Hi Everyone!

I wanted to connect with people who have MS because I seriously doubt my diagnosis. This looks like one of the best online communities so I had to join. I'm almost 52 years old, and I've been disabled with major neuro problems for at least 20 years, although, I have been sick for 35 years in various degrees. I was diagnosed after years of misdiagnosis. You know how that goes...

MS meds have not been kind to me, so I don't take anything, except something to help me sleep. After 20 years, my liver and my body just can't take anymore. I used to take Copaxone, steriods, and even tried chemo for a year.

So, here is the reason I need you guys: The reason I second guess this diagnosis because of head pain. I feel a deep soreness when I lay on my left side at night. Sometimes, I can't put any pressure on that side at all and if I happen to roll over on that side at night, I wake up with my left eye bulging, and my heart racing. My eye quickly goes back to normal when I stand up.

Does anyone know of another person with MS who has this kind of head pain? This is not a headache. This feels like a bruise beneath my skull with swelling and soreness that follows a bruise.

I only have two little lesions on my Brain MRI that come and go. At first, my MS neuro said they looked like hematomas, but he quickly told me it was MS. Does that make sense? If someone can convince me this head pain thing is normal with MS, I'll listen - promise.

♥ To you all, Nali