Hi Juanita, and welcome to the neighborhood. This is a good place, and you'll be glad you came. I know you'll find lots of support here!

Welcome to our Club, Juanita, so nice to meet you. My first symptom of facial numbness, was in 1964 :eek: yes I'm that old.:D

Come on in and join us anywhere, please.:hug:

Hi Juanita and welcome to NeuroTalk. I've had ON, too, and it just stinks! I hope you'll find the friendship and support that we all have found here. Hope to see you around the forum. :)

Hi Juanita and welcome! Pretty name. It sure took you many years to get a dx of MS. I am sure you did suffer a lot. I, too, had Optic Neuritis twice. It didn't last too long, but scares the heck out of you. :eek:

I'm so glad you found us. We love new people. I hope we can help each other. We are a very caring group of people.
Nice to meet you.:)

Hi Juanita and Welcome to NT! I'm sorry you have to be in this "club", but this is a great place for caring support. Yes, I've had optic neuritis twice also, once a long time ago, 1976, before MS was even mentioned. Hope to see you around and get to know you better! :)

Hi
 

Hi, I was diagnosed with MS in January 1998. I didn't start medication until after my second child was born. Started Avonex in 1999. Took that for about 6 years until I had a big attack and my neuro switched me to Rebif. I have been on that for the past 5 years. I have to admit that I wasn't the best at taking the shots three times a week. I recently had a bad MRI and now my neuro wants me to swith to either copaxone, Tysabri, or gilenia. I know I can't do copaxone. If I was not good about 3 times a week I'm sure I would be a nightmare if I had to take a shot every day. I am so torn between the T and G. I would like to take the G but am worried because it just came out and because of risk of infection. Have been trying to research my options and came across this board. If anyone has any input I would really appreciate it.

Thanks,
Lisa :)

Hi Lisa and welcome to NeuroTalk.:)

I'm sorry that the MS Meds arent working for you so far..:( That's a long time to be shooting yourself for nil.:(

I don't have any suggestions, other than LDN, because It has help me to stay stable, when the DMDs did not.

I hadn't tried Tusabri and for some, it works and seems to be a good thing, but for some, it does not work at all and then of course, there is that looming risk of contracting PML.

I hope you stay right here and work it out with us. There are plenty of people here on one DMD or the other, who will tell you of their experience. We will support you, whatever method of treatment you choose.:hug:

hello Juanita and Lisa! Welcome to the club house. Pull up a chair and join us. :hug:

I just stopped taking copaxone after many years, and a failure off of Betaseron. since I had a bad reaction to the Beta, I am not eligible to do Ty. I cant advise you on Galina other than to say I am hanging back and waiting to see what happens when they put a much larger group on it. The clinical trials were so small and a tight knit, well chosen group. Lets see what happens when everyone gets a chance at it. Please read, read, and re read all about it. it carries alot of risks, just as Ty does. Its a choice that deserves great research before its chosen.

Welcome to the club house!

Welcome Juanita, I have had ON several times. Come on down to the main forum, and ask away! we love questions. :hug: