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Old 04-20-2008, 09:32 PM #1
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This is my understanding, and I will try and remember to ask my nuero tomorrow.

A T1 hyperintense in one that intensifies with contrast, meaning it is active or coming out of an active cycle. The T2 are newer, but not healed and the hypo ones are older and more healed up.

I'll do more research, and as I said, if I remember will ask my nero tomorrow!!

Don't give yourself something to worry about. Write your questions down, and ask.

Also, how many T1's does your mri say you have. Most RRMS have at least one!
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Old 04-20-2008, 10:39 PM #2
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Originally Posted by beautytransforming View Post
This is my understanding, and I will try and remember to ask my nuero tomorrow.

A T1 hyperintense in one that intensifies with contrast, meaning it is active or coming out of an active cycle. The T2 are newer, but not healed and the hypo ones are older and more healed up.

I'll do more research, and as I said, if I remember will ask my nero tomorrow!!

Don't give yourself something to worry about. Write your questions down, and ask.

Also, how many T1's does your mri say you have. Most RRMS have at least one!
Well according to this study it says about 78% of all people have at least one T1 hyperintense lesion. But 71% of those with SPMS had multiple T1 hyperintense lesions and only 46% of RRMS have multiple T1 hyperintense lesions.

The Mayo clinic said I had a "significant amount of T1 hyperintensities" on the notes for the second visit. What the hell does significant mean? But on the notes for the first visit the doctor wrote the two MRIs done at home show
"T2 hyperintense lesions with decreased T1 hypotensity and actually several black holes. There were more than nine lesions in periventricular, subcortical as well as around the corpus callosum that were in the right orientation location to suggest demyelinating disease. Several of these were enhancing in the initial MRI." Basically I'm confused.

I think this line in another abstract scared me: "Hyperintense MS plaques on T1-weighted MR images are common and associated with brain atrophy, disability, and advancing disease; a hyperintense lesion may be a clinically relevant biomarker."

Anyhow, Erin is probably right. I'm just torturing myself by doing all this reading. It just escalates the anxiety.
I don't see the neuro for another month.
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Old 04-20-2008, 10:46 PM #3
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I find words in MRI reports like "significant," "several," "multiple" and "many" to be highly vague and hardly illuminating.
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Old 04-20-2008, 11:25 PM #4
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Anyhow, Erin is probably right. I'm just torturing myself by doing all this reading. It just escalates the anxiety.
I don't see the neuro for another month.
So, instead of Googling MS stuff, look at all these cute pictures of Pug puppies instead.

Arent they cute? Guaranteed to take your mind off of serious stuff.
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Old 04-21-2008, 12:01 AM #5
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So, instead of Googling MS stuff, look at all these cute pictures of Pug puppies instead.

Arent they cute? Guaranteed to take your mind off of serious stuff.
Puppies are much more fun to look at than old medical records. Very cute pugs. I've always wanted a great dane. Check out the dane puppies and adults here.

http://images.google.com/images?sour...=1&sa=N&tab=wi

These are some big *** dogs!!! Look at the "Redneck Great Dane Puppy" -- pure white...so strange! Although he looks pretty big to be a puppy.
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Old 04-21-2008, 12:09 AM #6
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Puppies are much more fun to look at than old medical records. Very cute pugs. I've always wanted a great dane. Check out the dane puppies and adults here.

http://images.google.com/images?sour...=1&sa=N&tab=wi

These are some big *** dogs!!! Look at the "Redneck Great Dane Puppy" -- pure white...so strange! Although he looks pretty big to be a puppy.
I used to have a Bouvier des Flandres, named TinyMonsters. Those are big dogs too, not quite as large as a Great Dane tho, but still pretty huge.

I keep waffling back and forth on wanting another dog. I want one, but I think I have an allergy (my allergies all improved after Tiny died, and I had an allergic reaction when I tried to adopt a Yorkie 5 days after Tiny left us)

Then there's the whole fatigue part of MS that's also holding me back on a new dog.

My aunt's Pug just died last month, and she's considering getting a new one, and I'm kind of thinking of getting one from the same litter if we can find some.

I miss my dog, and I miss my aunt's dog. (both our dogs were best friends in the world, they even died on the same date, 2yrs apart)
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Old 04-21-2008, 12:29 AM #7
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I used to have a Bouvier des Flandres, named TinyMonsters. Those are big dogs too, not quite as large as a Great Dane tho, but still pretty huge.

I keep waffling back and forth on wanting another dog. I want one, but I think I have an allergy (my allergies all improved after Tiny died, and I had an allergic reaction when I tried to adopt a Yorkie 5 days after Tiny left us)

Then there's the whole fatigue part of MS that's also holding me back on a new dog.

