Hi Adrian and welcome to NeuroTalk!!


http://i283.photobucket.com/albums/k...eBirdhouse.gif

Welcome Que, nice to meet you..:)

Been running through these posts most of the summer trying to understand what the Dr.s have been saying. Definitely more information here.
In 2004 I was diagnosed with Guillain Barre Syndrome. Have yet to see that mentioned here. I spent most of the last 4 years with GBSers on another site.
Made several trips to University of Wis. Hosp in Madison, Wis this summer to find out I had Chiari 1 Malformation. The last few years I thought I was dealing with GBS residuals. So this is a whole new language for me.
I go back for a few more tests in a couple weeks. Supposed to be combining that visit with a 2nd appointment with the neurosurgeon and pre-op stuff.
Very scary. Our last visit the the NS seemed cut and dried. Surgery was obvious and every thing would be fine. But reading all these posts has me really worried.
Anybody had any experience at Univ. of Wis.?
nanaj

Newbie
 

Thank you , thank you to whoever put this website together. It's a wealth of knowledge.

My uncle has secondary-progressive MS. He was being treated with chemotherapy with Mitazantrone, but had to stop the treatments because they were damaging his heart. I joined the website to help him stay informed about new treatments for SPMS.

Welcome to NeuroTalk, Bovellido. So nice to have you here..:) Sorry about your Uncle and I hope we can be of help and support for you both.

:hug:

Hi Everyone
 

My Daughter gave me the name Oopsalot because heehee, I am a klutz!

I was diagnosed with Primary Progressive MS Aug 2007, but have been having symptoms dating back to High School.

I am 42 yrs old, single mother of 3 kids (one boy 21 who lives here), I have 2 boys Kyle 17, and Jake 16, and Mary 8.
Also have A giant Husky (I call him Bumble Butt or when hes' being good my big baby lol).
4 cats, a Ferret, and a Guinea Pig...all spoiled rotten:rolleyes:!

I have seen way to many doctors, given way to many dx'es in my yrs (would make your head swim).

I am still trying to figure out this site, this could take my mushy brain a little while :o.

Having a brain block right now, so I will close.

Hope everyone has a good day!

cute name oops.
welcome to NT.
glad you found your way here.

we're a wealth of knowledge, experience and support.
hope to hear more about you.

Welcome, :Oops:...See, you have your own smiley...LOL

Sorry I'm late but just got back on line last night, after a weeks Elec outage, due to a big windstorm..:(

Please stay and join the Family..:hug:

Hello Neuro Talk members
 

My name is Jason, I am 32 years old, I live in virginia. I was dx 6.5 years ago, I am married and have two young boys. I have been reading blogs, attempting to get more familiar with the filing for disability process, I am currently on short term disability, through a policy I carry through the company that I am employed through. I recently (2 months ago) had my 3rd cycle of solu medrol (iv steroids), this most recent cycle of steroids has not had the same affect as the first cycle, all my symptoms are still with me, anyway just looking to speak to peers that have gone through or are in process of applying for ssdi benefits. Well nice to meet all of you :)

So nice to meet you, Jason and Welcome to NeuroTalk..:)

Come n in and start a thread, asking about SSDI. There are many here who are either on it or, in the process, as are you.

Nice to have you with us. :hug: