NeuroTalk Support Groups - Hi Newbys....Please Introduce Yourselves

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- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Hi Newbys....Please Introduce Yourselves (https://www.neurotalk.org/multiple-sclerosis/4543-hi-newbys-please-introduce-yourselves.html)

Welcome to NeuroTalk.

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Hi JSSL and welcome to NeuroTalk! Please browse around and make yourself right at home. :)

Hello and welcome! pull up a chair and grab your reading glasses. We are happy to have you here. :hug:

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I am Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. :eek: Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.

I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past.

Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.:D

Best Wishes,

hi Sally my name is Linda , I am 47 and I had my back fusion on Jan 25 my doc says it was a success, however I still have pain which he calls phantom pain I have never heard of this but I trust him when he says it will go away. Glad I found this site and hope someone may have some advice or insight about phantom pain. Thanks... Linda

Hi there, my name is Jon. To be honest I may not "belong" here as I'm still trying to find out what is going on. My symptoms started about 4 months ago, maybe longer. My legs tingle/buzz constantly from the knees down. It never goes away, though some days are better than others. At first my arms did the same thing from the elbows forward but now it's just mildly in my finger tips.

When it all started getting worse it also included tinnitus (sp?) but that has faded. The main concern though is stumbling. When the symptoms first started I was washing my car and literally fell onto it when my right leg just went away... but those things happen so I wasn't too worried at the time.
But my stumbling seemed to get worse, I usually walk ok forward and backward but any movement sideways causes me to stumble. It's very strange. I feel like I have to concentrate on every step to keep my balance. The neuro had me walk heel to toe and said that there was definitely a problem.... The question is what?

There seems to be some weakness involved. There are days when it takes all my energy and concentration to walk, and I feel like I'm going crazy. I have been forcing myself to go for walks but after a few blocks it's as if I have no energy at all and literally every step is like molasses. But maybe it's nothing and I'm just making a mountain out of a mole hill.

So, like I said I may not belong here. They did a neuropathy test but that's ok. They did an MRI and found white patches but that could be other things as well. So they did the evoking tests, but now I am in hurry up and wait mode. In a way I want them to find something because then I won't feel like I'm simply crazy.

Other symptoms, related or otherwise, fatigue and brain fog by about 2 p.m. These symptoms started a long time ago, and in fact led to a diagnosis of low testosterone, but frankly the replacement therapy didn't help. And my sex drive went away almost completely after that. The endo said it had to be depression then, but I knew it wasn't. Add to all this now I have spontaneous crying jags, with very small things triggering them. (But again that could be depression.) And lastly, there have been several episodes where I start to get up but can't, and have to sit down again. There's no warning, I'm half way up and then it's like there's no muscle control and down I go again, and then if I hold onto the table and push up I'm ok.

Soooo, I thought I'd check in with people who have already been through the ringer and may have some insights. I don't expect a medical diagnosis, just curious to see if any of this sounds familiar to anyone.

I too have decided to check in here, though I am not sure what is going on yet...

I have many early symptoms and I know that SOMETHING is going on, just not sure what. Waiting for an MRI right now. And I admit I am frightened.:o

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Originally Posted by Rainbowzz (Post 761701)

So would you like to share what's happening? It might help to share.?

Welcome Dove, Draigs and Rainbow, nice to have you here.:)

Come on in and join us anywhere or start a thread and we will try to help you along in your DX process. People don't usually come to this thread to answer your questions, but only to say Welcome.

So Welcome to the MS section of NeuroTalk.:hug::hug::hug:

Quote:

Originally Posted by SallyC (Post 761773)

Oops, sorry. Guess I was a bit too anxious. Thanks anyway and hello back.

looks like we have passed the 1000 posts & 100 pages mark here so if someone would like to start a new thread I will lock this one with a redirect to the new one. Be sure to add the link to this one in your first post of thread 2 :)

thanks