hello
 

I see a lot of familiar faces, or usernames rather, here and that is comforting.

I been dx with MS 2 years now, but think it developed at least a decade ago. I was on Avonex but have now been on Tysabri for a bit more than a year. I have been labeled officially disabled by the government through Social Security but I do not want to believe that label and fight with myself over it.

I am 28, married for 3 years, and have 2 children. my son is 11 and my daughter is 2.

Hello Katt!

It's nice to see you :)

Welcome Wyldkatt (love the spelling) Is there a story to go with?

Sorry you have the dx, but you've come to a wonderful place. Having gotten the SSDI is quite a hurdle overcome, congrats. Don't dwell on the label, it's just that, a label.

I've been dx'ed a long time, but can trace sx 15 years prior. Everyones case is different. Make the most of each day.

You still have many choices each day and can make positive ones and have a very nice life despite the MS.

Hope to see ya around.

:hug:

Nice to see you too! :cool:

um, the story to go with the spelling of my username is that by the time I got around to the internet, all the original spellings for wildcat were taken, lol!

It was my CB handle long ago and wanted to keep it online but had to play with spelling. Now I use wyldkatt or thewyldkatt pretty much everywhere I go.

Please take note though, not everyone you see online with that name is me! That name certainly has attracted some "wyld" people to use it...:o

Welcome Wyldkatt, to the best little MS house in Neurotalk.:D

Sorry as to why you're here, but so glad you found us.:hug:

Newbie
 

Hi everyone

New to the site, always looking to meet new people and see if there is anyone from Rhode island/Massachusetts. Would love to chat and commiserate.

Hope this finds you all well.

:Wave-Hello: Hello BBelle and :welcome_sign: to NeuroTalk.

Please feel free to join in anywhere.

Welcome BBelle, nice to meet you.:)

Hi there BBelle and a big welcome to NeuroTalk from me as well.

It's good that you found the MS Forum, and hopefully you'll have found The Stumble Inn as well, where we all get together for a little fun.

There's also a chat room as well, but that tends to be a bit sporadic in use, and mostly in the evenings.

Welcome again, it's so nice to meet you.

Welcome BBelle! :welcome_sign: Glad to have you here! :)

Hello from me
 

I'm new here but I have been hearing about this site for a while at . I thought it was time to spread my wings and fly around to see what else is out there.

There are so many great threads here for so many different things, even besides MS. I look forward to checking some of them out.

On MSW I was brooks1teacher with a sign off of Weeble because that's whT I look like and often feel like, in the most wobbly sense of a Weeble.

I'm 37, divorced, no kiddos, one great cat, and a teacher who loves her jobs most days. Almost summer vacation, two months to go for me. I was diagnosed as RRMS in 12/06/05 after almost a year of searching for a diagnosis.

I was on Copaxone for almost two years but that didn't work very well for me. I switched to Rebif last November but am currently on vacation from it due to liver enzyme issues.

I look forward to seeing lots of familar screen names and participating in this forum.

Thanks,
Weeble :D

Hiya, and welcome. I think you are going to love this place as there
is lots of info, support, and fun.:)

Its nice to see you here.

:Wave-Hello: Hello Weeble and welcome to NeuroTalk.

I am new, too!
 

Hi all! I recognize some of you from MSW! There I am exchangemom.

Someone suggested this site since I have to think about what med to try next. I was dxd 6/07 with no symptoms.

I found out by accident, literally, after a few broken bones. Started with Betaseron and went up gradually in dose. I had major surgery before going on Beta (accident) and was not feeling great anyway.

Gradually many things started happening and I kept getting so sick with sore throats that they wanted to take my tonsils out at 51!

I went off the Betaseron and have not been sick since and feel so much better. I did try meds for the side effects, but I had more side effects from them!

Now my doc wants to put me on Ty and I am not sure that is a good idea. I am allergic to 4 antibiotics and I understand there are frequent infections on Ty.

I have only had one bad episode in January so now I am RR. Looking for some other ideas besides Ty. Look forward to meeting you all.

Welcome Weebles and Starfish - I recognize you both! Pull up a chair - so much to read and learn here!

