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-   -   Spasticity (https://www.neurotalk.org/multiple-sclerosis/43408-spasticity.html)

SurvivingMSwithHOPE 04-12-2008 08:30 PM

Quote:

Originally Posted by hollym (Post 257231)
I guess we are all different. I cannot take Flexeril at all, but Baclofen is fine. The first couple weeks were hard to get used to it, but now I'm at 80 mg per day and it doesn't make me dopey at all. I just take it in increments throughout the day with the biggest dose at bed. Even still, I take at least 30 mg during the day and function fine.

It no longer really fully relieves the spasticity, but I function and can deal with it. At least I'm not getting "frozen" in a position anymore!:eek:


Oh I can't take Flexeril at all either. Knocks me on my butt and I feel like I have a hangover the next day! I've just started Zanaflex, so the jury is still out. I know my balance is off more with it. I have become aquainted with my walls more in the past few days!:p

Kitty 04-12-2008 08:37 PM

I have some Flexiril from when I was in a car accident (2 years ago). If I take one at bedtime it doesn't really knock me out - but the next day I'm dragging so bad I can hardly function.

My leg is really giving me fits tonight - and the Neurontin isn't really taking care of it. I want to be able to function during the day and not be all doped up. I guess I'm going to have to make a choice...learn to deal with the pain or take the meds and sleep it away.

Riverwild 04-13-2008 12:54 AM

Quote:

Originally Posted by Av8rgirl (Post 257207)
Yeah go ahead and take it! Be a zombie! That's why I don't take Zanaflex or Baclofen! Sometimes these doc's don't think we need to function during the day!

:eek:

That's why I take the tizanidine ( Zanaflex generic) when I go to bed! It knocks me right out!

The Baclofen did it to me too, but I got used to it after a few weeks. I only used to take one a day when I first started. I titrated up to three a day. Now it's one upon waking, one at 8pm and one around 2am at work ( I'm a night worker so I'm all backwards!!) :D ( no comments from the peanut gallery now!) :cool:

weegot5kiz 04-13-2008 08:15 AM

see last relapse wasnt sure about it being this and it turned out it was my lower back messing with leg nerve, this time however my right calf is useless stepping on it ouch letting it down ouch elevate is my friend, I dont want to be eleveated, but nothing I have or am taking is working 4 alieves and a darvocdet work the best so far,

Mine is constant, and its the foot cramp/leg cramp, that hits just before the actual horrid moment, of the cramp, that precursor carmp, that horrid wake your @@@ out of bed type of foor or leg cramp, its that pre pain, right before the cramp, thats how mine feels 24/7 for last week or ten days now

been manipulating it ice heat whirl pool yes pain pills and alieves elevate it

it just bites big time, anyone have any ideas on over counter meds or theraphies I might be missing let me know in private or on here please, I have even played around with accu pressure points trying these to see if I can ease the discomfort(lol hitting me upsdie the head with 2 by 4:thud: is discomfort,) this sucks

happy sunday

peace all

Kitty 04-13-2008 08:23 AM

Quote:

Originally Posted by weegot5kiz (Post 257472)
I have even played around with accu pressure points trying these to see if I can ease the discomfort(lol hitting me upsdie the head with 2 by 4:thud: is discomfort,) this sucks

happy sunday

peace all


The 2X4 to the head idea does sound painful....but it would take your mind off your leg!!:D

AfterMyNap 04-13-2008 08:49 AM

Mine are wicked painful too. The lower legs/calves/feet give me fits just as I'm falling asleep. Zanaflex on a sliding scale works best for me. Sometimes at night I might get up every half hour and take another one until I hit 8mg before I fall asleep.

Back spazzes are totally my undoing. If I laugh too hard or yawn too much, I go into a full body spaz via my back, it kills! Remember that elementary school thing, "stiff as a board, light as a feather"? It's a lie, stiff as a board is a solo act!

I will go completely straight and stiff for a few minutes whether standing, sitting, or lying down and have broken many objects from it. It happens fast and I am powerless to control it.

The other fun thing is "foot flutters", I get them when I've been sitting too long, my whole leg will move faster than any human should move for about 3 minutes. There is nothing I can do but wait it out. It's a trip to watch and it actually does kind of crackup me.:rolleyes::o

PolarExpress 04-13-2008 10:42 AM

(((((((Herekitty))))))...I have muscle spasms in my upper back that have gotten increasingly worse over the last few months..I can't handle the pain meds, they make me so loopy I'm not aware of my surroundings, and that's no way to live..I've been in physical therapy, and it works great for the 1/2 hr I'm there..But by the time I'm home again, things are back to where they were..I've been keeping up the exercises they taught me and have a heating, vibrating pad for the car (woohoo!)..But I know these are just temporary fixes..I feel for you, and hope we all find a way to get rid of this pain!:hug:

Jan4you 04-13-2008 11:08 AM

Polar and others, I have had terrible pain in my rib cage area starting with my MID back.

Now it spasms so badly that at times I cannot breathe. I stretch, use meds etc but its worse when laying down.

I have wondered if this is part of spasticity which I do have in my legs all the time. X-rays and MRI does not reveal a problem with my mid back.

Could this be spasticity?

Jan

Kitty 04-13-2008 11:16 AM

Quote:

Originally Posted by Jan4you (Post 257597)
Polar and others, I have had terrible pain in my rib cage area starting with my MID back.

Now it spasms so badly that at times I cannot breathe. I stretch, use meds etc but its worse when laying down.

I have wondered if this is part of spasticity which I do have in my legs all the time. X-rays and MRI does not reveal a problem with my mid back.

Could this be spasticity?

Jan

I get that in my ribcage area, too, sometimes Jan. Sort of the area between my back and my front - but not exactly my side :confused: if that makes any sense. I can't take a deep breath when it's acting up and that can be very scary sometimes. I've never had problems with my back so I'm guessing it has to be spasticity??

PolarExpress 04-13-2008 12:29 PM

Jan..
I'm no doctor, but if you've had it checked out and other back problems have been ruled out, I'd say it's a good chance it's spasticity..Have you seen a neuro about it?


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