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#81 | |||
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In Remembrance
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Welome Sloth. you made me laugh right out of the shoot, so I love Ya already.
Welcome to all the other newbys, I may have missed. I'm sorry as to the reason you are here, but happy to have the company. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#82 | |||
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Magnate
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Oh Lordy, I just now figured out that I didn't post on the MS side of the board, but under general...so here I am again to intro.
I have been diagnosed since Sept. 2004 after an astounding sudden bout of ON. I never had any symptoms before that until I looked back and realized that mebbe some of the strange stuff that went on with my body wasn't just from beating it all to hell. Things have gone downhill from there but if I have to have MS, then this is a good time to have it!! I go for my first infusion of Tysabri in THREE days and after waiting since Feb 2005 to get it I say IT'S ABOUT TIME!!! I am, going to be pretty old soon... ![]() I like chocolate, whitewater, stars, smoking, drinking, eating and sex... ![]() I am tall enough (6'2) but I could stand a few more inches of height to match my weight. ![]() I like to stalk people and I have a victim in mind right now who comes here...shhhhh ![]()
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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#83 | |||
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In Remembrance
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Welcome to Neurotalk, RW.
![]() I hope Tysabri helps you to hold back the monster, until a cure comes along. Oh, and no problem on the stalking. It's a requirement here. ![]() Looking forward to geting to know you.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#84 | ||
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Member
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I introduced myself on the general neurotalk intro, before I figured out what was what.
I'm Greta. Been hanging out at a couple of other messageboards for the last few years. I was dx'd by accident in 2001. Went in with headaches and came out with MS. I have a bunch of lesions, a positive LP, but no symptoms and no exacerbations. I started on a DMD within a year of my surprise dx and the Swank diet a year after that. I'm now 5.5 years into MS and I still have had no MS issues. My only MS symptom is fear of the future/unknown - which I deal with by hanging out at MBs and chatting with others. Good therapy. I have 3 dogs who are practically perfect in every way. Unless they are busy vomiting on something - in which case, you'll hear me kvetching. 2 10-yr old greyhounds and a 2-yr old pug. They keep me busy and always laughing. I'm married, but we have no kids at the present time. We are in the process of adopting, but it's a long wait. I'm pretty active - do a lot of walking and am getting more and more into kayaking. Life is good. I have a mom with SPMS. She was benign for 20 years and then for the last 15 years has steadily gone downhill. Life is hard for her, but she is my inspiration. She doesn't know I have MS - and it's best that way. I'm really glad to have found this place. It has some old as well as some new friends. ![]() |
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#85 | |||
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Wise Elder
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Hi Gerta!
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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#86 | |||
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In Remembrance
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Welcome Greta, glad you could join us.
![]() Your story sounds a little like mine except I'm the Mother with SPMS after 17 yrs of remission and my DD is non symptomatic MS, at the moment. I'm not going downhill anymore, though, since I've been on LDN. Get your Mommy some, it may help slow her progression. BTW my Daughter (36) has been on LDN from the beginning.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#87 | ||
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Member
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Thanks Sally - I've been thinking of getting my mom on LDN for awhile but haven't made the effort to pull together the necessary info. Her neuro is super cool and would probably be very open to it so I need to get off the pot. She could use some symptomatic relief.
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#88 | |||
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Magnate
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Welcome Greta! Welcome everyone! Welcome Taffy!
Have some brownies! Your Welcome Wagon of Chocolates will be delivered soon! Yeah! I get chocolates!!!! Wow...another intro, how fun! I like this place! I'm Taffy and I like chocolate and I have Ms. (tapping fingers on desk) What is taking that Welcome Wagon so long?
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#89 | |||
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Magnate
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Hi Greta!
Hi Taffy! Curious is probably taking some time off but I'm sure when she is back there will be chocolate ![]()
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Dx RRMS 1984 |
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#90 | |||
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In Remembrance
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Did someone say CHOCOLATE?
![]() Welcome Taffy. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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Closed Thread |
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