Thanks for the welcome. I recognize so many names here. It feels comfy already.

Weeble

I'm New Here
 

Hello Everyone:
I am living with a DX of MS and have been since 2/2001. I started taking Avonex for the first 2 years and have been on and off Rebif for the last 5 years or so. I am at the point that the relapses are more frequent and I am now seeking alternatives to conventional medication. I tried a body wrap this past weekend and amazingly it worked really well on my legs for the tingle and numbness I have been experiencing. I guess I am just seeking any information regarding additional natural methods that anyone has tried to help with the symptoms of this illness. Thank you all in advance for any information that can be proved. Look forward to getting to know you all.

AggieMama

Hi Aggiemama! Welcome to NeuroTalk! :welcome_sign:

Welcome to Neurotalk and the MS forum, Aggiemama! So nice to meet you. :)

I don't know too much about Natural MS therapys, but be careful to spend your money on phoney cures and therapys, because they're out there.:eek:

Join in anywhere, Aggie..:hug:

Hi Aggiemama-
I follow the Swank Diet for MS. Dr Swank conducted a 50 year (published) study on his patients that showed low levels of disability from MS over the long term. If you're not familiar with it, and are interested in learning more, feel free to PM me and I'll send you some links. Welcome!

Hi, I'm Noid
 

One of the moderators pointed me in this direction. Long story short...

PRMS. Perhaps Devics, but for now doing rebif, and looking at chemo before doing Tysabri, if this isn't Devics. I'm also a photographer btw. :D

My symptoms are bi-lateral, which I hear is odd. I also get numb lungs and throat paralysis sometimes.

I love taking photographs, and was once an acrylic and oil artist, which I'm working very hard on gaining back. I have bi-lateral hand atrophy, so it is difficult but where there is a will, there is a way.

I lack faith in my neurologist atm, so am here looking for answers, by learning from others with MS, as well as other forms of "sclerosis" type illnesses.

Great to meet everyone. Hope this don't sound too much like whining... i'm not always negative lol.

Nice to meet you all. :o

Hi Noidy...Welcome, nice to meet you..:)

Come on in and join your new family..:hug:

:welcome_sign: Noid
Sorry you are here, but you sound like a great person. We are too, we just got crummy MS. A little whine is good, and we are great listeners too.

I hope to see ya around. And good for you for keeping up the the art one way or another.

:hug:

new and not new
 

I have just figured out that there is a separate forum for MS.

I do everything in the wrong order. I do read directions sometimes...!

Hi, Cyn! :Wave-Hello: Welcome to NeuroTalk!

:ROTFLMAO: :ROTFLMAO: :ROTFLMAO: :ROTFLMAO:

Hy Cyn...glad you found us...LOL! Come on in, the water's clear and cool, just the way we MSers like it.:p

:hug:

Howdy from Alabama!
 

huh?? :confused: ya mean it would have been better to say hi here first? :D
oh well, posted an intro on the main page, then found this, so Aarcyn, we on same raft!

Dejibo gave me link here, so here I am :hug: Prolly had MS since around...oh, the early 80's I recall early symptoms, but not until 97 did I start getting blood tests and other tests to see what the heck was going on! Didn't show a thing, so I started seeing a psychologist :cool: couple of months into that, had my first exacerbation--7/22/2000, and got the diagnosis in 8/2000, started on Beta in 11/2000 and been on it ever since!

I really wanted a break from it, but my neuro says "nuuuuuuuuu, nu way!" cause I haven't had a relapse and my disability reading went back to zero a couple of years ago! Hey!! I'm a grateful bunny here!

Hope to get in in the forum occasionally (though I don't do forums much any more lol) and offer encouragement and support where I can.
:grouphug:
Vikki

Hi, Vikki! :Wave-Hello: Welcome to the MS division of NeuroTalk!


I welcomed you in the general welcome area, and now I welcome you to our little band of MSrs. We also have a subforum called "The Stumble Inn" just for fun with others who "get it".

There are tons of other forums here and as you get familiar with the landscape, know that you are welcome to join in anywhere. :)

Welcome, Vikki..:) Nice to meet you.

Come on in and join the party. :hug:

I'm trying! I'm trying!!! but guess I have to have a certain number of posts before I can be a true MS party person! :D

thanks for the welcome, ladies :hug:

Hey Sally, I am new to this and not computer savvy.Still learning to get around in here! I appreciate the humor that you guys are providing. That's the only way to deal with life.I have RSD(1st in rt leg)recently, however;had rt hand surgery and it followed suit.That just sucks like a big bucket of ticks as my grandmother would say!:)It is wonderful to be able to 'talk' to others who are having any kind of health issues.I was DX'd 16 years ago so, quiet like you, I have many stories to tell. Anyway, I'll try to stop in more often.(even though w/o my hand it takes a while) Keep smiling and Take care of you!!!
Sunny

Welcome, Sunny..:) Post, whenever you feel up to it. I hope you've found the RSD Forum, too.

:hug:

Hi Sunny!
Welcome aboard. I'm sure you'll find whatever are you need here. many choices :) :winky:

Hello!
 

Hi. My name is Marion. The first time I heard a doctor utter the words “multiple sclerosis” it was 2002. I was officially diagnosed in early 2007.

I have chosen the Mandell Center for Multiple Sclerosis at Mount Sinai in Hartford, Connecticut for medical care. This is a new center in Hartford, and some of the most talented medical professionals in the field are now working together there.

It is kind of fun being involved with the Mandell Center at its very beginning. I have been to the center three times now. They seem to know what they are doing. That having been said, I’ll drop them in a New York minute if they turn out to be the “same old, same old” MS center. <<grin>> Life is short, ya know?


RollBob (don’t you just LOVE that screen name?) suggested I check this BB out, so I’ve been lurking for a respectable period of time. I look forward to contributing here. I usually feel that I have very little of value to add, but you all seem so friendly – well lets hope I don’t put my foot in my mouth too much.

Hello, all!
:):)

Welcome to NeuroTalk, Marion, so nice to meet you. :)
Is your name the male or female version? And who is Rollbob? I'd love to meet him too.:D

Join In anywhere and don't worry about the foot in mouth syndrum. We all do with pizazz..:p

Hello Marion and welcome to NeuroTalk.

It's great to have you here with us, but it's certainly not a great reason why you came lurking. :(

We have a very active MS Forum here as you will have seen by now, and we're a strong group who support each other through trials of every kind. Don't forget to pop in to The Stumble Inn, as that's where we het together for a bit of fun. :D

:Wave-Hello: Hello, Marion and welcome to NeuroTalk.


You will be suprised how much your opinions, stories or sense of humor can add to the MS forum and other forums here at NT.

If you put your foot in your mouth then you fit right in ;) :p

This is great...The 2nd introduction...So I should have called this Pete RePete..For real....

Hi my name is Pete And I'm a recovering '..Oops sorry wrong group..

Hi I'm Pete..PJAMES from the other place...And sometimes The Other Place Pub if you live in West Boylston....

OK...sorry about the nonsense....I am still in Limbo.....I was actually starting to think..This MS stuff was maybe overblown....Then came the warm...Then the heat.....Then went my sensation...And as the sun shines..My tremors came back----The fog---the buzzing.. Etc..So little ole me went back looking for you folks....

Well here I am...

And yes I am very happy to be here..and glad Twinkletoes gave me the address....

Hi Pete.....Welcome to NeuroTalk..So glad you found us. We have quite a few still doing the Limbo, here, so just join in anywhere and enjoy.:hug:

PETE!!!! I am your neighbor!!!! I know the Other Place Pub and Bob! I grew up with his girls. I drive by it everyday to get to work. Do you live in Worcester? I am in Shrewsbury.

I am so sorry that you are going through this! The summer heat is when I [I]knew[I] that I had MS before the neuro would give me a definite. Once I cooled my body temp down the symptoms went away. I hope you are seeing a neuro and I am glad that you found us...well that Twink sent you here.

You will have to let me know where you are at...no I will not stalk you, promise! There is another MSer that lives in Worcester too. She is on here every now and then.

Welcome!