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Old 05-04-2010, 12:05 AM #821
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Hi tupelophoney,
Welcome!

So glad you found us. We have really great people on this NT forum. Very kind, and caring folks. We will try to help you in any way we can. I hope you have nothing serious but you can read this forum below if you want some information on Chiari.

We have a Arnold Chiari Malformation & Syringomyelia Forum: The link is below or stay on this MS forum if you like. We all love new people.
Nice to meet you.

http://neurotalk.psychcentral.com/forum71.html
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Old 06-05-2010, 07:05 AM #822
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Hi I am new to this Board, but not new to MS. Have been dx since 2002, with symptoms that began in 1985. It took awhile
I am a music teacher. I have not had a major flare in about 2 years and am grateful to still be able to work.
I am active in our community theater and arts center and hope to be able to continue with all that I love to do. I do get tired easily, so I have to watch what I commit to. I am married and have twin daughters and two grandsons. Life is good.
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Old 06-05-2010, 07:38 AM #823
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Hi, Miss Pammy! I like your attitude. (Now if I can just emulate it!) Welcome to our community. You'll find lots of support here.
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Old 06-05-2010, 11:21 AM #824
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Welcome to NeuroTalk Misspammy. I'm glad you found us and are joining us..
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Old 06-05-2010, 01:20 PM #825
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Hi Misspammy! Welcome to NT. I'm happy to hear you're doing so well. Please feel free to jump in anywhere here.
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Old 06-10-2010, 08:43 PM #826
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Hi I'm Cal
I'm over 70, with mild neuropathy in my toes, neurogenic bladder - have to cath regularly. Not on any meds other than Armour thyroid & DHEA.
(A host of supplements, tho) Do B-12 shots 3x/week

The VA, after lots of tests and two types of MRI's said my bladder issue is neurological - no signals from brain to bladder.

My suspicion is that both foot and bladder issues are caused by autonomic neuropathy.

Learning how to use my Interferential Therapy unit on these issues.

Looking forward to learning from this forum.

Last edited by calrec; 06-10-2010 at 08:45 PM. Reason: added name
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Old 06-10-2010, 09:21 PM #827
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Finally, somebody older than I.

Welcome to NeuroTalk, Cal.

I hope you are here to stay.
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Old 06-12-2010, 08:53 PM #828
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Hi misspammy,
Welcome to a wonderful place. That's right, NeuroTalk. Great people here, and we are glad you joined us. I hope if you have any questions or can answer some of ours, that you jump right in the posts. Nice to meet you.
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Old 06-12-2010, 09:01 PM #829
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And a big Welcome to you too Cal. Glad you found NT. We love new people. I hope you feel comfortable with your new friends, and will post often.
Do you have MS--or neuropathy--or both?
Nice to meet you.
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Old 06-16-2010, 06:34 PM #830
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Hi,
I was diagnosed last July 15. I cannot believe it has been a year already. I had double vision. Mid Sept. I started Rebif. However, due to a decreased white count I was only on the full dose for a month. I have been on the 22mcg dose. I have not had a relapse since last July. My white count is starting to drop on the 22mcg dose, so I am seriously considering stopping the Rebif. If I had to do it all over again, I don't think that I would have allowed the doctors to talk me into starting a DMD. Personally, I believe that not having a relapse over the last year had nothing to do with the 22mcg dose of Rebif. When I first started Rebif, I did a slower titration over 4 months and one of my doctors told me that I really needed to get on the full dose so that I would not relapse. Now that I can't take the full dose, I am told that 22.2mcg also works, too. It can be confusing. I don't want to go on Copoxone due to the IPIR reaction. I live alone in a very rural area. During the winter, it can be difficult to get out, so if I needed 911, it could be a problem. Anyway, I am interested in hearing other opinions about this. Looking forward to meeting others.
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