[hurtsobad73]

I will try to get through this as simple and as quickly as I can. I started having sx's of MS about 5 years ago. Trembling, myoclonic jerks, vision problems, sleep problems, bowel/bladder issues, total FATIGUE, choking when eating and or drinking sometimes, etc. The list goes on.

Saw a MS specialist at Duke University Med Hospital for almost a year. He did brain MRI's EMG's (not sure what those are and I never got the results of mine). All I know is that it hurt like H-E-double hockey sticks.

I have never gotten much better. I have conformed to my illness I would say. I can get about an hour or two of things done in one day, before I am totally exhausted that I can move my arms, legs or even neck. Then I also have my bad days, where all I can do is stay in bed and I do sleep. I know many people say fatigue with MS is different than being tired. I understand that, but my mind is so mentally fatigue that it can't concentrate on anything but sleep.

Up to date, I have been dx with Fibro/CFS, NES (psychogenic) severe IBS and other things. However since Wednesday past, I have had the hardest time. It began with my hips. They were truly wicked sore. It felt like some one took a ball bat to them and broke the bones. It didn't stop there. I also "felt" like I had a huge know between my two shoulder blades right on my spine. Sooooo painful.

Called both rheumy and PCP, both couldn't figure it out and gave me pain meds. Whoo-hoo. Just on the 29th of March I was in the ER for the same hip problems - they too gave me meds with codeine to help me sleep. I AM SO TIRED OF PLAYING THE MEDICINE GAME-HOW DO I GET TO THE DIAGNOSTIC CENTER?

So continuing with Thursday - Today. I have not been able to do much. I can't sit, I can't stand, I can barely lay, but not on my hips or back. I think what scares me the most is that since Wednesday (and yes this has occurred before) my legs and arms shake (tremble, don't know the difference)like my body is having an earthquake, no matter what position I am in. Yesterday taking a shower, my legs shook like a leaf on tree and I couldn't seem to stand on my own to feet (but it isn't b/c of love that I am all shook up...lol). My hands are doing the same thing when typing, pouring a glass of drink, folding laundry - basically whatever the task is I am shaking very hard.

Called rheumy he says "it doesn't sound like anything I would deal with. Definitely not part of Fibro, you might want to call your PCP". Sure I will go with that. I call my PCP, "Sorry ma'am he is out of the office until next Monday, is there someone else who can help you"? Not really, b/c he is the only one that has ever seen me and I don't need more meds...

So my last brain MRI was August 06, never had a spinal MRI, should I call my neuro and get in with him? Does anyone have similar issues, any idea's.
HELP to infinity and beyond...

M

P.S. I have been taking B-12 5000mcg since '04. It doesn't seem to be doing anything for me. I also take multivitamin, B-6 and complex B. I am at a lost of what to do next. BTW, I haven't worked since November of -03. I had a complete hysterectomy in June of that year, which I suspect brought the beast to life.