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10-01-2008, 03:32 PM | #1 | |||
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Grand Magnate
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Hi Jammie and Linda! Welcome! Linda, I think we had "chatted" before at that "other place"when I was on tysabri. I am glad to hear that ty is still working for you!
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03-26-2010, 06:50 AM | #2 | ||
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Junior Member
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I found this site when doing a search on magnesium citrate.
I'm a 56 year old woman living in western Mass with my family. I have IBS-C and there is a question of lupus. Hubby has asthma, pretty bad allergies and diverticulitis. My 20 year old doesn't have many issues beyond dandruff and Keratosis Pilaris. Which we cured with 2 packets of Coromega (fish oil) 5 times a week. My 17 year old son has aspergers (high functioning), ADHD, dysgraphia and a few other comorbid differences. He is a good kid but can be difficult at times with his rigidity.He has been on Magnesium glycinate from Kirkman labs for 9 years to help with his hyper activity. It seems there is a lot of discussion about magnesium here. I want to try to figure out if he should stick to the glycinate or move to something else and how much he should be taking. I'm also hoping to see if there is anything else we can do to help him. Normally I would always be searching for ways to help other members of my family. But this time I need to do research for myself. My chronic constipation has gotten totally out of hand, and this is what I am going to try to get info for first. Recently I have started taking slomag and have found it very calming. But I'm thinking another form of magnesium could still be calming but help with my IBS-C issues. Also for a number of years the pain and spasms running down my left leg and hip, pain and swelling in my feet and hands have kept me from exercising. I used to love to walk and garden but now it just hurts to much. I've gained 30 lbs in just about 4 years. Right now there is a lull in my pain but it normally starts up again in the heat of summer. A number of years ago my Dr thought it may be arthritis since it runs in the family. But after running a few blood tests they now believe it is lupis. Anyway, I am glad I have found this site and have already mentioned it to friends at another site. Ciao for Now. |
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03-27-2010, 10:36 PM | #3 | |||
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Senior Member
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Hi again MsBees,
You do have a lot of questions that you are concerned about right now. Wow! Have you gone to our forum on ADHD and a few other disorders in children? Here: http://neurotalk.psychcentral.com/fo...aysprune=&f=39 No one can tell you what medication your son should be taking and the amount. That is up to you and his doctor. We do talk about Magnesium on here in connection with MS, or constipation, etc. I have a similar ailment to IBS-C and similar to Crohn's, called Collagenous Colitis or microscopic Colitis. It is not affected by nerves or stress, it just is a autoimmune disease. I take LDN now for two years and it is gone. I just had three biopsies and they could not find these C plates. They tried to add Lupus to my collection of autoimmune diseases because my ANA is around 1:640 and my ESR goes to the 70's at times. But there is a criteria you must meet to have Lupus, I only have a few. I think you should see your PCP to see why you are holding fluids and swelling. Perhaps go to a Rheumatologist to get more testing for Lupus and Arthritis. They have medications like Placqunil (sp?) and some more new ones for Lupus. Then there are a few types of Lupus too. Have you had you back checked for Sciatica? That back pain, hip pain, running down your leg could be that. There are so many diseases/disorders that you should be checked for, because of all your many symptoms. I hope you find pain relief soon. .
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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10-06-2008, 05:50 PM | #4 | ||
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New Member
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hi sally! thanks for the invite...I stumbled upon this site yesterday..ranting about Rx costs
I live in ORegon,have been dx. with ms for 13 yrs....had it for 23 yrs. 1st r/r now 2ndary progressive probably...cheers! hopefiend |
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10-06-2008, 06:18 PM | #5 | |||
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In Remembrance
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Welcome, Hopefiend ( love your name )
I've had MS a looooong time too. Come on in and join your new Family..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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10-22-2008, 03:26 PM | #7 | |||
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Junior Member
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Hi there,
I feel a little embarrassed logging in to this group as I don't yet have a definite diagnosis. All I have is a neuro - inflammatory condition and/or an autoimmune condition, possibly MS with MD, lupus and/or celiacs disease ........ . This is as far as I have got after 2 years of seeing neurologists and an endocrinologist for some two years. This lack of a diagnosis leaves me feeling desperate as I don't know how to proceed for the best or justify my condition to those around me. At the beginning of this year I had to give up my career and I now exist in a limbo which at the age of only 53 is very dispiriting. Currently, I have multiple white matter brain lesions, muscle wasting and weakness in my left leg, sensory abnormalities (burning, pins and needles, numbness) and periods of stabbing pains above my left ear. I also have occasional purpura on the top of my feet (lasting 3 days), hives from my shoulders to hands (lasting 45 minutes) and a swollen tongue and throat, leading to a husky voice. I wake each morning with really stiff muscles and find it difficult to not to sleep all morning. But worse of all, I have lost sexual desire and the ability to orgasm, despite having recently regained some feeling in that area. This has lead me to feign sexual pleasure to keep my husband happy and maintain my marriage. After two years, this pretense is proving to be a strain and my the sense of loss is enormous! Any advise/information would be appreciated. |
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10-22-2008, 09:02 PM | #8 | |||
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Grand Magnate
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hi merle,
welcome to NT. i'm sorry you're in limbo. have you had a spinal tap? i don't have any advice right now, sorry. but i'm glad you found us. hope to hear more of your posts. you might start a thread on the MS forum. i'm sure others may be able to help.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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10-30-2008, 11:18 AM | #9 | |||
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Member
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I met twinkletoes last weekend and she invited me to check out the support here. Thanks!
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"Thanks for this!" says: | Desinie (11-01-2008), NurseNancy (10-30-2008), Riverwild (11-22-2008), SallyC (10-30-2008), Twinkletoes (10-30-2008), weegot5kiz (10-30-2008) |
11-01-2008, 05:36 PM | #10 | ||
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Member
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Welcome Bombi, Thumper and Mom. We're glad to have you here, even though we're sorry for the reason you had to come. I'm sure you'll find it to be as helpful and informative here as I have.
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Closed Thread |
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