advertisement
Reply
 
Thread Tools Display Modes
Old 04-23-2008, 11:46 PM #11
RedPenguins's Avatar
RedPenguins RedPenguins is offline
Member
 
Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
RedPenguins RedPenguins is offline
Member
RedPenguins's Avatar
 
Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
Default :(

Friend, I'm sorry you're going thru this right now. Yuck. I hope you can get to the bottom of it and FAST!!

~k
RedPenguins is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (04-23-2008)

advertisement
Old 04-24-2008, 08:50 AM #12
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Quote:
Originally Posted by Friend2U View Post
So, Cherie, was the Ulcerative Colitis something brought on by MS? Or something separate from MS?

Yes, labor contractions was how intense it was. Only, at the worst of it, there was no rest time... it would stay solid for a good 30 minutes with or without meds. And it does make a difference having gone through childbirth as far as understanding just how intense the pain is. Some of the youngins working in the ER, I know, just doesn't quite get it. They would get a little impatient when I couldn't "just calm down and slow your breathing"...

I've broken down my prior response to the critical parts below, because the sensation is very specific and follows an exact pattern each time:

The pain occurs between my ribs, at the bottom . . .
First I'd get a soreness (like internal bruising) feeling . . .
then like labor pains in that it hightens and then lets up . . .
over about the next 15 min would escalate to "all on" pain . . .
eventually it was one long contraction sensation.

So ultimately, I am in state of constant pain . . . but the lead-up always includes the bruised feeling (that's my warning), then "contractions" that escalate and retract, just like labour. If I can catch it at that point (with Advil), I never get the "all on" pain . . . but if I don't, that pain is bad enough that I can not even talk for entire 'attack', usually lasting another 30 min. One time it lasted about 60 min though, and I couldn't even go to work the following morning because it left me so "bruised" feeling and sore.

I wondered about it and the MS when I first started researching, because my first sign of UC was in about 1981, and although I didn't have my first "official" MS attack till 1991, in retrospect, I had had MS symptoms dating back to the late 70's. So, I tried to put the two diseases together too . . .

There are a lot of PwMS who have IBS, which presents similar to Crohn's and UC, but just not as severe. Once we have a MS dx though, and start having bowel problems, chances are some people are just automatically categoried with "IBS" unless they start bleeding or something. No doubt that is what would have happened to me if I hadn't started bleeding that one time, and/or if it hadn't occurred before I knew about the MS . . .

There is a part of the colon that is right between the lowest part of ribs (transverse colon, or something like that), but that is not the only place UC pain can occur, apparently. I have always had the pain in exactly the same place every time though, so that must be where I get "ulcered".

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (04-26-2008)
Old 04-24-2008, 12:48 PM #13
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

PS. Didn't you mention having bowel issues recently too?

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 04-24-2008, 05:51 PM #14
beautytransforming's Avatar
beautytransforming beautytransforming is offline
Member
 
Join Date: Apr 2008
Location: Gulf Coast, Mississippi
Posts: 194
15 yr Member
beautytransforming beautytransforming is offline
Member
beautytransforming's Avatar
 
Join Date: Apr 2008
Location: Gulf Coast, Mississippi
Posts: 194
15 yr Member
Default

Quote:
Originally Posted by Friend2U View Post
I have had quite a week. Sunday evening my husband called an ambulance I was in so much rib pain. It subsided enough, that I didn't go ahead and let them take me. But then, later in the night, it started up again. So we went to the E.R. which is about 60 miles away. They did CT Scan, EKG, blood tests, but couldn't find what was the cause. They initially thought it might me a stone left from the gallbladder surgery last Monday...but didn't find anything that would relate it to the surgery.

I kept asking if it was the ms rib banding. They all acted like they had never heard such a thing. My neuri wasn't there. So it was all drs I had never seen before. It finally died down Monday, so I just came on home. It's so scary to not know what to do when it hurts so much. I have never been a complainer, just withstand pain and go on. But this was at least equal to my labor pain with no breathe time in between. The spells would last about an hour. Then would subside for a while and start up again. The morphene wasn't even completely stopping it.

I seem okay right now. I'm thinking I may need to find a neurologist who is more specialized with MS. He is a good doctor and maybe he will have some ideas when I do get to talk with him. But it's such a helpless feeling.

Thanks for listening!
~friend
Sometimes you can have a stone left in the duct. Sometimes it can be hard to see/fine. IF you have it again, demand an ultra sound of the area. They may have you stand WHILE e/s you so they may be able to see the stone drop (that is what they had to do for me).

I have no experience with the MS hug, so I can't answer that.

Could it have been gas pain? GERD?

Hope you are feeling better!!! And hope you don't get it again!
__________________
Diagnosed with MS 4/3/2008
.

Had onset attack in 4/2000
.

Can stop blaming myself for symptoms now.
.


Visit me on
.
.
beautytransforming is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (04-26-2008)
Old 04-24-2008, 06:22 PM #15
yeahbut's Avatar
yeahbut yeahbut is offline
Magnate
 
Join Date: May 2007
Location: Beautiful Maine
Posts: 2,363
15 yr Member
yeahbut yeahbut is offline
Magnate
yeahbut's Avatar
 
Join Date: May 2007
Location: Beautiful Maine
Posts: 2,363
15 yr Member
Default

Glad to hear you are feeling better today Friend, I hope it continues to go away.....
__________________
Tough Times Don't Last ~ Tough People Do

Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
yeahbut is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (04-26-2008)
Old 04-25-2008, 09:26 AM #16
sassy's Avatar
sassy sassy is offline
Member
 
Join Date: May 2007
Location: Michigan
Posts: 681
15 yr Member
sassy sassy is offline
Member
sassy's Avatar
 
Join Date: May 2007
Location: Michigan
Posts: 681
15 yr Member
Default

Sounds a little like my reaction to morphine that I was given for a severe headache in ER once.

Mine was at the top of my ribs tho. They think it might have been the morphine messing with my pancreas (pancreitis,sp).

Awful pain, worse than labor and would just come in waves and go on and on! No more morphine for me.
__________________
If someone listens, or stretches out a hand, or whispers a kind word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. --Loretta Girzaitis
Trust that your abilities are stronger than your disabilities - Maxene Kupperman-Guinals
sassy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (04-26-2008)
Old 04-26-2008, 12:55 AM #17
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default

Quote:
Originally Posted by lady_express_44 View Post
PS. Didn't you mention having bowel issues recently too?

Cherie
Yes, I did. I am learning so much.... I didn't realize there was a section of colon as high up as the ribs. I am going to give this some thought.
Thank you for the input.
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
Old 04-26-2008, 01:01 AM #18
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default I am continuing to feel better.

Quote:
Originally Posted by AfterMyNap View Post
Any better today, Friend?
Tried going back to work Thursday.. but could stay only a couple of hours. Seems things take a lot longer to bounce back from than they used to. I go back to my neuro Tuesday. Maybe he can shed some insight or lead me in a direction for some answers. Thanks everyone!
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
My trip East! tovaxin_lab_rat Multiple Sclerosis 15 10-20-2007 12:45 PM
Trip to the ER last night. dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 6 04-11-2007 12:14 AM
Mayo Trip LizaJane Spinal Disorders & Back Pain 0 03-09-2007 02:52 PM
Trip to the ER Luke's Mom Tourette Syndrome 8 10-05-2006 02:59 PM


All times are GMT -5. The time now is 12:03 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.