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I know somewhere there is a "guide to finding a good doctor" and it doesn't pertain specificially to a neurologist. A friend of mine just had an interesting experience with a move to what she thought would be a new MS Specialist as her "primary" doctor for continued MS treatment. She had a consultation with him, he went over all her records, gave his opinion and said, ok...you have MS, TM, and then sent her on her merry way. Then he sent all her records back to her original neuro. She was floored. :eek: She thought she had made it very clear she wanted to be HIS new patient. After several phone calls to his office, that went unreturned, she finally wrote him a letter to which he replied that as a "specialist" he doesn't take nor have the time to see patients on a regular basis. He only sees patients for second opinions, and that's it. As I said in my earlier post, this seems to be the norm rather than the exception. I see a specialist for the clinical trial. He doesn't see patients outside the trial. He does, however, have other "neuro's" on staff who do and they consult with him about these patients. My neuro is not an MS specialist, but very knowledgeable and fits the criteria for what I need. Quote:
I remember when I was battling cervical cancer and the doctor that I was seeing at the time had such a poor bedside manner that I was very uncomfortable with what was going on...in addition, my PODH has just been deployed for an 11-month cruise (yep, Navy). So, I decided that I wanted to go see my previous Navy doc at our previous duty station. I got permission from the powers that be to do that...it was not a fun process, but I got it done. Don't get me wrong, this guy was a very good doctor, but he and I just weren't connecting. Anyway, I ended up having the surgery clear across the country and was able to recuperate with the help of a very close friend which made things easier for me. So, I guess what I am saying is, the decision is yours and yours alone. But don't get fixated on a specialist because of the "word" specialist. Make sure you are comfortable with the doctor because he/she knows what they are doing and have the education/compassion/personality or whatever it takes to treat YOU and that it is what YOU want and need. :hug: |
i would call your local MS society and ask for a list of their referring drs.
then see if an MS specialist is on it. some drs will grant you a 15" get acquainted appt. worth asking about. i live in denver and see an MS specialist here. another neuro was also highly recommended to me and i saw him thinking i might have to switch. it was a good visit and he said he'd take me as a pt but also said my dr had more experience with MS than he did. calling local hosp's was also a good idea. asking your pcp for a referral might give you some info. calling your local teaching hospital might yield some info but i generally don't like teaching hosp's for care. underlings docs do the care and they're not experienced, nor can they always have good bedside manners. if you know any nurses ask them as they're a gold mine of great info. they have the inside scoop. |
Thank you everyone!
Your responses really have helped me to be able to think about my situation. Sometimes it's just hard to sift through everything in my situation to know 'what is what' :Scratch-Head: I know you guys can understand that very well.
Sometimes I think I'm getting all used to this ms stuff, and other times I feel like it is still brand new and I can't afford to be making mistakes.... like not going to the right docs. :Doh: But, when going to my neuro again yesterday, I tried to be much more open and specific with him. We had very good conversation. I am feeling much more comfortable about him, so will try not to worry so much for now. :wink: You are all helping me to understand, though, that my situation is important to me, and I do deserve the best care I can find. But, for now, I am going to stay optimistic about the health care I am receiving. Thanks so much for helping me think through this!!! I appreciate the websites. You are all the best! :grouphug: |
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