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Old 04-29-2008, 05:49 PM #1
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Default Narcoms
The spring NARCOMS questionnaire is out. All members (NARCOMS) - I encourage you to take the time to fill it out.

If you're not a member - ask. I might be successful in getting you to be a member. I can probably provide accurate directions... Don't worry - it's free.

NARCOMS = north american something something something MS. Cool magazine. Tells ya all the trials going on. Database is ~ 36,000. Roughly 12 years old. Maybe older.

Tom
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Old 04-29-2008, 06:09 PM #2
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Quote:
Originally Posted by freeinhou View Post
The spring NARCOMS questionnaire is out. All members (NARCOMS) - I encourage you to take the time to fill it out.

If you're not a member - ask. I might be successful in getting you to be a member. I can probably provide accurate directions... Don't worry - it's free.

NARCOMS = north american something something something MS. Cool magazine. Tells ya all the trials going on. Database is ~ 36,000. Roughly 12 years old. Maybe older.

Tom
I'm a member, but haven't received a questionaire, yet..
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Old 04-29-2008, 06:25 PM #3
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My email just came last night, and I filled out the survey right away, before I got sidetracked. (Who, me?)

I was happy to do the survey and hope others will also, but I will admit that it was a big reality check to see the progression of my disease in black and white. Yeeks.
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Old 04-29-2008, 08:51 PM #4
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My thoughts exactly while answering the questions last night. Really makes you aware of how you are doing.
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Old 04-29-2008, 09:23 PM #5
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Default North American Research Committee On Multiple Sclerosis (NARCOMS)
Thanks Tom! I had no knowledge of this, but will definitely fill out the questionnaire.

Here is where I found the info: http://www.mscare.org/cmsc/CMSC-NARC...formation.html

Here is where you actually register: https://narcoms.emergemd.com/Login.a...okie_test=true
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Old 04-29-2008, 09:44 PM #6
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Thanks, Tom, I didn't get my email yet. Maybe I'll just be proactive and go do the deed first thing.

Everyone do it! This is really important to all of us and all of those who face MS in the future!!!
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Old 04-30-2008, 12:11 AM #7
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Default Thanks...
Thanks for the link...but gosh, that was depressing!!
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Old 04-30-2008, 08:09 AM #8
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And the info really does serve a purpose! I got asked a couple of months ago to participate in a separate research survey based on my participation in NARCOMS. It's nice to know that something good can come out of having a cruddy disease.
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Old 04-30-2008, 12:19 PM #9
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Yup, did mine yesterday but thanks for the info Tom!
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Old 04-30-2008, 12:22 PM #10
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Did mine a couple of days ago!
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