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- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Trip to ER (https://www.neurotalk.org/multiple-sclerosis/44137-trip-er.html)

Friend, I'm sorry you're going thru this right now. Yuck. I hope you can get to the bottom of it and FAST!!

~k

Quote:

Originally Posted by Friend2U (Post 265476)

So, Cherie, was the Ulcerative Colitis something brought on by MS? Or something separate from MS?

Yes, labor contractions was how intense it was. Only, at the worst of it, there was no rest time... it would stay solid for a good 30 minutes with or without meds. And it does make a difference having gone through childbirth as far as understanding just how intense the pain is. Some of the youngins working in the ER, I know, just doesn't quite get it. :( They would get a little impatient when I couldn't "just calm down and slow your breathing"...:eek:

I've broken down my prior response to the critical parts below, because the sensation is very specific and follows an exact pattern each time:

The pain occurs between my ribs, at the bottom . . .
First I'd get a soreness (like internal bruising) feeling . . .
then like labor pains in that it hightens and then lets up . . .
over about the next 15 min would escalate to "all on" pain . . .
eventually it was one long contraction sensation.

So ultimately, I am in state of constant pain . . . but the lead-up always includes the bruised feeling (that's my warning), then "contractions" that escalate and retract, just like labour. If I can catch it at that point (with Advil), I never get the "all on" pain . . . but if I don't, that pain is bad enough that I can not even talk for entire 'attack', usually lasting another 30 min. One time it lasted about 60 min though, and I couldn't even go to work the following morning because it left me so "bruised" feeling and sore. :(

I wondered about it and the MS when I first started researching, because my first sign of UC was in about 1981, and although I didn't have my first "official" MS attack till 1991, in retrospect, I had had MS symptoms dating back to the late 70's. So, I tried to put the two diseases together too . . .

There are a lot of PwMS who have IBS, which presents similar to Crohn's and UC, but just not as severe. Once we have a MS dx though, and start having bowel problems, chances are some people are just automatically categoried with "IBS" unless they start bleeding or something. No doubt that is what would have happened to me if I hadn't started bleeding that one time, and/or if it hadn't occurred before I knew about the MS . . .

There is a part of the colon that is right between the lowest part of ribs (transverse colon, or something like that), but that is not the only place UC pain can occur, apparently. I have always had the pain in exactly the same place every time though, so that must be where I get "ulcered".

Cherie

PS. Didn't you mention having bowel issues recently too?

Cherie

Quote:

Originally Posted by Friend2U (Post 264766)

I have had quite a week. Sunday evening my husband called an ambulance I was in so much rib pain. It subsided enough, that I didn't go ahead and let them take me. But then, later in the night, it started up again. So we went to the E.R. which is about 60 miles away. They did CT Scan, EKG, blood tests, but couldn't find what was the cause. They initially thought it might me a stone left from the gallbladder surgery last Monday...but didn't find anything that would relate it to the surgery.

I kept asking if it was the ms rib banding. They all acted like they had never heard such a thing. My neuri wasn't there. So it was all drs I had never seen before. It finally died down Monday, so I just came on home. It's so scary to not know what to do when it hurts so much. I have never been a complainer, just withstand pain and go on. But this was at least equal to my labor pain with no breathe time in between. The spells would last about an hour. Then would subside for a while and start up again. The morphene wasn't even completely stopping it.

I seem okay right now. I'm thinking I may need to find a neurologist who is more specialized with MS. He is a good doctor and maybe he will have some ideas when I do get to talk with him. But it's such a helpless feeling.

Thanks for listening!
~friend

Sometimes you can have a stone left in the duct. Sometimes it can be hard to see/fine. IF you have it again, demand an ultra sound of the area. They may have you stand WHILE e/s you so they may be able to see the stone drop (that is what they had to do for me).

I have no experience with the MS hug, so I can't answer that.

Could it have been gas pain? GERD?

Hope you are feeling better!!! And hope you don't get it again!

Glad to hear you are feeling better today Friend, I hope it continues to go away.....

Sounds a little like my reaction to morphine that I was given for a severe headache in ER once.

Mine was at the top of my ribs tho. They think it might have been the morphine messing with my pancreas (pancreitis,sp).

Awful pain, worse than labor and would just come in waves and go on and on! No more morphine for me.

Quote:

Originally Posted by lady_express_44 (Post 265735)

PS. Didn't you mention having bowel issues recently too?

Cherie

Yes, I did. I am learning so much.... I didn't realize there was a section of colon as high up as the ribs. I am going to give this some thought.
Thank you for the input.:)

I am continuing to feel better.

Quote:

Originally Posted by AfterMyNap (Post 264926)

Any better today, Friend?

Tried going back to work Thursday.. but could stay only a couple of hours. Seems things take a lot longer to bounce back from than they used to. I go back to my neuro Tuesday. Maybe he can shed some insight or lead me in a direction for some answers. Thanks everyone!:grouphug: