hello my name is Molly. I have relapsing remitting MS. Diagnosed in 2003. I've tried avonex and rebif with terrible side effects. I had my first infusion of Tysabri on the 22nd. I am looking to get as much information as possible from others who are on Tysabi. No side effects yet. I'm still unsure if I will stay on this drug. I am a little anxious. Maybe hearing other's experiences will help me with my decision. Thanks for reading! Molly

Welcome, Molly...So nice to meet you.

There is a Tysabri sticky thread at the top of the page, where you found this one. We have quite a few braving TY, so join right into the convo..

Hi, I'm Ken

I'm here as a result of Braintalk being down. I sorta feel a little lost, this being a new place an all. But, I'm sure that won't last too long. I'd post at Braintalk in bursts and was just getting back into it, when the thing did a John Madden "BAMMM!". So I'm here now.

Ok, I'm not new to MS message boards. I have also posted a good bit at ThisIsMS and CPnhelp. My wife who has MS has been RRMS for 16 years and more recently SPMS for 4 is doing really well on the Vanderbilt Antibiotic Protocol. I'm a determined reader. I spent years reading and writing about MS in an effort to understand it and we've been through Avonex, Copaxone, IVIG and Novantrone. We finally found ABX and now Kim has a reversal of symptoms. I am new here, but not new to MS.

Ken

Ken, that's wonderful that you've taken such an active role in your wife's MS. It's such a mysterious disease and can really place a wedge between couples if the one who doesn't have it doesn't "get it".

Welcome to NT and I hope you enjoy it here.

Welcome to NeuroTalk, Ken, Nice to meet you..

I think you just answered my question to you on another thread.....I am happy to hear that your Wife is doing well and actually improving with the ABX treatment. I wish is would work that well on everyone with MS.

Thanks for being such a great support for your DW.

Hi Ken, and welcome to the MS forum!

Hello Molly, and welcome to the Neurotalk MS forum!

I want to wish you all the best with your Tysabri infusions.

Hello my name is Molly. I was diagnosed with relapsing remitting MS about six years ago, but as I'm sure you all have I experienced I had symptoms at least five years before that. I have been on Avonex, Rebif, Tried Copaxone(toture!) and now since my disease is still progressing fast. So now I am starting Tysabri. I did my first infusion on July22. I'm having some anxiety about the risk of PML and am hoping to get some comfort in the form of information and personal experience from others also on Tysabri.

Hello All,

My name is Carla dx with RR MS in 2006 and more recently Fibro and RA. I am no longer able to work and am awaiting SSDI decision . I live in Sunny FL with my 3 fur babies who love my being home all the time . I moved to FL in 2004 to be closer to all my family and things just kinda went downhill from there LOL.

Anywho I'm glad I found this site.

Hi Carla.... Welcome to NeuroTalk.

It looks like you have a full boat with all your DXes.. So Sorry. It sounds like you have a great attitude, though. I like that..

Just join in anywhere and I hope you enjoy your stay.