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Old 05-13-2008, 02:46 PM #21
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Default It's a Bird! It's a Plane! It's....
Quote:
Originally Posted by Natalie8 View Post

I would call it the Tysabri superhero solution. (TSS)
... Riverwild!!!

So Nancy, are you able to leap tall buildings in a single bound? Or do you just push them outta your way?
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Old 05-13-2008, 02:47 PM #22
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THAT"S GREAT RW

It's wonderful to hear good news.


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Riverwild (05-13-2008)
Old 05-13-2008, 03:18 PM #23
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Quote:
Originally Posted by Twinkletoes View Post
... Riverwild!!!

So Nancy, are you able to leap tall buildings in a single bound? Or do you just push them outta your way?
Nahhh...I just step on them accidentally!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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AfterMyNap (05-13-2008), SallyC (05-13-2008), Twinkletoes (05-13-2008)
Old 05-13-2008, 06:13 PM #24
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Congrats!!!!!!!!!!!!!!!!!!!!!!
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Last edited by sheena; 05-14-2008 at 12:13 AM.
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Riverwild (05-14-2008)
Old 05-13-2008, 06:42 PM #25
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RW - That is great news. It is such a good feeling when we go to the neuro and for once they give us great news. LOL. I am happy for you.
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Old 05-13-2008, 07:50 PM #26
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Excellent news - let's get on the water to celebrate!!
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Old 05-14-2008, 01:50 PM #27
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Default Excited..........
RW....wonderful news for You!
I am hoping for something simular!
My first infusion of Tysabri will be April 22nd.
I just wanted you to know that although we do not know each other, I have kept track of your postings. With my own research and your experience and positive attitude it really helped me make my decision.
Thank You from the bottom of my heart, for sharing all that you have. I am not much of a poster however, I have kept track!
I just talked to Biogen yesterday..newest stats as of the end of March 2008....there are over 26,000 patients on Tysabri and there have been no cases of PML! Onward and Upward.........Many thanks, Barb
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Old 05-14-2008, 02:25 PM #28
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Great news!!

As for Vitamin D, it is a GREAT vitamin to supplement, especially for MSers. Here is a WONDERFUL article about the benifits of vit D, and even how it coorelates with MS. D3 is the best type of Vit D supplement to take. You CAN take up to 10,000 IU a day without adverse effects. Most recommend 2000-5000 iu daily though.

http://www.lewrockwell.com:80/miller/miller25.html
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Had onset attack in 4/2000
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Can stop blaming myself for symptoms now.
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Old 05-14-2008, 03:36 PM #29
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Quote:
Originally Posted by babs954 View Post
RW....wonderful news for You!
I am hoping for something simular!
My first infusion of Tysabri will be April 22nd.
I just wanted you to know that although we do not know each other, I have kept track of your postings. With my own research and your experience and positive attitude it really helped me make my decision.
Thank You from the bottom of my heart, for sharing all that you have. I am not much of a poster however, I have kept track!
I just talked to Biogen yesterday..newest stats as of the end of March 2008....there are over 26,000 patients on Tysabri and there have been no cases of PML! Onward and Upward.........Many thanks, Barb
Thanks Barb!

I reeealy hope you meant MAY 22nd and NOT April 22nd!! I'd hate to think of you were waiting a YEAR for your first infusion! I have # 14 May 22nd at 1 pm. I'll be thinking of you!!!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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Old 05-14-2008, 03:41 PM #30
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Quote:
Originally Posted by beautytransforming View Post
Great news!!

As for Vitamin D, it is a GREAT vitamin to supplement, especially for MSers. Here is a WONDERFUL article about the benifits of vit D, and even how it coorelates with MS. D3 is the best type of Vit D supplement to take. You CAN take up to 10,000 IU a day without adverse effects. Most recommend 2000-5000 iu daily though.

http://www.lewrockwell.com:80/miller/miller25.html
Thanks! I used that and other studies to back up my use of D3.

Working nights doesn't help me make it, and even if I get out in the sun one day a week, I still don't think I am getting enough steady state, so I am sticking with the D3 and doing the 2000 units, along with whatever I get in diet and with my Calcium w/D.

I'm not a big supplementer, but I do the D3, full spectrum fish oil, calc w/ D, a multivitamin and a baby aspirin daily. Each has their reason and place in my day and I am happy with it.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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