NeuroTalk Support Groups - Daughter With Scary Symptom--What To Do?

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- - Daughter With Scary Symptom--What To Do? (https://www.neurotalk.org/multiple-sclerosis/44232-daughter-scary-symptom.html)

Quote:

Originally Posted by weegot5kiz (Post 266350)

i dont think waiting is even a possiblity, i worry about my kids too and understand the over protective part of it, but like you said, being dx'ed is a long drawn out process, and yeah the docs do tend to blame us for being nuts or making it up, so i would say the sooner you get her tested, the sooner you can either rule out certain neuro illnesses or unfortunately rule one in, your daughter and you are in my prayers and thoughts, hang in there mom:hug:

You are so sweet! Thank you! :hug:

Quote:

Originally Posted by dshesq (Post 266236)

My neuro's nurse (after 20 years of dealing with MS patients, she's really good with reality checks and the info she has on MS) returned my call yesterday and said that we should start with a work-up by her doctor (pediatrician specializing in adolescents) and see where to go from there. Winnie (the nurse) told me that they could do a full neuro work-up on her ASAP after that if it seemed to be warranted.

My heightened sensitivity to her symptoms was validated by the nurse. While she didn't want me dragging my daughter immediately upon having a strange symptom, she did agree that it's wise to be tuned in to those symptoms because a dx and treatment early in the disease process (if it's there) substantially improves the prognosis.

Now I just have to figure out when I can get her to the doctor . . . being 18, one month from high school graduation, working and playing soccer doesn't leave much time for things like doctor's appointments! :rolleyes:

Sounds like a very good plan!

Boy, I remember those busy days of kids in high school... end of the year was the worst, and end of the LAST year was over-the-top worse! But it sounds like a really good idea to get her in to her GP soon, have her checked, and go from there.

I hope nothing wrong is found. We moms worry, and rightly so. Keep us posted.

Nancy T.

Having Kenzie evaluated is a good idea.

I really hope it's not MS but as a mother I know the fear and concern you have :hug:

i would follow thru with a check up.
her leg sx reminds me of the feeling i had in my leg when i first went to the dr.

i can only explain it as a whooshing feeling that started at the bottom of my foot and gradually that feeling worked up my leg.
it was very noticeable and occurred every few seconds driving me crazy.

good luck. i hope it's nothing.

I hope it's nothing. I think it's a good idea to get it checked out, though. Keep us posted on what the docs say.