HI Sue! welcome! :hug:

:welcome_sign: Hi Sue! Welcome to NeuroTalk. We have lots of members here with MS so just join right in wherever you feel comfortable. :)

A big Welcome to all the new members. I was not on here for a while so I missed many of the new people. So I just wanted to say hi and glad you found us at Neuro Talk.

We love new people. I hope you post down on the main forum when you can. If you think any of the other forums on here can help you just ask. We have so many wonderful places you can talk about your problems, and/ or questions too. Nice to meet all of you. :)

.

Just a Newby
 

I am Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. :eek: Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.

I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past.

Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.:D

Best Wishes

Hello, Sally, my name is Margo..I have recently been kinda diagnosed with Multiple Sclerosis. The Neuro found 8 lesions on my mri, but my spinal tap came back negative. I have been so tired that it has been a super challenge to even go to work. I really feel drunk, and I hate the feeling. My kinda diagnosis has been rather frightful, for I thought I had a pinched nerve in my arm. I have been having a feeling in my hand that it is frost bit. However, this feeling only comes when I am sleeping, while awake my arm is just heavy and very tingling. My legs are weak and wobbly. If you could give me any information on mulitple sclerosis I would greatly appreciate it. My neuro really doesn't have many answers for me, and as scared as I am I need some kind of feeling of peace with this.

Thank you so much,
Margo

Hi Margo, welcome to NeuroTalk and the MS forum.:)

I can't help you with your DX, except to say, that, if your Doc is not a MS specialist, it would be a good idea to see one. It sounds MSy to me but I'm only a specialist in having this disease for a long darn time.:)

Come in and join us and we'll all try to compare notes with you and see what we see. Hang in there, you're in good caring company here.:hug:

so confused and frustrated
 

hi. i've been checking in here the past few months looking for answers, trying to understand what is going on with me. right now i am scared, nervous and just plain tired of feeling lousy. let me start at the begining and see if anyone can help me understand. last june i started to drop things with my left hand, a small area above my wrist appeared at same time with mild pain. dr didnt know what it was and sent me to ortho dr. when mri of wrist and emg was "ok". ortho dr. didnt know what was wrong with wrist either. he did xrays of neck (arm from elbow to fingers ached with tingling). dx: degenerative changes in cervical spine. "can't do anything more for you- go see a neurosurgeon :mad:. 1st neurosurgeon told me my problem wasn't in his realm of practice :rolleyes:. now both arms ache bad, can barely work and all tests come back "ok" or normal. new neurosurgeon in nov. did emg on left arm. omg - severely pinched at elbow. surgery to move nerve dec 3. had heavy legs (dead legs) for couple weeks last fall but it went away, well its back along with my foot feeling like ice. periodically it feels like hot water is poured down my calf but skin is fine. wake up with headaches last forever as well as both arms heavy and numb. this new symptom is the most annoying. my face feels kinda numb after novacain wears off on my cheeks towards ears. i am just so frustrated hurting all time and being ignored or dismissed by dr.s. i sa the neurosurgeon for less than 2 minutes, this time brought my list with me. getting mri of brain and cervical spine this tuesday. sorry so long but i'm desperate to understand and be understood. thanks for listening at least.

Welcome to NeuroTalk, Snookie.:)

Sure sounds like it could be MS, but your Neuro will do all the tests to try and determine that. In the meantime, hang with us and we will try to help you along the way.

:hug::hug:

Welcome Snookie (love the name) I hope you find answers. Dismissive MDs tend to be common and that makes me mad. Perhaps a visit to an MS center would be of value to you? Your regular MD could help you schedule it. If your regular MD seems tired of you, or dismissive perhaps you can search out a new one. Sometimes fresh eyes can be helpful.

Pull up a chair and stay a bit. :hug:

Welcome Margo and Snookie,
I'm glad you found us. You both are in the same situation. You have symptoms, pain, tired and more, yet you can't get an answer.

Everyone deserves to know what is wrong with them. You want to know why you feel so crummy all the time. An Ms Specialist in a teaching hospital might be the answer. They know what tests and the protocols for these tests to ask for them correctly.

They have seen MS and other neurological diseases in many patients and how it can present itself in so many different ways. No two people have the same symptoms.

If you feel that bad, don't give up. Some drs wait and see, over time, before they dx a disease. But get tested and keep the results and all tests, and keep a journal of symptoms. Good luck to both of you.

itsnevertoolate
 

Hi my name is Carol and I have MS. I have many questions for everyone on this site. I live in upstate NY and have 3 children. Single mom. two of them are grown 24 and 20 both girls and I have a son that is 15. I suffer from knee and arm pain since the summer. I suffer from a emotional disorder I think because I don't handle situations like most people. I also suffer with depression and cry a lot of the time. It scares me to be like this. I don't want family to see me like this and don't want to complain all the time. I just need to talk to people in my situation, so if your out there please let me know. Thanks, Carol

Welcome Carol to NeuroTalk and our little MS neck of the woods. Nice to meet you and have you here.

