Hi, I am Quix. I am a senior member of another forum like this on MedHelp. Until 2001 I was a pediatrician, then was floored and disabled by Autoimmune Inner Ear Disease (documented to be peripheral, so not MS). In late 2004 suddenly couldn't lift my right leg and that was the beginning of MS for me at age 52. My original Neuro, tho esteemed, was rude and dismissive of my symptoms (altho he diagnosed RLE weakness and spasticity - who can fake spasticity?) misread my brain MRI as normal and didn't want to do a LP which would "undoubtedly be 'unrevealing'". I found another, because by this time I had R hemiparesis, incontinence, and L atypical Trigeminal Neuralgia (constant boring pain rather than lightening jabs of pain). I am on Avonex and hanging in there. The fatigue and the original vertigo are the worst part, keep me pretty homebound.

Currently on the upside of a new short mini-exasperation.

Just wanted to say "Hi." I was notified that Snoopy posted a quote from one of the articles that I wrote for my forum. I try to put hard topics into langauge clear to people without a hard science background.

Hope I posted in the right place.

Quix

Hello, Quixotic and welcome to NeuroTalk. :)

Apparently word gets around MS forums quite quickly:rolleyes: :ROTFLMAO:

:welcome_sign: Quix

Any friend of Snoopy's is a friend of mine. Sounds like you've got quite a story. Sorry you've had to go through so much.

Look forward to seeing you on the boards.

:hug:

Hi I'm a Newby!
 

Hello all! My name is Crystal and I have been dx'd since Feb 2005 after going numb and having a bout with optic neuritis. I started on Tysabri in June 2007after all of my MRI's looked horrible. I was doing great on Tysabri until Feb 2008 when I started going down-hill. I have had extreme pain in my legs, spasticity, losing my memory, depression, insomnia....I'm sure the list could go on.

I thought Ty was my miracle drug, I know alot of people feel this way.

Am I the only one who has had a relapse while on it? Is there anyone else out there? :(

I'm excited about finding this board, you seem like a great group!

Welcome CB, I'm so glad you found us..:)

Come on in and join the club.

Be sure to check out the Tysabri Sticky thread at the top of the list. Someone will answer your question..:)

Welcome from me as well Crystal. I see that you've already found the Tysabri thread, so hopefully you'll get the answers you're looking for.

Welcome again.

Hi Everyone,

I am new to the forum and just posted tonight for the first time. Here is a quick run down on me:


- diagnosed with MS, a couple of years ago, about 6 months after the sudden onset of neurological symptoms

- started Copaxone after positive LP and brain MRI

- undiagnosed about a year later and stopped DMD therapy (complicated)

- have had several bouts of ON and persistent double vision

- developed brain stem lesions that have been quite a problem

- married and a mother to two wonderful boys (young men really)

- still working but with severe fatigue (I need the fabulous benefits)

- have a great medical team that follow me very closely and do all that they
can to manage my symptoms and find my diagnosis (MS is still not ruled out)

- lucky to have incredible friends and co-workers

- happy to be doing as well as I am and hoping to be healthy one day


Thanks for the welcome and I am looking forward to getting to know all of you. I see that I have much reading to do here on the introduction thread!

Pacifica

:Wave-Hello: Hello Pacifica and :welcome_sign: to NeuroTalk.


I know I welcomed you on another thread but thought I would do it again since you were kind enough to post some information about yourself ;)

Welcome Pacifica
It's sounds like you've gone through and continue to deal with alot. Glad you found us. Looking forward to seeing you on the board.

:hug:

Dear LeeAnn and Beth,

Thanks for taking the time to welcome me. I just returned home from work and saw your posts. Yes, the last few years have been quite a ride. Not sure I would recommend this particular ride to anyone but I know many on the board have gone through much of the same.

On the other hand, it could have been much worse so I try to remain positive and thankful. I have taken my focus off of getting a "diagnosis" and instead focus on my well-being.

Now, I am going to watch my favorite hockey team in the NHL Playoffs. I love to watch hockey with my sons. We even went to a playoff game live last week. What a great time that was.

Bye!