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05-15-2008, 06:41 PM | #11 | |||
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Legendary
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I saw it too, and it wasn't very informative. We already knew that more women than men got MS.
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05-15-2008, 06:50 PM | #12 | |||
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Wise Elder
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Hey, thanks you guys! Now I don't have to watch it when it comes on here. Phew!
So, who is willing to write the letter to NBC about their poor presentation on MS? I would but I am a terrible writer and since the show hasn't even aired pacific time, I haven't seen it. IMHO, the reality may be that women are more likely to go to the dr and get things checked than men. |
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05-15-2008, 06:52 PM | #13 | ||
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Member
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Thank you for saving me the trouble of bothering to looking it up.
Why do men get ms if they don't have the capacity to incubate a fetus? Maybe it is the MS can be different varieties theory. Not impressed yet, but I am hopeful with all of these trials, that somehow the information will synergistically come about. |
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05-15-2008, 07:00 PM | #14 | |||
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Member
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And it was terribly disappointing, wasn't it? Because at least a brief explanation of the disease would have been nice...
I guess I'm reacting this way because, once again, I had to explain to a business associate over the phone how, no, you can't just "will yourself out of sickness" with this disease, and you can't "cure" yourself with holistic stuff. And of course, she knew someone who did all that, who Cured herself with holistic practices, and Willed herself out of having MS because she "didn't want to be sick anymore" (!!!). And this person kept arguing with me about it, and insisting--and I kept trying to be nice. GRRRR! I always think it won't bother me when people--sometimes well-meaning, sometimes arrogant--pull that on me, but it always, always, does, and DH has to calm me down! That's why even a 10-second description of the disease, and how it breaks down the myelin sheath, would have been most welcome from the folks at NBC, rather than the rather stupid and completely irrelevant focus on gender. Their medical news and science editor dropped the ball on this one. It was 120 seconds of film wasted, in my opinion, and I shouldn't have gotten up from my nap! |
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05-15-2008, 07:28 PM | #15 | |||
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Member
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I didn't see it, but I did read about it on this page
http://dailynightly.msnbc.msn.com/ar...5/1026149.aspx From what everyone has said and what little information the online article offers I can understand why this was a disappointing and upsetting segment. The only thing I liked about the link above is that there is a section where you can post a comment, maybe everyone should go there and post their opinion. (Just a thought )
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. Dx'd RRMS July 2007 |
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05-15-2008, 08:33 PM | #16 | |||
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Elder
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Sometimes bad press is better than no press??? At least Robert Bazell said it right.
I posted a comment.
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | Desinie (05-19-2008) |
05-15-2008, 08:54 PM | #17 | |||
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Grand Magnate
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the only good thing is that they mentioned MS as a disease that 500,000 women have.
at least it's being spoken about.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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05-15-2008, 08:57 PM | #18 | |||
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Member
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Quote:
Moose here. As in male Moose. (And let's not forget Vic and Frank and the rest of the boys). After what you ladies have said, I'm glad I missed it. Realizing they did a half baked job, hopefully it will at least buzz around in people's heads for awhile. But if the information is wrong... Sorry. Grasping at straws for a positive response. (Writing a note to log on to NBC's website and drop them a line on the facts).
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You can't have everything. Where would you put it? -Steven Wright Once you change your mind, you can change your life. -Della Reese . Always outnumbered... Never outgunned . *I* am the MonSter that MS fears |
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"Thanks for this!" says: | McGimpy (05-17-2008) |
05-15-2008, 08:59 PM | #19 | |||
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Elder
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Quote:
What they should have covered was the over 400 of us who were on Capitol Hill last week talking to the Legislators about more funding for medical research for MS and to eliminate the 24-month waiting period for those who are waiting for Medicare (people who are already receiving SSDI and qualified for Medicare!).
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | Desinie (05-19-2008) |
05-15-2008, 09:00 PM | #20 | |||
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Elder
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Quote:
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | AfterMyNap (05-16-2008), Desinie (05-19-2008) |
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