Come on in and join us, We are here for you!:hug:

Welcome Carol!
Do you take any medication for the blues and sadness? Do you get medication for the pain and other symptoms? Just because you have MS you should not have to suffer.

I hate to complain to my kids and family too. So I don't. I used to, but it gets old, and no one likes to see tears and hear complaints all the time, I can't blame them. I wouldn't like it myself. Plus they don't really understand.

Get some medication, punch a pillow to two, write a journal and rant on it, and come her and talk to us. We listen and we care. :)
Nice to meet you.

Hi, I'm new
 

Hi all, I'm new to this site, just want to introduce myself. I go by Korabelle, I live in NE Ohio, have been dx with MS since I was 17, will be 57 this year. Hard to believe it's been so long.
I am one who flat out refuses to give in or give up. I do what they tell me not to, what they tell me I can't and shouldn't, and so far, I'm doing pretty darn well. Still considered RRMS, still up and around, doing for myself. Have 3 grown adult children, one beautiful granddaughter and an incredibly handsome grandson.
Have been and still visit many sites, found this one while researching multiple site tendonitis.
Hope to meet some new friends, and perhaps even some old ones here.
Take care,
Korabelle

Hi Korabelle and welcome to NeuroTalk! :welcome_sign: Glad you found our site and hope to see you around here alot. We have a large community of MSers here that will be happy to show you around if you need assistance. :)

Welcome to NeuroTalk, Korabelle. Nice to meet you and have you here.:)

Come on in and join us.

Hi and Welcome Korabelle. We're glad you found us. Many of us have MS for many, many years too, so you found the right place. :) I hope you stay and join us. We are a nice group of people. Friendly and helpful too. Nice to meet you. You can help us too. :)

j fitz
 

:) happy to read your letter. I also am on avonex, and have seem to have good results. My brain does not work like it used to and i cannot seem to remmber to spell sometimes, however, i have a lot of support from my family.'

i have grandchildren, boys, and i get to keep them some. They are just five and seven years old, in school most of the time, but i keep the yougest for a few hours in the morning until the bus comes. My daughter and husband both work., in this economy, they have to. Mt daughter is a paramedic, so i am not worried getting help in case i fall ill.

Good luck to you

Hello JFitz, so glad you joined us.:)

My youngest Grands are also boys 5 & 6. What a handfull, huh?:D

It sounds like you have a great supporting Family.

Welcome, stay with us for more support, info and fun.:hug:

Hi and welcome to NT! Glad you're here and hope to get to know you. :welcome_sign:

This thread is almost to the 1,000 post mark!! :) Shall we begin a new "welcome" thread and put a link to this original thread in the opening post?

New and Hello
 

Just joined. I have had MS for (well that I have known about) for 16 years. Have been on LDN, Copaxone and now Tysabri (54 infusions). Trying to find others in the hight 40's and 50's on Tysabri to see how it is going for them. My husband's company transferred us to Germany, so the treatment here is a little different. Need some English support. :)
:grouphug:

Hi Kara! Welcome to NeuroTalk. :welcome_sign:

That must be difficult being in a new country and having to find new healthcare....plus the language barrier.

We have folks from all over the world here but we all understand MS. I hope you'll continue to participate here. There's alot of support and understanding between members. :hug:

Welcome Kara, nice to meet you..:)

We have a Tysabri sticky thread here, I think you may find helpful and please do join us in the Stumble Inn for some fun.:hug:

Hi Kara, Welcome to Neuro Talk. We love new people. I hear Germany is beautiful. My son went on vacation there. Is it a permanent stay or temporary?

As for Tysabri, many people on the sticky Thread, as Sally said, talk the same talk. You found a great place. Nice to meet you. You can post on any place on the main menu. Take care. :)

HI
 

Hi Everyone, I just found this site and joined today. I am 34 and was diagnosed with MS when I was 21. I am doing fairly well. I just had a bout of optic neuritis though. I had an operation in Dec and I think the stress of it caused the flare up. I had the solu-medol infusions and then the steroid taper. My vision has improved but its still not back to the way it was before. I am hopeful though and honestly I am just glad it is only in one eye this time. =) . I have had a high white blood cell count for quite some time now and I am wondering if anyone has heard of a correlation between a high WBC count and MS. If so please let me know. Thanks, Jessica

Hi Kat, and Jes, how wonderful to have you here! I hope you will both pull up a chair and drag out your reading glasses. Loads going on here. I will see you in the Stumble inn for some light hearted laughs when youre done. :hug:

Nice to meet you Jessica..:)

I haven't heard about High WBC being implicated in MS, but I have heard that the interferons(Avonex, Betaseron or Rebif), the meds taken for MS, can cause high WBCs. Are you on one of those meds?

Please come in and join us. :hug:

Hi Jessicat! Welcome to NeuroTalk. :welcome_sign:

I can empathize with the ON. I had a bout of it last year. I hope yours clears up soon. When you're waiting it seems to take forever. :rolleyes:

I hope you'll continue to come here and share your stories and questions with us. We're all in this big boat together and try to help each other cope. :hug:

Hello to new people
 

Hello to all the new people. I am glad you found this site. Lots of good souls, and good information. I live in Fla, west coast. I have cervical issues and skip around on the threads. I do not think any thread minds when you come into the dicussion. I have met alot of new friends here. Hope all of you have less pain and a brighter day. ginnie:)

Hi everyone
 

Its cally nice to meet ya, sorry for not doing so sooner ya all let me tell ya a little bit about myself first not very good at this dont know how yas put that cute stuff on here makes me giggle i have cm an had symtoms sense i can remember but they told me it was migrains bad disc carpal tunnel ms finally i just scooped all the mri up took to specialist they seen it right away herniated brain, or what they call brain in the neck lol anyway 6mths post op still having headaches an a little fluid stll there well now that ive went on about me hope to talk to yas soon cally.:hug:im here in tampa

Hi cally
 

[Hello cally, I am just south of you on anna maria, glad you found this site. I have cervical issues and found this site last fall. I have met lots of good people, and good information here. Nice not to have the storms threaten isn't it? glad to meet you cally, ginnie

Hello and welcome, Cally. So sorry about your CM. Now that you've had the operation, will your symptoms and disease improve? I have a friend with MS and CM, she hasn't had the operation, though.

:hug:

Hi Cally! Welcome! pull up a chair and read a spell. :hug:

emg
 

Hello, and I am glad you found this site. Lots of people will give you their opinion on emg test. I was a stubborn kind of patient. My firsts neuro stated he would not help me anymore unless I received this test. I did not need more shocks to tell me I am having shocks. I further stated I am not a cow, of need of a cattle prod. I am a human and the SS camps were for torture not hospitals. There are some things I just don't do, and that was one. I was afraid and I didn't like the surgeon anyway. I managed to get my surgery, which was complicated, without the benefit of that particuar test. There are other tests more humane. This does make me an uncooperative patient, but then I am the one responsible for what direction I take. Telling me to take the test or else, didn't go down well and I actually said no, and walked away for good. I just really believe in the humane treatment of people in general. The testers hearing shrieks must be immune to pain. I am sorry to be negative, usually I am a positive person, but I would seek other doctors before I willingly subjected myself to that. ginnie

Eric Intro
 

Since this is a Newbie thread I wanted to give a little background info. I have 5 amazing children, can't believe they came from me, and was diagnosed with M.S. at age 30. My symptoms started with a blind right eye, then progressively became numb from my toes to up to my chest all the way down. I figured I had MS and told me wife. She is great and I'm thankful for her. The MS I have is RR. My memory is causing me difficulties and I plan to reduce my private practice to working 4 days a week. I needed to get a wheelchair in the last two weeks because of right foot drop. I'm happy to read a lot of positive posts by people on NT. I love to read and play with my children. I was happy to have M.S. confirmed because it meant I didn't have a terminal illness. I thought it was a brain tumor because I've always had a very good vocabulary and keep losing words. I hope to enjoy coming here and all I can learn from you all.

Thank you,

Eric

Welcome Eric, nice to have you here.:)

It's good to hear that you have such a great support system and loving Family, at home.

Don't forget to join us at the Stumble Inn for a little non MS chatter, also.

:hug:

That sounds fun. How do I post a thank you on a thread?

bottom right corner of the thread are a couple of buttons that say "quote" or Edit or THANKS! just click thanks!

I see it now but didn't see it on the lower right before. Thank you. :) The MRI was LONG today. It took 2 hours and 15 minutes so do the brain and spine. I was dead tired and got some rest during the MRI and was able to drive myself here today. I've taken Amprya 3 days now. :)

New Here
 

Hi, I just joined this group and wanted to say hello. I was Dx'd RRMS this past January, and I am currently on Copaxone. I live in the Northwest, have a great husband and two dear children under the age of 6. I am still actively trying to learn about this disease, and coming to terms with the long term implications.

I look forward to getting to know everyone :)
JSSL

Ps. I tried to edit my signature, but it is not an option...does anyone know how to get this option turned on?