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Old 10-27-2006, 07:00 PM #11
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Welcome to NeuroTalk, Mark. Nice to meet you.

Sheesh, your Mamma was right, but did she say there would be months and years like this. When the Lord was passes out diseases, you said, "I'll have one each in assorted colors" Huh?

Is your Neuro treating you to any of our lovely RSD, MS, PN, Pain and whatever Meds. Pain Meds being the most important, of course. Nerve pain is a whole other ballgame. Narcotics usually don't touch it, but there are some good meds out there, for nerve pain, that are pretty helpful.

I am one of the lucky ones, without too much pain,, but I had Shingles of the face one time, so I KNOW what nerve pain is like. I'd rather have ten babies right in a row.

Some Peeps will be along soon, I hope, and give you some help on the pain meds. We are here to support you.

Thank you for the nice intro. Hope to hear from you soon.
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Old 11-03-2006, 02:18 AM #12
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Hi there!

I am kind of a transplant from another board that seems to not be working at the moment. I see some familiar faces though

I live in Colorado and have had Fibromyalgia since 2001. I started having some odd symptoms over this past summer (numbness, tingling, sunburned feeling...) and I just had my 1st MRI last month.

I have 2 boys ages 6 and 17 months. I also have a hubby, we have been married for 7 years.

Nice to meet everyone!
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Old 11-03-2006, 07:10 AM #13
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Hello Sibyle and Welcome!

I'm glad you decided to join us!
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Old 11-04-2006, 07:08 AM #14
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Welcome Sibyle, thanks for joining us. Pull up a chair and get comfortable.

Sounds like you have a lovely Family,

What other board did you frequent?
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Old 11-04-2006, 11:36 AM #15
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Welcome to the forum, Sibyle. Nice to have you aboard.

Cherie
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Old 11-04-2006, 05:52 PM #16
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Hi Everyone,

Just lurking around trying to find out some information on Post Polio. Hubby & I believe this is what he has. We are going for tests Tues.

Any one have a test called "Electromyography (EMG)"? I would like to know what to expect. I have read information. Nothing like getting it from the horses mouth though. Hurt? How long did it take? I sure hope I can stay with him during this test.

I know this is M.S., I was hoping someone could help me out here. Being that both are with nerves.

Kitt
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Old 11-04-2006, 09:39 PM #17
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Default Hi there -- I am a Newbie

Hi -- I am new here -- this site was recommended to me by lady_express_44. I had been on a different site with her but am finding less and less to discuss there -- they evidentally have a problem with LDN...my drug of choice.

I have read some posts and you all seem positive, supportive and friendly.

I was dx in 2004 when I had a bout of ON --but they think I may have had MS for over 25 years...just have had long periods of remission. i am taking LDN -- Was on Copaxone but had problems with it. Glad to be off it. My symptoms are mild at this time. Residual issues with the ON--Florsents and hot weather bother me some--but its getting better all the time.

I Just started seeing a new Neuro -(got away from Kaiser-thank you God)- he is a MS specialist, seems great and has no problem with the LDN but he wants me to think about taking 4-Aminopyridine along with it. Has anyone heard of this? I googled it and still have reservations...in a higher dose it is a poision?

Well -- I am glad Lady Express recommended this board -- at least I can discuss the LDN openly and possibly get some answers. Hope I can help you all too from time to time. Gail
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Old 11-04-2006, 10:27 PM #18
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Hello Kitt and Welcome to the MS forum - sorry I don't have any answers for you but maybe someone else might.

Gail ~ Welcome! I have this feeling I know you from another board - hope you find this board more to your liking.
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Old 11-04-2006, 10:35 PM #19
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Hi Gail, nice to meet you.

Yes, LDN used to be a dirty word on most forums, because it was new, it was cheap and was not Big Pharma approved.

I'm surprised you are still having problems talking about it, though, since a lot of the naysayers are now on it..LOL.

We are free to talk about all our Med choices here, and debate them as well, so don't be shocked if someone does not agree that LDN is a good thing.

I am glad Cherie steered you in our direction.

Hugs,
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Old 11-05-2006, 12:02 AM #20
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Thanks Sally and Lee Ann -- Glad to be here.

I don't mind controversy == I like a good debate. And as far as meds go--its whatever works for you.

Have a good evening Gail
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