My aunt's Pug just died last month, and she's considering getting a new one, and I'm kind of thinking of getting one from the same litter if we can find some.

I miss my dog, and I miss my aunt's dog. (both our dogs were best friends in the world, they even died on the same date, 2yrs apart)
Wow, Tiny is a very very big dog. Very attractive too. I am trying to cultivate an interest in dogs because I can't have cats anymore. I had to give away my Abyssinian cat after 7 years. I developed horrible cat allergies that came out of no where. I tried everything--allergy shots, acupuncture, chiropractic, you name it. Nothing worked. It just about killed me. Fortunately, an old boyfriend that had lived with me and the cat took him so he went to a familiar person. I still get reports and photos. He is now 15 and is a diabetic. The old BF has to give him insulin shots everyday! So the cat and I do the daily shots.
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Old 04-21-2008, 12:52 AM #8
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Wow, Tiny is a very very big dog. Very attractive too. I am trying to cultivate an interest in dogs because I can't have cats anymore. I had to give away my Abyssinian cat after 7 years. I developed horrible cat allergies that came out of no where. I tried everything--allergy shots, acupuncture, chiropractic, you name it. Nothing worked. It just about killed me. Fortunately, an old boyfriend that had lived with me and the cat took him so he went to a familiar person. I still get reports and photos. He is now 15 and is a diabetic. The old BF has to give him insulin shots everyday! So the cat and I do the daily shots.
I started to develop all sorts of allergies around the time that I think my MS started. I've always kind of wondered if MS is related to allergies somehow. Allergies are abnormal immune responses, and MS is the mother of all abnormal immune responses.
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Old 04-21-2008, 05:19 PM #9
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Well according to this study it says about 78% of all people have at least one T1 hyperintense lesion. But 71% of those with SPMS had multiple T1 hyperintense lesions and only 46% of RRMS have multiple T1 hyperintense lesions.

The Mayo clinic said I had a "significant amount of T1 hyperintensities" on the notes for the second visit. What the hell does significant mean? But on the notes for the first visit the doctor wrote the two MRIs done at home show
"T2 hyperintense lesions with decreased T1 hypotensity and actually several black holes. There were more than nine lesions in periventricular, subcortical as well as around the corpus callosum that were in the right orientation location to suggest demyelinating disease. Several of these were enhancing in the initial MRI." Basically I'm confused.

I think this line in another abstract scared me: "Hyperintense MS plaques on T1-weighted MR images are common and associated with brain atrophy, disability, and advancing disease; a hyperintense lesion may be a clinically relevant biomarker."

Anyhow, Erin is probably right. I'm just torturing myself by doing all this reading. It just escalates the anxiety.
I don't see the neuro for another month.
So sorry - I did not ask today. I knew there was something I was forgetting. Bad Connie (Can I have a spanking now?). I have an atlas to MS. I am looking through it now.

For right now, don't borrow trouble. Just cause "most" ppl have it, doesn't mean "you" will.

When will you have another appt. Write down ALL questions. Like I said to someone else... demand answers. Be your own advocate, and be as informaed as possible. Bring up the articles you read, and tell them that you want answers.

But, for now, DON'T borrow trouble, we have enough being spoon fed to us... Go out, enjoy the sun, read a good book. Listen to the birds!!!


Connie
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Old 04-21-2008, 05:25 PM #10
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So sorry - I did not ask today. I knew there was something I was forgetting. Bad Connie (Can I have a spanking now?). I have an atlas to MS. I am looking through it now.

For right now, don't borrow trouble. Just cause "most" ppl have it, doesn't mean "you" will.

When will you have another appt. Write down ALL questions. Like I said to someone else... demand answers. Be your own advocate, and be as informaed as possible. Bring up the articles you read, and tell them that you want answers.

But, for now, DON'T borrow trouble, we have enough being spoon fed to us... Go out, enjoy the sun, read a good book. Listen to the birds!!!


Connie
Thanks Beauty. You are right about "borrowing trouble." I am swearing off of MS research readings for awhile. No worries about asking your doc. the questions. You had plenty on your mind!!

I am too much of an advocate -- I think I drove some of the doctors crazy. The college I teach at is part of a system with a medical school. So I have online access to thousands of medical journal articles through my library. I went on an MS research binge right after the diagnosis and practically made myself an obsessive compulsive. I knew so much that I think the most recent neuro was rather surprised -- but thought it was cool that I could have a more detailed conversation about treatment, symptoms etc. But I am at a point in my life where maybe I don't need any more info....I just need to stop worrying and take it day by day.
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