Limbo...
 

Hi all,

I'm still in limbo and looking for information and support. To make a long story short, after 5 years of progressing symptoms, I'm in the final stages of a full work-up and waiting for answers. In the past few months I have seen two neurologists (the first one was a jerk, so we requested a second opinion), a neuropsychologist, a rheumatologst, an ENT and a Vestibular Audiologist... and now we are back to the neurologist again because everything points to some type of central nervous system problem... and the "M" word keeps coming up. Symptoms include fatigue, pain/numbness in my hands, stumbling, dropping things, ringing in my ears, vision problems (nystagmus and oscillopsia) and some pretty significant cognitive changes with my short-term memory and sequencing abilities.

I see the neurologist again on Thursday and they are talking about a lumbar puncture looking for "bands" and evoked potentials. My MRI showed only one lesion, but they said something about the strength of the original MRI not being what they liked. Does this sound like they are looking at MS?

I'm really at the point where a MS diagnosis would be welcome, rather than being in this limbo of "we know something is going on, but we don't know why".

Thanks!

Welcome, Plewmom, nice to meet you and happy to have you join us.

We've all been where you are and some of us are still waiting fo an absolute DX....not me, I'm an oldster at this disease..:mad:

Good luck thursday and be sure to report back in. In the meantime come in and join us in our MS banter and fun.:hug:

Hi! :D I'm new to the forums....I'm kinda in limbo-land. I started having symptoms at the age of 17, but it came and went...then episodes started getting more frequent, and the past 6 months have been pretty bad. I just turned 21 and I can no longer walk for long distances or do much activity.

Lupus and all other blood-test things have been ruled out.

Annoying limbo-land!! :rolleyes:

Welcome, Hoshi, I'm so glad you're here..:hug:

Tysabri
 

Hi, I'm Harryp the aged grandfather of 4 lovely grandchildren one of whom sadly suffers from MS. I am researching the disease in order to be of as much help and support to her as possible. She has been perscribed "Rebisf" which she took for 3 1/2 years when it ceased to be effective she changed to "Copaxone" with no success. Her Neurologist advises that she should move onto "Tysabri" and this causes her some concern as she fears some of the serious side-effects associated with that drug!
My object in joining this site is to gain as much knowledge as I can from personal experiences with "Tysabri"

Harryp

Welcome, Harry. My Grandpa's name was Harry, but I am, also now, a Grandmom of 8....4 of whom I see on a weekly basis. :)

I'm so sorry to hear about your Grand's MS. There is an info and check-in thread for Tysabri. You are certainly welcome to read there and ask question. There are many here, who are on Tysabri and I'm sure will be happy to talk to you about it.

Again welcome!!:hug:

New to all of this........
 

Hi,
I was dx on jan 20th with RRMS. however, I am not sure it is correct...I have a second opinion scheduled for march 17.
I have a history (last 10-15 yrs) on neck/back/shld pain, with numbness and tingling in arms and achy/crampy legs, migraines.
more recent, frequent and leaking urine, blurry/double vision. Dx of Optic Neurtis (mild) only dx because of mild color issues, and mild afferent pupillary defect. no inflamation seen on optic nerve.
neuro exam showed: hyperactive deep tendon reflexes, mild ataxia, positive hoffmans, positive babinski, absent abdominal reflex, abnormal SSEP.....but normal VEP, normal auditory EP. low B12, MRI with few subcoritcal lesions, normal spinal tap.
It seems that so many of my tests are border line.....
Anyone out there with similar findings?

I should also say, that I do have three herniated discs that could cause some of my symptoms.....see why I am confused?

Welcome to NeuroTalk and to our MS Home. :hug:

You're probably not the only confused one. It can take awhile to get a deffinate MS DX. All of your symptoms together, sound like and look like MS, but there are mimickers.:confused:

Stick with us and let us know how the process goes for you and we will try to help you hang in there. :)

Hi and welcome to NeuroTalk! It can take a while to get a definite diagnosis of MS. Hang in there and keep coming here....we all understand and it helps to be able to talk to others who understand. :)

hello and welcome to those who I missed coming in. :hug: