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-   -   Resigned to living in pain for the rest of my life.... (https://www.neurotalk.org/multiple-sclerosis/43920-resigned-living-pain-rest-life.html)

sugarboo 04-20-2008 11:57 AM

Quote:

Originally Posted by soxmom (Post 262673)
I hear you and can relate. I take a bit more meds than I would like to
if I want to get out of bed. I have severe pain in my left hip and leg
and both of my heels.:( I used to be a figure skater and walked 4 miles
every day. I just want to do that again. Im sick of the weight gain
and sick of being a lump in pain.:mad:

Ive tried so many different things. Casts, cortisone shots, nerve block,
boots, night splints, gel pads, heel cups, custom orthodics, pt, ice
and heat. The only thing that gives me some relief is my combo of
meds. I take zanaflex, percacet, gabapentin and ultram. We are
going to try lyrica so Im dosing down with the gabapentin. I HATE
taking all these meds but I HAVE to have some quality of life.:(:confused:

I sit here with a hot pack on my hip and dream about getting up
and moving.........

Sox


Doc wanted to start me on the Lyrica too, but so many gain so much weight, I turned that one down. After my Nerve Study showed normal, I felt it was actually a good choice for me not to take it. I've already gained 20 pounds on the meds I do take :( I do the ice too.....I'm dreaming of cleaning out my flower beds today. I'm going to do it....regardless of the consequences. Just hope I can walk at work tomorrow :p

I posted at the Chronic Pain thread...maybe I'll see you there....

humming 04-20-2008 05:04 PM

pain
 
bj,
If you deside to go for the other doctor,please be careful about surrending all your pain support meds.as you probally know, you just can't stop them suddenly or your body will protest greatly. you'll need to wean off them ,tapering down the doses.
I went through a drug withdrawel all on my own, and it was terriable and so very hard to live through,but i did!! I did this cause the meds i was on were making me sick, but i couldn't get the pain center to listen to me.
i suffer from daily,constant pain in my head and face,with no answers yet, and into my second and a half years with this.I hate the meds i need, hate needing them,keeping count ect, i think i know how your feeling, and i just want you to know you'll be in my prayers tonight,
humming

momXseven 04-22-2008 08:38 AM

So sorry I just now saw this post, I had been out of town.

I understand how you feel, after my last visit with my Dr I felt the same way. I KNOW I'm going to be in pain the rest of my life and there isn't much I can do to make it much better.

3 years ago I was on some many meds I felt drunk 24/7, that's when I said NO MORE to all those meds and started getting off of them, I just knew there had to be a better way to deal with all this pain. I'm not sure if my over all pain is better now because of the supplements or if it's just because I was in a long fibro flair than and am just doing better now on my own. I still have awful 24/7 pain and headaches that I almost never get a break from but I just deal with it hour by hour and don't even think about how I "might" feel the next day. I do my best to keep my mind off of the pain.

I don't want to say your Dr is right about the exercising, I just can't do much, I walk, OK, I walk IN Target 4 times a week, LOL, I LOVE my walks, DH doesn't because it hurts our bank account, LOL. Anyway I was 180lbs 2 years ago and have now lost 60lbs and I felt my worst at 170-180lbs pain wise. I don't have all that weight to carry around so moving more is easer on me.

I wish I could take all of your pain away. :hug:

Kitty 04-22-2008 10:42 AM

Hey there MX7! I was wondering where you were....glad to see you're back.

GJ - I hope things are getting better for you. Constant pain can take its toll on the best of us. Hopefully your new doctor can make a difference for you and you can get off the pain meds and finally get the relief you deserve. :hug:

momXseven 04-22-2008 12:09 PM

Quote:

Originally Posted by herekitty1960 (Post 264158)
Hey there MX7! I was wondering where you were....glad to see you're back.

Thanks, just been really busy at home and than DH and I got away for the weekend. :D

MooseasaurusRex 04-22-2008 01:49 PM

Monday isn't over yet, but I would like some feedback on the Docs and phone calls you made. Basically, how you are proggressing.

*No smiley or picture available to show me in the drill instructor hat.
Yes.
I do have one.*:):D;)

Kitty 04-22-2008 02:31 PM

Quote:

Originally Posted by MooseasaurusRex (Post 264318)
*No smiley or picture available to show me in the drill instructor hat.
Yes.
I do have one.*:):D;)


How 'bout this one..............:cowboy2:

sugarboo 04-22-2008 08:59 PM

Quote:

Originally Posted by MooseasaurusRex (Post 264318)
Monday isn't over yet, but I would like some feedback on the Docs and phone calls you made. Basically, how you are proggressing.

*No smiley or picture available to show me in the drill instructor hat.
Yes.
I do have one.*:):D;)

Well the nurse called and left voice mail, I returned the call but she was already gone.

Now...buried in work, even cancelled my hair appointment, just too beat to move after I get home.

It's sunny and warm and just took an extra pill today :rolleyes:

Looks like the 11 hour days, 6 days a week starts after this week at work....so I'm going to have to put it off, and just not complain....

Yeah, thats a BIG GIRL ;)


Funny, when you have the time, you don't have the cash...when you have the cash and insurance, you don't have the time. Life always playing tricks on us.

I'll update y'all when I make something happen....I so appreciate the kind concern from all of you though....it actually is a good pain killer...does that make sense :)

Hugs,
J

Jodylee 04-23-2008 06:07 AM

Oh carp Jeannie! I'm so sorry I didn't post sooner. :( I wouldn't give up your access to pain control. I understand how you feel about the pain meds. If I didn't take them I wouldn't be able stand by the end of the day. I'm not willing to give up standing just yet :). I do hate the fact that I have to take them at all. :( I've tried pt and non-narcotic meds but notihing else works. Along with MS I have spinal stenosis and a couple of compressed discs on my neck. My famiily has a long history of back problems. Can't you just see the doc kind of as a second opinion and not give up your regular one? I really hope you feel better SOON! :) Higs headed you way.

msarkie 04-26-2008 12:54 AM

Just wondering - have you tried yoga? I have had problems with my back for over 20 years now. I've noticed that when I do certain yoga stretches it makes my back feel SO much better! Since your dr wants you to exercise this might be an option. There are certain yoga workouts designed especially for back pain relief. You should probably check with your dr to make sure this would be ok.


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