It's wonderful to find this!!! Thanks ever so much for being here!

I'm Bethany...dx was just this past Jan but, as in most cases, several misdiagnoses sent me all over h*ll's half acre before I got here (carpal tunnel flare ups due to writing term papers in '92, l'hermittes was cervical disc problems in '98, thyroid problems related to pregnancy in '00)

so here I am now... actually kinda glad they were wrong for so long. I took the news MUCH better at 34 then I would have at 20 when ms signs first came on the scene. I can't STAND when people hear my dx and reply "I'm so sorry..." UGH! I'm not DEAD, I just wobble! To the outside world, I really just appear to be tipsy! I'm always worried that someone will truly think I AM rocked and give me a sobriety test... i'd never pass! (can't walk heel-to-toe, can't touch my nose w/ my finger, never did know the alphabet backwards...)

Anyway... supposedly the lesions are there and numerous and sizable. I have such limited knowledge that I don't always know exactly what I'm being told or what my next question SHOULD be (I'm making ALOT of this up as I go along and learning as I go!) Had first MRI's in December, went to the MS center @ Johns Hopkins 2 weeks ago for second opinion (they agreed... it's MS... no surprise there) and now I'm being sent for neuro-cognitive testing the end of the month.

The first neuro handed me all of the shiny, pretty marketing goodies for the big 4 and said... here are your meds options... pick one. Yikes! I, again had NO clue... anyway I researched & read and went w/ rebif which all the neuros (three now) have though was my best bet. The neuro at Hopkins thought that (if rebif didn't pan out) tysabri should probably be the next step.

Life on rebif has sucked (although not as bad as others, from what I've been hearing.) any pain or stiffness i had before rebif has quadrupled with the meds. i complained and they gave me neurontin... never again! The migraine that came after lasted for 3 days!

sorry-- 'nough of my bemoaning... thanks for listening!!

Bethany

Hi Bethany, nice to meet you. So sorry about your DX, but glad you found us.

I've had Ms for lots-a-years. My Daughter is your age and was also DX with MS a few years ago. She decided not to go on any of the MS Drugs and instead, is on LDN..(LowDoseNaltrexone)

I hope you find a Med that works for you. It's a pretty sad choice but, at least, now we have a choice. When I was first DX, their were no meds, except steroids..Yuck!

I do so hope they find a cure in your day, Kiddo.

Come on in and make yourself at home. We are a fun bunch of people who know a bunch about MS, so we all understand you, when family doesn't always.

WELCOME..

Hi there Bethany! Pull up a chair! Remember...whatever the others say...I am the nice one here...really!

Hello Bethanylynn and to NeuroTalk

Hi, Bethany!

Welcome to NT! Glad you found us, we rock the cashbox. Sorry about the diagnosis though, I wish that no one ever had to hear that again.

Stick around awhile, we're pretty obnoxious but we understand what you're experiencing and have clever ways to foil the foe.

Welcome Bethany,

Sorry you;re here, sorry we're all here, but misery does love company
I'm new here myself and am finding wonderful, warm, caring people! funny too!

Cindy, thanks for the avatar, you're brilliant

You got it, Eva, and welcome to NT. Hopefully, we won't scare you off too quickly!

Is it snowing out? Someone sure has Eva "snowed".. ha

Hey Bethany... WELCOME! Sorry I am late w/this greeting.

Taffy said she's the "good" one, but my bet is on ME!!!!

Glad you found us.... Sorry about your DX tho...... take care...

I just posted a new thread in this forum introducing myself and then I saw this thread. DUH!!

Should I redo it?

Margie

I didn't read your intro in the general intro forum, so, WELCOME to the MS Forum...I'll go read it now..