 800 ibuprofen - for me it has to be the prescribed one - taking 4 advil is not the same for me and bothers my stomach. I have tried tons of muscle relaxers, lyrica, neurontin, anaprox, and others. But nothing works like that 800 ibuprofen.

I have leg pain and weakness.

I've been offered all kinds of pain meds and I just keep turning them down - I'm with you - I don't want anything addictive.

I have a friend who works for a compounding pharmacist - and he was telling me that they can make all different kinds of pain patches, sublingual pain meds, and oral meds which combine more than one medicine to make their action stronger at a lesser dosage.

Don't give up trying to find a solution. My pain really wears me out and changes me. It's tough.

There is no suggestion I would consider lame at this point

Thanks!

LDN

Cherie

Yes, I know and one of many things I will bring up to my neuro in May

Hey LeeAnn,

I don't know if this will help or not but your pain symptoms sound very familiar. A few years ago I had the same type of pain for what seemed like forever. Mine started after a few UTIs too. It's really hard to explain how bad it feels.

Anyway, the urologist I went to at the time said I had neurogenic bladder , which I think was his way of saying......I don't know! He did give me a prescription & I think the name of it was Urelle. All I remember for sure was I peed blue for a long time. It was the only thing that ever helped at all. You might want to ask you doctor about it.

I don't know if you've been tested for it or not, but has anybody considered it might be a kidney stone. That's what mine turned out to be. My Neuro, PCP & Urologist all thought it was because of MS & ooops, turned out to be something else. Being a weird person, with a weird disease nobody even considered I might be having weird kidney stone symptoms.

Just a thought.....don't know if it applies to you at all, but ya never know. And, dang it, I sure hope you get some relief soon. Constant pain is just drains you.

I would've mentioned that Flector myself but Sally and Holly beat me to it. See? I'm feeling better and out here busy now.



And Snoopy, you've known me long enough to know how many meds I've tried and not been able to say that, huh? lol


It is true that pain wears you out. I have a lot more energy now. I still have fatigue, but it's nothing like it was when the pain was so bad.

I hope your doc does something to help you, Snoopy.

Hi Snoopy!

What about a pain clinic? I know an mser who has other problems and that is where she ended up.

Have you tried neurontin? I don't know what type of pain, but, maybe it's worth a try.

Hope3 you have a better day,

Carrie

Hi, Michelle.

I do know from the blood work my kidney function is good. I don't have any pain in the area of the kidneys, my PCP has checked a few times.

I was supposed to go back for a follow up pelvic ultrasound and the gyn wanted them to check and see if I have both my kidneys - I never followed through, at that point I had had enough of doctors and testing - just stick a fork in me I was done. Probably not the best decision I could have made

Peeing blue - now that could be entertaining

Brain, I am sooo glad you found something for your pain. I will certainly ask my neuro when I see him - Thanks

Carrie, I'm just not ready to head for a pain clinic.....yet
No, I have not tried Neurontin. My current neuro felt Lyrica was better. One of many reasons I'm headed back to see my original neuro.

LeeAnn,

I'm sorry that pain is such an issue for you and that your doctor is less than supportive.

I have pain issues too and I take several meds. Cymbalta 60mg in the AM; Zoloft and Trazodone at night (I suppose they help somewhat?). I also take Baclofen but I'm weaning myself off very slowly. I'm down to 10mg 2x daily.

I don't have any other suggestions but I hope you get some relief soon.

I wouldn't rule a pain clinic out, snoopy.

If you find a good one, there is so much they can do for you.

First, they are designed to figure out where the pain is coming from. They'll look at what tests you've already had done and probably be able to come to a conclusion from there - if not, it's not like they're guessing what to do next. Since this is their only thing, they can usually get right to the source instead of a year of horsing around. They will figure it out quick.

and you don't wait months to get in - I can get in for an appt in a day or two.

Then, there is more than just narcotics. Any med that is out there, they will know about it and which will suit you best. And more than that, every kind of therapy - from acupuncture to aqua therapy, massage, biofeedback. You name it.

First I had ESIs, then facet joint shots. That helped a lot. It got rid of the weakness and arm pain. The patches help with the neck and shoulders. They also offered PT, but I said I'd rather do that closer to home - this place is an hour drive each way.