advertisement
Reply
 
Thread Tools Display Modes
Old 05-11-2008, 10:16 AM #1
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
My Mood: Red to purple hands/feet, swelling, hot to touch, burning pain
15 yr Member
Default Red to purple hands/feet, swelling, hot to touch, burning pain

A friend with MS has been telling us about this fairly obscure symptom she has, and she ran across this potential cause recently:

"Most cases of Erythromelalgia (EM) are idiopathic (cause unknown). Sometimes EM is secondary to other medical conditions including autoimmune, neurologic or blood disorders. Lupus, polycythemia vera and multiple sclerosis are examples."

"Symptoms
... symptoms may include hands or feet that are very red to purple in color, are perhaps swollen, hot to the touch, and have burning pain.

Location
... symptoms may appear in the face, ears, knees or other parts of the body.... Some notice a continual burning pain while others are troubled with "flare-ups" or episodes lasting from minutes to days in length.

Triggers
... flare-ups are provoked by heat and exercise, and symptoms are relieved by cooling and elevating the affected extremities. Some TEA members have found that foods, spices like MSG, beverages (particularly alcohol) and some drugs can make symptoms worse."

http://www.erythromelalgia.org/tea/s...ythromelalgia?

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (05-11-2008), Kitty (05-11-2008), SallyC (05-11-2008), Victor H (05-11-2008)

advertisement
Old 05-11-2008, 10:42 AM #2
Victor H Victor H is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,090
10 yr Member
Victor H Victor H is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,090
My Mood: Red to purple hands/feet, swelling, hot to touch, burning pain
10 yr Member
Default

Quote:
Originally Posted by lady_express_44 View Post
A friend with MS has been telling us about this fairly obscure symptom she has, and she ran across this potential cause recently:

"Most cases of Erythromelalgia (EM) are idiopathic (cause unknown). Sometimes EM is secondary to other medical conditions including autoimmune, neurologic or blood disorders. Lupus, polycythemia vera and multiple sclerosis are examples."

"Symptoms
... symptoms may include hands or feet that are very red to purple in color, are perhaps swollen, hot to the touch, and have burning pain.

Location
... symptoms may appear in the face, ears, knees or other parts of the body.... Some notice a continual burning pain while others are troubled with "flare-ups" or episodes lasting from minutes to days in length.

Triggers
... flare-ups are provoked by heat and exercise, and symptoms are relieved by cooling and elevating the affected extremities. Some TEA members have found that foods, spices like MSG, beverages (particularly alcohol) and some drugs can make symptoms worse."

http://www.erythromelalgia.org/tea/s...ythromelalgia?

Cherie

Specific foods do that to me. Hence, I do not eat them anymore.

This is really valuable information! Thanks for posting it!

-Vic
Victor H is offline   Reply With QuoteReply With Quote
Old 05-11-2008, 11:04 AM #3
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Default

she might want to look into RSD.

__________________

.
Curious is offline   Reply With QuoteReply With Quote
Old 05-11-2008, 01:18 PM #4
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Location: USA
Posts: 27,444
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 27,444
My Mood: Red to purple hands/feet, swelling, hot to touch, burning pain
15 yr Member
Default

Yeah I saw the title and thought RSD, too.
__________________
NT helpful FAQs -
.

NT Search -
.

These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Jomar is offline   Reply With QuoteReply With Quote
Old 05-12-2008, 11:43 PM #5
prettypearlgirl prettypearlgirl is offline
Member
 
Join Date: Sep 2006
Location: MA
Posts: 153
15 yr Member
prettypearlgirl prettypearlgirl is offline
Member
 
Join Date: Sep 2006
Location: MA
Posts: 153
My Mood: Red to purple hands/feet, swelling, hot to touch, burning pain
15 yr Member
Default

Sounds like classic RSD to me as well.

Carolyn
prettypearlgirl is offline   Reply With QuoteReply With Quote
Old 05-14-2008, 12:21 PM #6
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
My Mood: Red to purple hands/feet, swelling, hot to touch, burning pain
15 yr Member
Default

Thanks for the RSD info. I've never heard of that, but passed on the message to her.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 05-14-2008, 12:33 PM #7
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Default

cherie,

the rsd forum here has tons of info. the stickies would be a great place for her to start.
__________________

.
Curious is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (05-14-2008)
Old 05-14-2008, 05:29 PM #8
Judy2's Avatar
Judy2 Judy2 is offline
Senior Member
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
My Mood: Red to purple hands/feet, swelling, hot to touch, burning pain
15 yr Member
Default

Thank you Cherie for this article!! As you might remember, I've had that problem of swelling, sore, hot/cold feet for years. The pain is always there, along with everywhere else -- probably due to the fibromyalgia. Nothing ever seems to touch that pain but elevating my legs does help the swelling somewhat.

I'll check the RSD board too. Who knows -- I might be "lucky" and have three diseases going on at the same time!!!!
__________________
_____________________________________________

.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
.
Judy2 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Cold Hands and Feet nopainever Reflex Sympathetic Dystrophy (RSD and CRPS) 9 01-02-2008 07:58 PM
amantadine and swelling of feet olsen Parkinson's Disease 2 10-01-2007 02:44 PM
I can't sleep burning pain so bad again on the bottom of feet. rsd kitti Reflex Sympathetic Dystrophy (RSD and CRPS) 28 06-08-2007 09:49 PM
Burning hands? nursegirl Peripheral Neuropathy 12 04-25-2007 06:01 PM
? swelling of feet doydie Multiple Sclerosis 3 11-03-2006 12:17 AM


All times are GMT -5. The time now is 08:33 PM.

Powered by vBulletin • Copyright ©2000 - 2022, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2022 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.