Hi Jason! Welcome to NT!

Jason, that's my son's name, it's nice to meet you

Sorry it has to be under these conditions, however. I hope you find NT as warm and welcoming as I have.

hi jason and welcome to NT.

i'm sorry the meds aren't working so well this time.
i went thru the ssdi process a few yrs ago.
the one thing i would recommend is to keep records on yourself.
like reports of tests and dr visits.

when i applied i found out the hard way that some of my records were incomplete. i got turned down the 1st time and got a lawyer to apply the 2nd time when i was accepted.

also, make sure your dr is documenting in your chart the problems you're having. ssdi will look for that.

sorry for the reason you're here but hope to hear more of your posts.

Welcome Jason to Neuro Talk, you will find many helpful kind hearts here. Nusrenancy made a good point with SSi keep records so when you need toask you about visits or test, you can show them and or tell them

again welome to nuero talks ms forums

Hi, glad to be here and meet some new friends.

I was diagnosed with MS in 2003 when I was 56. Still getting around but I use a cane and sometimes a walker. I used Avonex for a year but developed an allergy so I'm not taking anything now. I'm afraid of both Copaxone and Tysabri - stubborn I guess! I was one of the lucky ones who got approved for SSDI on my first try.

MS has really messed up my eyes, especially the right one. I've had 3 bouts of ON, retinal degeneration, double vision, and for the past 18 months I've been treated for uveitis in my right eye.

Since July I've had a problem with infected sebaceous cysts under my arms and on my scalp. Have had 5 surgically removed (ouch!) but they keep coming back as soon as I finish the antibiotics. Four new ones started this week - I finished the last round of antibiotics last Sunday. Just don't know what's going on.

Guess that's all for now. Talk to you soon.

Hi Jamma, love your name.. Welcome to NeuroTalk.

I'm so sorry as to why you are here but, so happy you found us. We are all here for each other and now for you.

Come on in and join he party..

welcome to NeuroTalk opps, jason, and jamma ...

surf the threads ... you will find many friendly and informative people here AT nt ... if you have any questions feel free to ask ... someone will have an answer or will know where to direct you to get an answer ... again ... welcome to NT

hi jamma,

welcome and nice to meet you.
sorry about your eyes, and this cyst problem.

i'm glad you got your ssdi so fast. i was dx'd at 53.
hope to hear more about you.

Hi everyone, about a year ago I joined Neurotalk only to "forget" about it.
On another forum I am lindaincolorado, there someone mentioned this forum and it jiggled my memory .

I was diagnosed with ms in 1988, after about 6mths of an exacerbation (sp) I remitted for 13 1/2yrs-thought I was mis-diagnosed; then about 6yrs ago it raised it's ugly head. I wasn't put on any meds (Kaiser-Denver) for 1 1/2yrs, then 2 1/2yrs Copaxone and now been on Tysabri for 2 yrs, which has been a blessing !! I am also in the Fampridine extended study to help with my foot drop and it too, is helping me (walk).

If you notice I do not capitalize ms (or any other diseases). I refuse to give any respect to disease.

I want to stay on top of my disease and am thankful these forums are out there to help. I look forward to reading and posting on Neurotalk.

Thanks,
Linda


--------------------------------------------------------------------------------

welcome Jamma and Grammie to the neuro talk forum, hope you find this site as rewarding as i have. any questions do not hesitate one moment to ask welcome to both of you

Welcome back, Linda.. glad you found your way back home..

Come on in and enjoy..