NeuroTalk Support Groups - Hi Newbys....Please Introduce Yourselves

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Hi Newbys....Please Introduce Yourselves (https://www.neurotalk.org/multiple-sclerosis/4543-hi-newbys-please-introduce-yourselves.html)

Hi Kats and welcome to NeuroTalk! I'm so glad you've decided to join us.

We have a large MS community here and offer support to all who come. There are quite a few here on Copaxone. It was the first DMD I tried but it didn't work for me. Everyone is different, though.

Please post more about yourself so we can get to know you better. I'm glad to read that you're in remission. I hope it lasts for a l-o-n-g time! :)

Thanks for the kind welcomes! It's weird...I don't feel like I'm in remission because I'm just now putting together my symptoms as MS...I just turned 36 and have lived in Seattle for 1 yr after relocating from CA for work. Like I said, I've only been on Cop for 1 week but I really hope it continues to go well. The reason for being on meds now is the location and size of one of my lesions - it concerned the doc so I started on meds as soon as I could. I feel very lucky to live in a place with so many MS clinics and researchers!

Quote:

Originally Posted by HenHouseChick (Post 538477)

I have many questions about MS and some of its effects.

I am new here but not to MS. It has been living rather silent for a few years and then suddenly it was all over my life....again.

I am looking fwd to finding some of the answers and advice here.

Thank You for offering such an informative place for those of us in need.

Hello, HHChick and welcome to NeuroTalk :)

You will find quite a few of us who are "oldies" with the disease.

Quote:

Originally Posted by kats (Post 539316)

I was diagnosed 2 months ago and have been on Copaxone for 1 week - so far so good! I am curious if there are others on here with my same situation - I have no symptoms at present but was diagnosed due to tingling/numbness in the past coupled with 2 MRIs showing active lesions. The cure is sooo much worse than the disease...at least for now. So far the Copaxone is going great but I hope I don't have to go back on Solumedrol..that was rough...I'm looking for to "meeting" all of you!

Hello, kats and welcome to NeuroTalk :)

You do know that Copaxone and the other Disease Modifying Drugs (DMDs - Copaxone, Rebif, Avonex, Betaseron, Tysabri) are not a cure.

These drugs MIGHT slow progression, MIGHT decrease relapses and their severity and MIGHT reduce the amount of lesions.

Hoping the Copaxone works well for you :)

Hi I just joined because I think I am starting to have my third episode. The doctor was no help in letting me know what to expect so I don't know if what is happening is even related to my MS. I don't have a lot faith in my doctor or maybe this is just how it is in the beginning.
Look forward to meeting you all.

Quote:

Originally Posted by Notaclue (Post 540424)

Hi and welcome to NeuroTalk!

Unfortunately, MS is a very individual disease and no two people have the exact same symptoms. What symptoms are you having that lead you to believe you're beginning your 3rd exacerbation? It might be helpful if you keep a daily journal of your symptoms so that you can relay that info to your doctor and he can update your medical file with it. That way, he can compare this episode with future ones (if you have others).

Take a look around and join right in....we're glad you've decided to join us! :)

Hi kitty thanks,
I have this horrible onset of sleepiness where I can barely keep my eyes open it is so bad,,,then 10 minutes later I am fine. Also when I first wake up I am very very clumsy and have fallen twice.
any help is appreciated.

:Wave-Hello: Hello, Notaclue and welcome to NeuroTalk :)

Welcome to NeuroTalk, Notaclue (love your nick.:D) So sorry for your illness..:(

Are you seeing a MS Neuro specialist? Just make sure he/she does all the tests necessary to make a clear diognosis and if he/she doesn't, get yourself another Neuro.

I'm glad you are joining us..:hug:

http://i489.photobucket.com/albums/r.../Welcome-7.gif

Hello kats and notaclue, and welcome to the MS Neurotalk forum! This is such a great place, and I hope to see you around. Feel free to join in anywhere.

We're so glad you found us! :yahoo:

Hi Snoopy! Thanks for the info - I do understand that Copaxone (or any of the other drugs for that matter are not a cure)...I was just getting used to it...it's almost the end of my second week and I'm getting into a routine and not freaking out with the site reactions...Now I know what to expect so it's much easier...I'm starting to figure out that this is a very unpredictable disease!