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Old 05-03-2007, 12:53 PM #1
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Hi Beth and Welcome to Neurotalk.

Another Buckeye here. ...Born, raised and still here. With your Family here, it probably gets lonesome, sometimes. I'm glad you have your SO there with you.

Where in Ohio.? I'm in SW Ohio.

Join right in anywhere, Beth. Looking forward to getting to know you.

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Old 05-03-2007, 02:11 PM #2
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Thank you SallyC and Leeanne for the really warm welcome.... I really appreciate it.... I look forward to learning more from all of you.

take care....
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Old 05-04-2007, 12:33 AM #3
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Default Sally from Ohio

Quote:
Originally Posted by SallyC View Post
Hi Beth and Welcome to Neurotalk.

Another Buckeye here. ...Born, raised and still here. With your Family here, it probably gets lonesome, sometimes. I'm glad you have your SO there with you.

Where in Ohio.? I'm in SW Ohio.

Join right in anywhere, Beth. Looking forward to getting to know you.

Sally
I was born and raised in Cleveland. When I moved out I headed east to Lake county and lived in several of the cities before moving out here. Most of my family is still in Ohio, but I have some in Iowa and a niece in Arizona.

My family tended to baby me and I let them. Since moving out here I've become more self sufficient,I had to be. With my SO on crutches I have to lug the groceries etc. Since I had my worst MS year yet in '06 I just want someone to take care of me sometimes.

Going to stop whining now.
Beth
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Old 05-06-2007, 02:13 AM #4
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Hi Beth and Welcome to the group!

You'll find lots of friendly, caring people here along with good information. I too know about living alone with this "lovely" disease. It requires lots of imagination and endurance but we can do it!!!

Good luck in your journey and will "see" you around!
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Old 05-12-2007, 06:00 PM #5
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Default LDN and MS/new to group

Hello everyone, My name is Aletha. My husband has had MS now since Sept. 2004. He was one of the lucky ones, as he had miraculous success with LDN. I would love to post his story here if everyone does not mind my doing so. It is a bit lengthy however as it is about 2 pages long. I have also created a sort of "welcome e-mail" for those wishing to know more about LDN. I would be more than happy to send that along to anyone that requests it. My e-mail is Aletha@redshift.com.

My mother went on LDN for Parkinson's about 2 months ago and she is feeling better, and has more energy. Our hope is of course that she has no more progression.

This site appears to be very positive and caring. I love that. Kindest of regards, Aletha
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Old 05-13-2007, 06:34 AM #6
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Hello Aletha and welcome to NeuroTalk.

Feel free to start a thread of your own. We like getting to know our new members and hearing their story.
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Old 05-17-2007, 09:22 PM #7
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Hi Aletha, how nice of you to come. This is a lovely bunch and there is a ton of great information here.
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Old 05-18-2007, 08:10 AM #8
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Hi Aletha and Welcome....
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Old 05-18-2007, 04:36 PM #9
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Default Hi

Hello Im not really new to boards those who used braintalk will know me as Row boat or roe.

I have been labeled prob' ms since 99' or sometime there after. Multiple brain lesions, neg lp done early on, neg emg and other stuff.

Just lots of wonky sxs mostly right sided spasms contractions, numbness or nerve pain and heavyness, fits of vertigo and walking unbalanced and a tremor of head and hands.

I have developed good sided sxs now last few years.

Anyway wanted to say hi and let everyone know who I am, just decided to reg' as sloth it suits me sooo well LOL.

Thanks for being here great forum how old is it?

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Old 05-31-2007, 09:28 PM #10
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Default hello to this group...

I am DizzyDean, new to this group.

I have RRMS, Sx started perhaps 17 years ago, but no Dx until a few years ago. Its been mild, more nuisance than disability really, my episodes/relapses seem to be spaced a few years apart so far. Over the years Sx have included ON, Lhermite's, numbness, tingling, tinnitus, but nothing that hasn't resolved after a bit.

Today I take LDN and a ton of vitamins., but I am "toying with tysabri" and "considering copaxone". I know that sounds like a weird dichotomy, to choose either the mildest and arguably least effective drug, or instead choose the most effective and potentially most dangerous one. I'm still negotiating all of this with my Dr, who doesn't seem keen on my doing tysabri as a firstline therapy but would probably go for it if I absolutely told him no way to ABCR.
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