Thank you Amorehead, for your nice intro. I hope you do not have MS...CU is enough. I also hope your nerve block does the trick and you have a bunch of pain free energetic days to come.

Welcome to our little, NeuroTalk, neck of the woods.. Come on in and enjoy..

Hi,

I am a newby and althought I don't have MS, I am very sympathic to you all as my husband had MS for 10 years. He passed away three years ago due to his multiple illnesses and not to the MS.

I actually found this forum when I was searching recently for some answers to my sleeping disorder.


Hugs to you all,

Grammyto09

Welcome Grammyto9, from a Grammy to 8..

Thank You for joining NeuroTalk and You are Welcome here. So Sorry for the loss of your DH. I lost mine 5 yrs ago and it still seems like yesterday..

There are many helpful forums here and I hope you find your answers here. Tell us a bit about your DH's plight with MS..

First to the new members and everyone else, my apologies, I keep forgetting this thread is here, I would like to welcome, Amorehead3, grammyto09, Mom2Five, bombi, Merle, to Neuro Talk and the MS forums, you will find this is a great place, so many cool people here, helpful and kind, again hello and welcome

Hi my name is Lauri and I was diagnosed with RRMS 4 years ago. I started on Avonex, then had to change to Rebif, and now on copaxone. I look forward to getting to know you all.

Hi Lauri and welcome to NeuroTalk..

I'm so sorry as to what brings you here, but glad you found us. We are a good group of people suffering from MS as are you and we understand.

Come on in and join the party. Tell us a little about you and your fight with MS. Most of us have been there, done that, so, if you have any questions...ask away.

Be sure to visit the Stumble Inn, where we have a little fun.

Hi, my name is Michelle I am new (of course). I have not been definitely dx with ms. I go this Thursday to the Mayo for the news. I was told at my last appointment with the doctors and after all the test that it was either definitely (sp?) or MS. I was also told a blood test could rule out Devics, I am not sure about this. My concern is my vision. I have never had vision in my left eye. Just one of those congenital things. The only down side to that was I could never drive. Since February my vision in my right eye has been shot and foggy and pain in the eye and that is what got me to this point. The drs feel that I have previous attacks of ON and this last one since February just was the final blow. The doctors notes say "impaired visual quality in right eye with constriction of the visual field, some segmental optic disk pallor, and nerve fiber loss on OCT study." He told me that there was nothing to be done to repair my vision and the plan would be to stop the attacks. I have had the other quality, numbness, tingling, pain, falls, foot drop, foggy memory for years but never sought treatment until it effected my vision. And the neurological exam showed weakness on left side and tremors (who knew) and all kinds of other information that I really don't care about right now. And yes I've had MRI's galore and blood work galore, but they just aren't my priority right now. IT'S My vision. It's hard to take. I have been on short term disability from my job for a month because I work in a credit dept. and work with financials and spreadsheets and numbers all day and anyone who has experienced ON knows you can't make out numbers. And with magnifying tools it just makes the numbers bigger blurs. I guess I just wanted some place to let this out. I am frustrated. I just want to wake up tomorrow and go back to work. My husband and daughter have been wonderful, but my extended family stinks. First they bring it up, not me, then proceed to tell me "well it could be worse" "thank goodness ms is a slow condition" "atleast you don't have cancer". And I agree it could be worse, and I am grateful I don't have cancer, but comments like this make me feel like my concerns and fears and frustrations are not valid. Like I should tell myself "buck up". Your vision is shot and there is nothing you can do about it, so get over yourself. Which just isn't very helpful. THANK YOU for letting me RAMBLE on and on, and I am hoping I will find a lot of useful info from your site.

Welcome home, Michelle and we want you to think of NeuroTalk, as your home away from home..

Most extended Family suck, as for understanding what we are experiencing.. I am so glad that you have an understanding, caring Husband and Daughter.

Please come on in and join us anywhere. We are here to help each other through the tough times and we DO understand. If you have questions, we will try to answer you.

Again, Welcome..

Hello Lauri and Michelle, welcome to NT, Sally is right it is a home away from home, such warm friendly and helpful people here, its a godsend. Do not hesitate to post concerns questions and as you will see occasionally we all let out a venting rant once in a while, the people here is what makes this site so wonderful, again welcome to NT

Just found out about you guys yesterday. I sent out a brief intro and then my energy went dry and I started fading. My name is Doxiemama and Friday I will have a new doxie. My only child doxie is Dixie and she is almost 10 1/2. We are adopting a 3 year old rescue doxie if the trial period is successful and we will name him Dexter. I also have a very supportive husband, although he does not talk very much and a 19 year old in junior college. I haven't worked since the end of January and usually keep myself busy. I've got my volunteer application in at my son's elementary school and will be going tomorrow for the first time to a group that meets bimonthly and are big on volunteering. I also help out at our local ms center when they need volunteers. Big problem with volunteering is pacing myself, so I have to be careful about over committing myself. The ms group I have gone to in the past is not a real cohesive (I'm not sure that is the word I'm looking for) group. They come for the topic and or food and don't mingle after. Bottom line is that due to my ms of a little over 3 years, I have a problem with nerve pain and fatigue which I'm working on controlling. I supposedly have remitting relapsing. Event though I have steadily gotten worse since my dx. my doctor is reluctant to give me the dx of secondary progressive until I am unable to walk. I use a cane all the time. Can do a little walking without, but need walls and furniture. I also use a walker or scooter depending on the distance and day. Isolation is a big problem since I'm more homebound and my husband's not a big communicator. I'm pretty good at adjusting and adapting, but have my "days" as we all do. Well, that's me.