I am going to bring up LDN at my next appointment (June), but I do not expect him to be very receptive. My neuro will not prescribe anti depressants or stimulants for ms patients. I am switching insurance in July, and will also be looking for a new neuro.

Barb - I am almost in the same state as you. I want my next 3rd ty infusion, but I am not looking forward to it. My sides last mo were very bad. I never stated how very, very bad here. Just the min stuff. I was so scared till I called the neuro - he stated if I was this bad with TY then I would be much worse w/others. So, I do not think I'll try them when not if I get pulled.

I envy some too (most) - it is defined as " Envy may be defined as an emotion that "occurs when a person lacks another’s superior quality, achievement, or possession and either desires it or wishes that the other lacked it." I wish it, but like u I do not wish another did not lacked it nor do I ever wish it to stop.

I envy River and others who have done so well on Ty. I envy another B/c she has so much intelligence, and has had only 2 major attacks in 8 yrs w/no current sx. I envy almost everyone on this board in one way or other. I do not wish them harm; I just sometimes want to be like then in certain ways. :)

I was DX 11-07 w/COPD and tried to stop smoking - failed - weight gain, DX MS 2-08 MS tried to quit - weight gain - I've been on all the drugs... Determinded to stop this mo - 40lb up in freaking 1 mo - 240lbs from 150-160. around 11-07. I refuse to live at this weight - I envy those who did not gain - who took it off fast. That is my real envy.

Until we walk in ones shoes - we do not know them - we all envy.

I wish you the best - with all my love - Blessed Be

I'm another one that wishes everyone on the DMDs great success but I may be too early in the process of grieving because I am in the denial and anger stage of DMDs not working for me.

I am still on Copaxone but having some nasty IPIRs and find myself skipping way too many doses.

I am a cancer survivor, melanoma, and neuro wants me to go to a dermatologist for my first step towards Tysabri but the articles I read scare the heck out of me. Not for everyone does it scare me but with my history with melanoma it makes it much more of a risk factor for me than for others. The melanoma scared me much, much more than MS ever will.

I am truthfully glad that DMDs work for the majority but I am waiting for newest and greatest with bated breath. Thanks to all the people who are willing and able to be test subjects for these new drugs.

So, Barb, you are definitely not alone.

Barb, I think it's totally normal for you to be jealous :)! It rally isn't fair :( that these drugs are failing some people and not others. I keep waiting for something to go wrong with me and Ty. I'll be having my 4th infusion next week and it seems like before each one I'm thinking 'ok, is today the day I'll have a bad reaction?'. It's like I'm always waiting for the other shoe to drop. I think I need an attitude adjustment :)! I hope you get to a new neuro soon, somone who is more receptive to YOUR needs.

You know what, Harry? . . . I was facing this beast when there were no options what-so-ever available to us, and even though I still chose to fore-go using them, there is something reassuring about knowing there are options that may potentially help ME.

I don't think I'd want their job (our specialists) if I had NOTHING to offer my patients. The "over-sell" probably has a lot to do with "hope"; hope is important aspect with this disease. :hug:

Cherie

And that's why I am in a clinical trial!

The one thing that has really improved in my following MS for so many years is these very options you speak about. Marg was in the same situation that you were in....nothing to take and when in the early 90's the CRABs started to appear, she chose not to use them. But there is a number of medications that MS patients have today that allows them a better quality of life by reducing the intensity of their symptoms. For Marg, it was using Prokarin for 7 years and it certainly helped her a great deal.

Very interesting comment. Back in the summer of 2000, Marg had just finished getting an examine from her neuro at the MS clinic. Although she had SPMS at that time, her condition had stabilized (had been on the Prokarin for two months). The topic got around to the CRAB drugs and because Marg was a nurse and had known the doc for several years, he confided in her. He told Marg that in general, the MS docs were very disappointed in these CRAB drugs because they simply weren't doing what the drug companies told them they would do. The patients were unhappy, the docs were unhappy and the families were unhappy. Marg said to him that she couldn't imagine how difficult it was for him to come to work, day after day, and see virtually no progress being made in the fight against MS. He told her that yes, it was very difficult and he and the others just kept on pushing ahead in the hope that someting might change in the future. He told her to take two good vacations a year and that would do as much or more for her condition than any of the drugs would.

But yes, you have to keep on pushing ahead with this hope...it's important despite feeling how lousy one might feel in any given day.

Take care.

Harry