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Old 07-10-2008, 07:34 AM #451
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Hello Sandra and welcome to NeuroTalk.

I'm glad Cheryl pointed you in this direction. Take a look around and jump in anywhere, there is alot to explore here at NeuroTalk.

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Originally Posted by sw8689 View Post
But not too new to MS.

I'm Sandra know as sw8689 on msworld too. I was dx'd in 2000 when I had my first prevelent attack and within a year lost my career to MS. The beta interferons didn't work for me so I had mitoxantrone and that put me into remission and I have had stable mri's for almost four years now and walk and hike with no problems. Most serious problems are fatigue, bladder, pain and spacticity.

I am looking after my MIL who has dementia right now, she is living with my husband and I, and that has taken up all of my energy and time. And sometimes my smiles.

But otherwise, life is pretty good, I like to garden, hang with grown children, play with my dog, and generally enjoy this beautiful life I have been given.

Thanks Cheryl for hooking me up to this forum! And I look forward to meeting my old friends and making new ones.

Sandra
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Old 07-10-2008, 09:39 AM #452
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Quote:
Originally Posted by sw8689 View Post
But not too new to MS.

I'm Sandra know as sw8689 on msworld too. I was dx'd in 2000 when I had my first prevelent attack and within a year lost my career to MS. The beta interferons didn't work for me so I had mitoxantrone and that put me into remission and I have had stable mri's for almost four years now and walk and hike with no problems. Most serious problems are fatigue, bladder, pain and spacticity.

I am looking after my MIL who has dementia right now, she is living with my husband and I, and that has taken up all of my energy and time. And sometimes my smiles.

But otherwise, life is pretty good, I like to garden, hang with grown children, play with my dog, and generally enjoy this beautiful life I have been given.

Thanks Cheryl for hooking me up to this forum! And I look forward to meeting my old friends and making new ones.

Sandra
Sandra found us!! I remember you. I always enjoyed your posts. I hope you have time to spend with us every now and then.

We are in similar situations right now. My grandmother just moved in with us because she is suffering from dementia. It is so sad and hard to watch someone struggle with dementia. There are things that happen that just make me cry because it isn't right that her mind should be taken from her.
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Old 07-11-2008, 06:31 AM #453
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Hi Sandra - I'm so glad you found your way over here!

I'm sorry to hear about your MIL's dementia. It's a cruel disease that both my Mom and sister suffered from so I know the challenges you're facing. Your MIL sounds like a very fortunate lady to be able to live with you.

I hope you'll dive right in here....this place is awesome!! I was over at MSW, too, for a while.

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Old 07-11-2008, 07:39 AM #454
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Smile JJbird form Michigan

Hi everybody,
I wanted to say hi to you all here too. I introduced myself on the intro thread but forgot to add that I had MS.DUH!! I did go back and add that later.

I was dx'ed with MS in april 06. My neuro believes that I've had it since I was very young. I have had vision problems since before I was 5yrs old. I remember when I had my first eye apt. The optometrist took out these binocular like glasses and put them on me.....Oh my gosh I was so scared that I was going to have to wear them forever! I remember he told my mom our color tv caused the damage to my eyes. Of course my current Dr. said no way!(That was the new technology way back then) Yes! I'm old LOL...

I recognize a lot of names from MSW. Some might remember.... I lurked more than anything.. I had some time to post, but as soon as my daughter started walking participating in any kind of thread was not happening, lol
I type slow! Like 5 words a min. And that added to my slow brain waves = HOURS typing one reply (no kidding)
Hopefully I'll be able to get more involved now that she plays better on her own.
Hope to talk you all soon...
Jami
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Old 07-11-2008, 08:01 AM #455
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Hello Jami and welcome to NeuroTalk.

Yes, I remember you

Please look around and jump in anywhere.
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Old 07-11-2008, 11:47 AM #456
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Welcome, Jami. I'm so glad you're here. I haven't been to MSW in ages, so I don't remember you from there, but with my memory, maybe I do...LOL
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Old 07-12-2008, 12:25 PM #457
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Newbie here, also from SW Ohio. My name is Lewis Chapman and I'm a 42 yo., white male from Dayton, Ohio. I've had MS for 7 years now and am in the extension arm of the Tovaxin trial. I was the tenth patient in the IIb and have already had my fourth shot. I'm brand new here but heard about this board on another and thought I'd check it out.
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Old 07-12-2008, 01:27 PM #458
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Hi Neighbor....I'm just a hop and a skip from you, in Kettering. Maybe you know my SSon....he's your age and in Dayton.

We have another here, in the Tovaxin Trial..(Av8girl) I think she has an update thread here. Join in..

Welcome Home, Loobie.
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Old 07-12-2008, 02:40 PM #459
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Hello Lewis and welcome to NeuroTalk

I'm betting most of what you heard about us isn't true Good luck with Tovaxin.
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Old 07-17-2008, 03:15 PM #460
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Default Hi New...

Hello

I'm new here. A friend of mine suggested the site, so here I am.

I am 34, married, mother of 2 (a daughter 10, and a son 3). I have MS. Multiple active lesions in cervical & thoracic spinal area and brain. Optic Neuritis & Spinal Stenosis. My latest flares have been on and off for the last 4 months and seem to be related to the newest lesions that have shown up on my recent July MRI.

I am a business owner working a critically low part time (not yet making income but trying) and I am also a Certified Reiki Master. On disability until I can get the income thing working for me. I have high hopes that someday I can support myself successfully without the need for SS help.

I am a generally happy person.

I look forward to seeing what this site is all about and meeting new friends.

Peace!
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