[beautytransforming]

I had gastric bypass. We are not supposed to do steroids. Not only that, I HATE steroids and their side effects. I have decided that with any possible future flare ups, I will not use steroids. The book I am reading (New hope and practical advice for ppl and families with MS) says that steroids do not help everytime, that after the first year or so, they lost their efficacy, and that they do not help with all lesion locations (mainly the ones with loss of balance, coordination and speech which is mainly where I have been afflicted).

I plan on using rest and alternative therapy (massage, may trying accupuncture and such) when/if I have a flare.

Anyone else NOT use steroids at all?

Thanks for all the advice, answers and warm welcome!!

[Snoopy]

beautytransforming, I have had 6 exacerbations (relapse, flare-up, attack). The first 2 exacerbations I used oral prednisone - that and ACTH were the only options at that time.

The last 4 exacerbation I have waited out and just treat symptoms if needed.

There are some who have relapsing/remitting MS and can go into remission without the use of steroids but, there are some who can't remit without steroids.

It would really take alot to make me use steroids ever again but never say never.

My original neuro believes doctors are over prescribing steroids.

[Friend2U]

Originally Posted by beautytransforming

I had gastric bypass. We are not supposed to do steroids. Not only that, I HATE steroids and their side effects. I have decided that with any possible future flare ups, I will not use steroids. The book I am reading (New hope and practical advice for ppl and families with MS) says that steroids do not help everytime, that after the first year or so, they lost their efficacy, and that they do not help with all lesion locations (mainly the ones with loss of balance, coordination and speech which is mainly where I have been afflicted).

I plan on using rest and alternative therapy (massage, may trying accupuncture and such) when/if I have a flare.

Anyone else NOT use steroids at all?

Thanks for all the advice, answers and warm welcome!!

...only as a last resort, which I haven't resorted too! I had hystoplasmosis in an eye many years ago and the steriod would cause a high risk of that being reactivated. So, basically I'm doing nothing so far.

Oh, and I had a lap band put in almost 2 years ago. How have you done on your weight loss?

[Kitty]

I have RRMS and have taken oral prednisone with lots of unappealing side effects. I choose not to take them anymore during a flare - I won't say I'll never take them again but it would be a last resort if I did. To me the side effects of the steroids are worse than the symptoms of the flare.

I suppose steroids affect everyone differently.

[beautytransforming]

Originally Posted by Friend2U

Oh, and I had a lap band put in almost 2 years ago. How have you done on your weight loss?

I am down 145 pounds, have 5 to my goal, 20 to the ultimate, OMG, never imagined goal =) I am planning plastics for next year. I would do this every year if I had to! Best thing I ever did for myself!! How are you doing? I know the lap band is generally slower and harder, and takes the most will-power. I never had any.

[tovaxin_lab_rat]

I have used IVSM to treat the 21+ exacerbations I've had since my dx in early 2001. I have RRMS. I do not use oral pred, it makes me very sick.

There are about as many opinions about using steroids to treat an exacerbation as there are neurologists...

There are also alternatives to treating exacerbations. One size does not fit all! Some people do not tolerate IV steroids, some do not tolerate other tx...

From the National MS Society, here's some basic information:

http://www.nationalmssociety.org/abo...ons/index.aspx

Here's some alternative therapy:
http://www.nationalmssociety.org/abo...ine/index.aspx

Remember, knowledge is power.

[SurvivingMSwithHOPE]

I can't take steroids. My skin, especially my face turns beat red and I feel like I have a horrible sunburn and then in some places I peel. On steroids I am known as the "screaming red meanie". So, definately a no no for me.

I just do what I can do get over the exacerbations. The last time my ears were really affected, like a roaring ocean, was terrible. I let my PCP give me a shot of Predisone in the rear. Wasn't enough to really effect me bad and it helped GREATLY!

[SurvivingMSwithHOPE]

Originally Posted by Av8rgirl

21+ exacerbations

21+ !!!!! I will never whine again!!

[tovaxin_lab_rat]

Originally Posted by SurvivingMSwithHOPE

21+ !!!!! I will never whine again!!

I totally expect everyone to whine! What will I do with all this Cheese!!!!

[rdmc]

I don't take steroids for an exacerbation. Took them once, and my tongue swelled up and blocked my airway...so no more for me. I just wait out exacerbations. Even if I could take them, I'd probably forego them at this point in my life as I'm starting to deal with some osteopenia according to my bone scans, and steroids can lead to osteoporosis.