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-   -   advice on DMD dilemma (https://www.neurotalk.org/multiple-sclerosis/45888-advice-dmd-dilemma.html)

FinLady 05-18-2008 08:16 AM

I agree with everyone else, Natalie. You are not failing the med; it's failing you. :hug:

Quality of Life is very important, especially when considering how long we are on the meds. We're not all the same. What may work for me might not work for you.

Since I'm very sensitive to medications and had my share of rare reactions, 2-4 weeks for a bad side effect like nausea would be all I would allow before I was yelling at the doc. If they had to give me as powerful as an anti-nausea pill that you are on, I would've told the doc I was stopping all my recent meds one at a time to find the trouble maker. But that's just me. ;)

Take care of yourself, natalie. :hug:

Natalie8 05-19-2008 01:44 AM

You guys are the best!
 
Hi all,

I just wanted to say thanks for the kind and supportive words regarding my "dilemma" about quality of life v. the DMDs. I took the last C. shot on Friday night (now it's late Sun. night, or early Mon. morn. depending upon how you view it!) and I am already feeling a million times better. :Excited: I feel good about my decision and it's largely because of your support. Not to mention the fact that I almost feel like I could take a jog around the block and eat a large cheeseburger without wanting to barf. Whoohoo!

I have to say to all of you on this forum that :You-Rock:

Natalie

tovaxin_lab_rat 05-19-2008 11:55 AM

Good for you Natalie. I am glad you are feeling better!

I know when I stopped C, it took about 3 or 4 days for it to clear my system and I felt 100% better. I had the rare extreme fatigue reaction to it. SS and their entire staff told me it wasn't the C but I didn't have all the fatigue before it and the only time I have the debilitating fatigue is when I have a relapse. It does happen in less than 1% of the people who take it and I am in that category!

I hope you find something that works for you. Not everything works for everyone. That's why we have choices! Thank goodness!

starfish 05-19-2008 10:03 PM

Glad you are feeling better. I did too when I went off Beta this year. Within 2 days I was full of energy and felt like my old self again. I stopped getting sick every 6 weeks, and blah , blah, you can imagine.

My family was glad to have "me" back again. I was thinking about staying off DMD like so many do, unfortunately, I may have found a good reason to try something new.

Natalie8 05-19-2008 11:51 PM

Quote:

Originally Posted by starfish (Post 283004)
Glad you are feeling better. I did too when I went off Beta this year. Within 2 days I was full of energy and felt like my old self again. I stopped getting sick every 6 weeks, and blah , blah, you can imagine.

My family was glad to have "me" back again. I was thinking about staying off DMD like so many do, unfortunately, I may have found a good reason to try something new.

Yes, I already feel like the real "me" is coming back. Glad you felt that way too. The quality of life v. treatment choices is a hard thing to grapple with I am beginning to learn. I have an appt. with a new neuro at a MS clinic in a couple of weeks. I wonder what they will suggest. Maybe Tysabri?

Natalie8 05-19-2008 11:56 PM

By the way Starfish, are you new on Neurotalk? :welcome_sign:[


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