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-   -   Struggling and feeling a bit "lost"... (https://www.neurotalk.org/multiple-sclerosis/44023-struggling-feeling-bit-lost.html)

EthanNDomsMom 04-22-2008 01:08 PM

I'm so glad I followed my MSW buddies over this way! Big hugs right back at ya Moose! You guys really know how to make a girl feel better.

The baby loves to ride on the scooter and push the buttons, especially the horn. LOL!
I think I'm just letting this MS bs get to me a little too much. I'm wondering lately if what I thought was a flare after the baby was born really wasn't, and this is my after baby flare. I can't wait for warmer, dryer weather so I can sit outside with the baby and let him play in the grass!

It's not helping that I've gained weight since the baby was born, but I'm trying Slim-fast since I can't really exercise too much, and so far, so good. And Cherie, you're right, scooter, stretch, walk... it's what I try to do. I generally walk when I'm doing something in a small space (the kitchen) and I try to keep up with some chores around the house. It makes me feel like a little less of a loser.

Thanks you guys!!

beautytransforming 04-22-2008 01:23 PM

Quote:

Originally Posted by EthanNDomsMom (Post 264293)
It makes me feel like a little less of a loser.

Thanks you guys!!

Oh honey, you are NOT a loser!!! I was glad in that respect to get the dx, cause I thought I was just dumb and lazy most of the time. I never had energy to do anything. I used to apologize to DH cause I was a bad housekeeper... I'd tell him I was having a bad day, but could never explain it. How many 32 year olds use "bad day" to explain 5 of 7 days a week... I thought I was just the laziest person on the earth. Now I feel a bit vindicated...

Don't ever think of yourself that way. Do what you have to do to keep you healthy, and do the important things. Dishes can wait a day or so before they stink...LOL

:hug:

MooseasaurusRex 04-22-2008 01:25 PM

Quote:

Originally Posted by beautytransforming (Post 264210)
HIJACK!!!

Hey, I never got one either :( It sounds great!! Can I have one.

In the meantime, I'll give you one of my little, not so tight hugs...

:hug:
Connie

OK, beautiful. Hang on. Here comes...

One big, warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing!

You are not alone.:)
You are one of us.:hug:
And we are here to help.:grouphug:

beautytransforming 04-22-2008 01:28 PM

Aww, thanks!!! I feel officially welcomed now!!! I agree, this place IS great!!! Lots of GREAT people here!!! So glad I am a part of it...

Quote:

Originally Posted by MooseasaurusRex (Post 264302)
OK, beautiful. Hang on. Here comes...

One big, warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing!

You are not alone.:)
You are one of us.:hug:
And we are here to help.:grouphug:


Kitty 04-22-2008 02:36 PM

Quote:

Originally Posted by EthanNDomsMom (Post 264293)
It makes me feel like a little less of a loser.


Jenn :hug:

You've GOT to get out of that mindset.....you are NOT a loser. None of us are. Just because we have MS and have to do things differently doesn't change who we are inside.

Do you perceive others who use mobility aids as losers? :confused:

EthanNDomsMom 04-22-2008 09:24 PM

Nope, I certainly don't perceive others as losers for using a mobility aid. I know I have to stop thinking that way, and I'm trying! This is the worst time I've had since my dx and I'm totally frustrated. Trying to think positive about the whole thing.

Kitty 04-23-2008 03:59 AM

Quote:

Originally Posted by EthanNDomsMom (Post 264665)
Nope, I certainly don't perceive others as losers for using a mobility aid. I know I have to stop thinking that way, and I'm trying! This is the worst time I've had since my dx and I'm totally frustrated. Trying to think positive about the whole thing.


:hug: It's so hard - I know - and there are times when we get down on ourselves even though we know it's through no fault of our own that we have this condition.

You have a lot on your plate right now. New baby, trying to lose a little weight......some days even the most mundane tasks seem overwhelming due to the fatigue.

Keep posting and coming to this forum - it helps SO much. Just knowing that someone else is experiencing the same thing is sometimes all we need in order not to feel so helpless.

I hope you feel better soon! :hug:

weegot5kiz 04-23-2008 04:12 AM

just like AMN I also was remove off baclofen cause it was causing more troubles with my legs, right now i am on other meds plus kolopin(sp?),(tried a few other meds no luck) daily stretching and starting a water exercise program, exercising does help talking to the doc, is a good idea

Snoopy 04-23-2008 07:42 AM

Quote:

Originally Posted by EthanNDomsMom (Post 264665)
Nope, I certainly don't perceive others as losers for using a mobility aid. I know I have to stop thinking that way, and I'm trying! This is the worst time I've had since my dx and I'm totally frustrated. Trying to think positive about the whole thing.

Jenn, When using or thinking of using a mobility aid think of it as a quality of life issue -

If you didn't use the scooter would you be able to function right now? Could you do the things you do without the scooter? If the answer is no then at this time you need that scooter to function in your daily life - quality of life.

Positive attitude: I think everyone needs to have one. It can help many get through or deal with this disease and life in general but there are many who no matter how good their attitude is still struggle living with this disease on a daily basis.

I understand your frustration except I usually have anger at the same time :rolleyes:

This disease affects my legs the most and 5 of my 6 exacerbations have severely affected my mobility. It's not a positive attitude that has gotten me through those exacerbations, it's anger, frustration and determination.

At the time I'm dealing with the exacerbation there is not a single ounce of positive attitude in me. Positive flew out the window along with my mobility.

Getting angry works best for me although I don't try and get angry - it just happens. My anger is never directed at someone...well.....ummm....I have been know to curse my neuro when trying to walk since he is the one who told me to walk even when I don't feel I can ( I adore him :)).

My anger is usually directed at my legs and this disease. I might be odd but this approach works for me.

I will add - I shed a lot of tears during this process.

Hang in there, Jenn :hug:

kicker 05-02-2008 08:04 AM

Quote:

Originally Posted by MooseasaurusRex (Post 264302)
OK, beautiful. Hang on. Here comes...

One big, warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing!

You are not alone.:)
You are one of us.:hug:
And we are here to help.:grouphug:

Moose,

I always imagine a hug from you would feel like a big ole bear-hug.


Sally,

With PPMS I know there are no good days coming, just steady progression. But now I get to the bathroom quicker, kids and their friends take my chair and turn up the speed and laugh the whole wild ride, and I do have more energy for other stuff (no, cleaning is not one of them. Did make brownies the other day, does that count as housework? I was in the house).

I do try to use walker sometimes and stretch, but not as good (never really good anyway) as I was. BUT I do feel I've gotten more freedom and mobility with the chair.


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