NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   O.N. (https://www.neurotalk.org/multiple-sclerosis/44452-o-n.html)

cat265 04-28-2008 05:52 PM

THanks for answering everyone. The reason I asked the question is because I am having some problems with my eyes. I don't have an actual dx but he opth. said I have all the symptoms of an MS eye, but my optic never and eyes in general a very healthy. I think the poblems I am having at the moment might be because of a recent bout of shingles, it was on my eyelid and farhead. Its better now and the dr. said it did not go into my eye, but every little pain makes me nervous. I know shingles in the eye can cause loss of vision.

Erin524 04-28-2008 06:13 PM

Quote:

Originally Posted by freeinhou (Post 268372)
Cat -

Based on what I've read people describing ON over the years, there's gonna be a wide range of variation...

Mine was painless. Vision deteriorated over about 72 hours from fuzzy to complete white-out in right eye.

I say painless, but I was experiencing extreme pain in the lower back left side of my neck at the same time. It started 3 weeks before the eye went.

Check this out for timing - they were looking for candidates for the ONTT (optic neuritis treatment trials) at the time (1988). They talked me into being a guinea pig. So I did the 3 or 4 or 5 or whatever day IV steroid thing (I was in the hospital 5 days - I don't know how long the steroids were dripping into me).

Vision came back 90% after 3 months. It's been at 90% for over 20 years now. Still slightly blurry. 90% is subjective. 95% would be accurate too...

Tom


Did the pain in the neck get worse when you moved your eyes or if you turned your head and eyes a certain way?

I had a weird extremely painful pain in my neck just before and during the first month or two I had my first case of ON. I didnt feel it the last two times tho, but those were nowhere near as bad as the first time I had it.

cat265 04-28-2008 06:43 PM

Quote:

Originally Posted by Erin524 (Post 268389)
Did the pain in the neck get worse when you moved your eyes or if you turned your head and eyes a certain way?

I had a weird extremely painful pain in my neck just before and during the first month or two I had my first case of ON. I didnt feel it the last two times tho, but those were nowhere near as bad as the first time I had it.

I did/do not have pain in my neck, although my neck has been very stiff lately. Iam 43 now. When I was about 25 I was sitting at work and all of the sudden I lost vision in my eye. (I can't remember which one) The person sitting across from just kind of half dissapeared. It was like a big white spot. At the time the dr. told me I probabley had a mirgrain. I did not get a headach. Since then this has happend 2 more time. THe most recent time (2 years ago) I got the typical halo aura that lasted for about 1/2 hour. All three time I did not get a headaches. One of the reasons for the lesions on my mri was possible mirgain disorder. Maybe that is what this is all about. I do get terrible headaches that go straight across the top of my head, alot. I also seem to have trouble absorbing b12 from food. Iam ok if I take sublingal tabs.

freeinhou 04-29-2008 05:42 PM

Quote:

Originally Posted by Erin524 (Post 268389)
Did the pain in the neck get worse when you moved your eyes or if you turned your head and eyes a certain way?

I had a weird extremely painful pain in my neck just before and during the first month or two I had my first case of ON. I didnt feel it the last two times tho, but those were nowhere near as bad as the first time I had it.

No. Pain was not associated with eyes. I suspect the caffeine pills for fatigue.

Tom


All times are GMT -5. The time now is 09:54 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.